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[holidaylover]

Well I've had my follow up appointment regarding UTI symptoms and bowel pain.  She examined me and said that I was looking better after having used the ointment externally for Lichen Sclorosis.  Because my UTI symptoms continue and as water samples are coming back with no infection, yet blood when dipped in surgery, I have to see an urologist.  I still have no clue how my bladder and bowel pain seem to be happening at the same time.  She seemed to agree that lack of estrogen could be the issue but said because I had mentioned that I was concerned the Ovestin was the culprit, the steriod cream she had given me was an alternative!!  I asked about trying Vagifem instead and she has given me this.  I felt my appointment was rushed and I didn't get a chance to ask more questions.  She never mentioned the continuation of the steriod cream nor did she give me a repeat prescription for the Vagifem.  She did however, also give me a prescription for an antibiotic 'in case I had an infection in the bowel'.  I'm reluctant to take this as no test has been done to clarify.  I'll start with the Vagifem and see how that goes.  Absolutely sick of the daily pain I am feeling and really want to get this sorted.

[CLKD]

She needs to update her knowledge!  U need to use the vagifem every night and if things have improved: which I am certain they will have: by the time the appt arrives, then mayB cancel it.  Keep a diary of symptoms/treatment etc. to discuss with her.

What type of pain is it in the bowel, occasionally I get very sharp shooting pains for no apparent reason which make me. yelp!  If your digestive system is slow then any form of constipation will press on the bladder - whoever thought the design needs  .  Hopefully once the vagifem begins to ease sympt0oms the bowel pain will lessen.

B4 a bleed began I would have 'the runs' even if a period wasn't due.  I also remember the feeling that my bottom was hanging out  which was hormonal 4 me. 

Most dip stick tests show signs of blood especially if VA is present.  It is often normal for most patients tested and if samples have been 'grown' to show nil of note, it's usually VA causing the problems.

let us know how you get on?

[Borchesterlass]

Be very careful with the steroid cream . I was wrongly diagnosed with lichen and given Dermovate . I paid privately for a second opinion and the gyne said it was severe AV . The steroid would make it worse .

[Jules]

I have invisible blood in my urine. After my UTI troubles I had a cystoscopy because my urine showed blood. Nothing was found and I was told to alert the tester in future that it had been checked. I do remember when I had period pains I sometimes got a pressure pain on my bowel. Depending on your size, pelvic organs can be very close together. I'm having tests for pelvic pain currently, I think my bowel but sometimes I can't tell if it's bowel, bladder, gyny or just by dodgy hip flexor muscle. Seeing a urologist might be a good thing. It's something that can then be ticked off.

[holidaylover]

Went for my cystoscopy appointment.  Just got into changing room to put on the gown, when nurse informed me that I was no longer to get it.  Urologist had seen that I had one previously (5 years approx) and because I had no noticeable blood in urine (although it shows on test) and all UTI tests were negative, there was no need for another!  I have now been instructed to fill in a form indicating the amount on fluid I take in, and how much I pee.  I have to do this for 3 non consecutive days then send form to hospital.  From there I have to have a scan.  I am in absolute agony today and I really cant tell where the pain is coming from.  Still pressure on bladder although this isn't as bad as it was.  I have pain on lower left side which I assume is from my diverticulitis and I have awful pain on my right side, sort of above my hip bone. My back is sore too and feels stiff.   I feel like this could be ovary pain and I'm panicking a bit.  I'm thinking cyst or worse.  I'm scared something is pressing on my bowel and bladder.  The pain is intense, almost like a burning stinging pain, but I also feel like its needs to break away and rumble (if that makes sense).  If feels like something is being twisted inside.  If I press on my right side I can certainly pinpoint where the pain is. It makes me wince.  And Im not quite sure what to take for the pain.  I also last week started taking Vagifem and I'm wondering if this could be causing the ovary and pelvic pain. I also bloat terribly at times, but this comes and goes.  I also dont know if the urologist I am seeing will just concentrate on the bladder with the scan or if this will show bowel/gynae issues too.

[Jules]

If it's an ultrasound scan they won't see the bowel well enough. It needs a CT scan. You might have said but have you had a Fecal sample tested and blood tests? If not I would ask for those. Please make sure your GP has carried out all those screening tests. They can see all sorts from the right blood tests. I've been for my results today and everything was normal. My pain lasted around 6 weeks and kept changing but I have an amount of stress at present so I will now assume it was IBS.

