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[Epona52]

Good afternoon ladies,
A little random question but I just wanted to ask if any ladies on here have hypermobility syndrome and have noticed that thier symptoms have become worse since menopause, x

[Minnie Mouse]

Hi,
Interesting question...Yes, I am hyper mobile and I have had lots of body niggles in late peri.
Feet probably the worst, controlled partly by wearing really supportive trainers, even to very smart events.
If anyone challenged my footwear now, I would be dangerous to take on 

[CLKD]

 

As oestrogen levels drop muscles may become lax = aches and pains.  The body may also become dry etc..

R any joints affected more than others or at any specific times/activities?

[Epona52]

Hi, and thank you,
Most joints are affected and I have oestoarthritis in almost every joint,
I'm in hospital next month for third operation on my feet as two have failed,
Recent research has come to light between hypermobility and anxiety which I have suffered for years but again has been worse since menopause, just interesting how all these things are connected..

[CLKD]

R U able to explain more about the Research: who sponsored it and why there's a connection with anxiety?  Was your anxiety cyclinal? 

[lizzog]

I’m hyper mobile and have Pots too. I’ve been plagued by tendinitis issues such as Achilles and currently in one if my fingers 

[Evie606]

Good afternoon ladies,
A little random question but I just wanted to ask if any ladies on here have hypermobility syndrome and have noticed that thier symptoms have become worse since menopause, x

Hi there,

I have EDS and only recently discovered that my tachycardia episodes which started 5 years ago might be connected.  I also have autoimmune thyroid and this has also been extremely unstable after entering menopause.
My EDS symptoms of fatigue, papery skin, clumsiness and partial dislocations have definitely become worse since I entered Peri/Menopause.
My son has also recently been diagnosed and the gp was very helpful.  Hopefully you are getting the right support.
E x

[lizzog]

Do you mind me asking when you were diagnosed as EDS? I’m not sure there are any adult EDS services near me and I think I might have it- I was diagnosed with Pots and hyper mobility about 10 years ago

[Pixie]

Another one with EDS and autonomic neuropathy. In so much more pain, stiffness and fatigue now. Can't take any higher estrogen because of the higher dose of progesterone causes me to be in absolute agony and mirena is out due to higher risk of perforation. It's a nightmare.

[Epona52]

Hi, Thank you for your replies just been reading through them, I too have the paper thin skin which tears and bruises easily, I was looking up hypermobility and came across ' Jessica Eccles ' who has thoroughly researched it all and published it online.. and on the versus arthritis website, I finally got diagnosed at 38 but have had arthritis since my 20's, but since menopause its hit me so much harder and yes the pain and fatigue are awful, looking forward to the warmer months,
Best wishes x

[Epona52]

Just to note, she says there is a connection between hypermobility and anxiety because of the amygdala in the brain, the part that is responsible for fear processing, I then went on to find that menopause can make things worse, I can't remember why 'brain fog' but it was there in black and white,
X

[CLKD]

   Girls.  I am so lucky ......... 

[elle]

Hi Epona52
I'm hypermobile and have spent the last 4 years trying to find out the cause of musculoskeletal pain that came on during perimenopause. After looking at a lot of research, numerous tests and treatments I think hormonal imbalances due to menopause has led to ligament laxity. I've always been hypermobile and since perimenopause my bones and joints have become really loose and painful. The last year there has been some improvement but I'm unsure as to whether it's down to things I'm doing/taking or just time, but I'll write a few down in case you want to look into anything. 

I'm currently on HRT estrogen patches 100mg and 200mg utrogestan.
I've had a ton of physio and I do low level circuits and strength training as well as daily walking and a lot of slow running to build up muscle.
ESWT on both ankles, waiting for another session. Available on NHS
I take whey protein powder and creatine to help build muscle strength, being hypermobile means our muscles get fatigued easily as they have to do the job of our faulty ligaments
I've also started methylfolate and think it may be helping. Google research on Tulane University and methylfolate for hypermobility, my GP was very interested in this
If you have pain then the free joint pain clinic at Nuffield gyms are an option. If you have them in your area you may want to ask your GP for a referral. They may even take self referrals
Facebook groups for hypermobility/EDS can sometimes be useful for consultants/info etc
Pain clinic- for pain management and pharma options as well as physio.Referral from GP or consultant 
Test/scans/bloods etc are always useful to rule out other conditions like RA.

Jessica Eccles is one of the leading voices on hypermobility, neurodiversity and anxiety, her work is fascinating. She has info on youtube and her insta account is dr bendy brain I think.Flippin Pain is another good website/youtube channel and will cover anxiety too.I've had good recommendations on the forum for alternatives to the progesterone I'm on as I suspect this is the rogue hormone making my laxity worse so you might want to play around with different ones.
I hope things settle for you soon , Elle x