[Kathleen]

Hello Holidaylover

Apologies if this has already been mentioned but have you had a full abdominal ultrasound scan? I presume this would show things like your ovaries as well as bowel and bladder.

You may want to consider contacting a private company like Ultrasound Direct, I had a scan with them a while ago and found them to be very good.

I hope you get this sorted soon and sending hugs.

K.

[holidaylover]

Thanks, Jules glad your results are fine.  I have lots of bloods taken recently, and all were fine.  When I went in for an eternal examination I was too inflamed for this to take place and the doc then said she would do bloods, so I assume that was for the gynae area.  I haven't had a stool sample checked although I did my Bowel Cancer Screening one just last month and all was good there.  Kathleen the urologist is having me get a scan.

[Jules]

Thanks, Jules glad your results are fine.  I have lots of bloods taken recently, and all were fine.  When I went in for an eternal examination I was too inflamed for this to take place and the doc then said she would do bloods, so I assume that was for the gynae area.  I haven't had a stool sample checked although I did my Bowel Cancer Screening one just last month and all was good there.  Kathleen the urologist is having me get a scan.

That's good news then. I don't want to alarm you but my friend had her bowel screening test 2 months before seeing her GP and it was clear but I've learned they're not as sensitive as the ones your GP requests. She also had ultrasound and that can't examine the bowel so something was missed. She needed a CT scan. My GP has checked for ovarian cancer, inflammation and tumour markers. It's amazing what your blood shows. I also had a Fecal test for any bacteria.

[CLKD]

It's such a waste of an appt time, why not either read the patient's notes prior to the appt or do the scan anyway!  It would be no more expensive than a lost appt.

Many dip stick tests show blood in the urine which may be the result of thinning skin and/or atrophy. There doesn't seem 2 B much joined up thinking!
Do go to a Pharmacist to discuss pain relief and I doubt whether VA treatment would cause those symptoms.  U R inserting every night?

[holidaylover]

Yes, inserting every night.  Ironically, I've just had my scan appointment through the post just now.  Its for a CT Renal Scan so don't know what that will all pick up.  At least I'm heading in the right direction.

[CLKD]

Let us know how you get on. 

[holidaylover]

The saga continues......   I got my CT scan of renal area although the lady doing the scan said it would show up anything in the stomach area too.  She said the results would be back in 7 - 10 days.  I am still waiting 5 weeks later!  And, still in pain.  My bladder pain is a lot better but the bowel pain remains.  I have stopped all VA treatment again as I feel this was adding to the UTI feelings.  I was in agony 3 weeks ago and ended up at our local hospital at 10.30 in the evening.  It felt like something was about to burst in my stomach.  I had urine checked and bloods done and in the words of the doctor 'You are a mystery'.  No sign of infection and he mentioned interstitial cystitis (he was obviously aware that I was under the urologist) and sent me on my way with information regarding this.  He did say I should follow up with a docs appointment so I did that the next day.  I asked for another scan to be done as at times the right hand side pain feels like ovary pain, (cyst like) or even appendix, like something crampy and twisting and sharp all at the same time.  It is very sore if I press on the area.  However, he said no need as he was sure the original scan would show anything up like this.  He did, though, suggest I supply stool samples to be tested.  I had a phone call as a result of these to say I had Campylobacter.  Apart from the severe stomach pains, I havent had diarreah like the description of Campy refers to.  I have IBS and usually start the day with a soft bowel movement but nothing like I would have expected from food poisoning.  The bowel issues started back in April when doctor said it was diverticulitis.  Could I have had this bacteria infection all this time?  Has anyone experienced it?  The week after she mentioned diverticultis, I went off on holiday and I actually was more constipated than anything.  Now, I have completed a week long course of Clarithromycin and the pains continue.  I visited my surgery at the end of the week when the prescription was done.  My doctor requested I did another lot of stool samples and hasnt given me anything else to take.  Of the 3 samples I handed in the last time only 1 came back with results. (dont know if the pots werent full enough with the other 2).  So still a bit of a mystery but what I have also noticed since being on the antibiotics that I have been feeling really strange, anxiety wise.  Really since I stopped taking them (the past 3 mornings) I have been feeling panicky, agitated, having palpitations, crying for the most stupid reasons, feeling week and shaky with a dreaded doom like feeling.  I also have developed a black tongue!!!  Has anybody had a reaction like this from this antibiotic.  I cant take penicillin as I have an allergy.  Sorry for such a long post.  My health anxiety is in overdrive and Dr Google is being a naughty boy!  But Campylobacter left untreated can be deadly!  And I dont know what the hell has happened to my scan results!