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[Twin]

I’ve been for a transvaginal scan today and the lining measurement was 9.something (I forget the exact number)
So she said it would go to the gyno who will let me know what happens next.   She gave me a letter giving couple options hysterocopy being one.    I have to wait now for a phone call or message through the NHS app. 
Im so scared.    I’ve been on hrt for about 3 years and this brown spotting only happened 2 weeks ago and now it’s gone.    I am terrified, I have a youngish daughter no husband as he died from cancer.   

[bombsh3ll]

Please don't worry, you really have no need to medically, although I can understand your concern given what you have been through with your husband and being the only living parent of a young child.

Whilst this does need to be checked out just to be on the safe side, it is extremely common to get a bit of endometrial proliferation and bleeding on hormone therapy.

This is simply the uterus doing what it has always done in the presence of those hormones, it is not pathological and really doesn't need to be feared as it so often is.

Normative data for postmenopausal endometrial thickness, with a cut off of 4mm, is based on women NOT taking hormone therapy. The system is simply not smart enough to distinguish between someone not taking any hormones, in which case 9mm would be more concerning, and someone whose endometrium is under estrogenic stimulation.

No normative data for endometrial thickness in women on hormone therapy have been agreed upon, however cutoffs of between 8 and 11mm have been proposed by various experts.

In your situation it is almost always benign and easily remedied by tweaking the progestogenic component, either increasing the dose or changing to a more potent progestogen such as the IUS or an oral progestin.

[Twin]

Thank you so much for replying. I’ve been on 2 x pumps oestrogel and one continuous utrogestan.
About 7 months ago I used testosterone for a couple of months but I stopped as I didn’t like it.    Im wondering if this has somehow made the oestrogen higher causing the thickness.     
I have noticed I seem  to need the toilet more (wee) than usual.   

[Northerngirl]

Hi Twin, sorry to hear you're going through this.  I went through very similar about 16 months ago....mine started with blood in my urine and then PMB . My womb lining was 8mm and then i went on to have a pipelle biopsy but that failed due to my cervix being closed (something like that) I then had a hysteroscopy and biopsy under general anaesthetic as recommended by the ladies on here and due to the fact I'd had a hysteroscopy several years previous and found it painful, having a general anaesthetic is up to you and you may need to request one as they aren't always offered.
After several weeks of waiting that seemed like years😂 all my results were clear and I had worried myself silly for nothing.  Anxiety is understandable but please don't worry unnecessarily.
I was on the gel and continuous utrogestan same as you,  I genuinely believe the utrogestan doesn't always do what it should and keep the lining thin.
When I was on tablets I never had an issue and then within 18 months of changing all my problems began.
Please let us know how you go on and please,  please  try not to worry....easier said than done I know   

[Twin]

Thank you for replying.   I feel sick with worry.   Ruined the Easter break.    I hope I’ll be ok too.
The letter on the NHS app didn’t help, saying gp has referred you due to suspected cancer.    So I hope I get some news soon.   
So did you carry on with the hrt? And what did they do about the thickness?

[bombsh3ll]

That wording is so irresponsible.

It is almost never cancer when someone is on hormone therapy.

But yes micronised progesterone is the weakest in terms of endometrial protection.

It is likely that you will need either a higher dose or a more potent progestogen.

Regarding the urinary symptoms, I would hand in a urine specimen to your GP to exclude an infection, and you could try some vaginal estrogen for likely genitourinary syndrome of menopause.

Testosterone is converted to estradiol in the tissues so it is biologically plausible that this MAY have contributed to the endometrial proliferation, however most women don't require additional progestogen if taking testosterone.

[Twin]

Thank you.  I feel slightly better. 

[Northerngirl]

Thank you for replying.   I feel sick with worry.   Ruined the Easter break.    I hope I’ll be ok too.
The letter on the NHS app didn’t help, saying gp has referred you due to suspected cancer.    So I hope I get some news soon.   
So did you carry on with the hrt? And what did they do about the thickness?

I decided to stop all HRT (purely my personal decision) .They never did anything about the thickness....that was the strange thing !!! I think if I'd stayed on HRT they probably would have changed the progesterone part for me. I think because I had quite a heavy bleed it probably would have shed the lining naturally.
They worry the life out of you so much  and then after all the scans etc nothing  was ever mentioned again.
Don't worry about the letter saying suspected cancer as that is just standard ...it said that on mine and I  was referred to  a gynae/oncology department and that absolutely terrified me seeing the word oncology.
Please try not to let it spoil Easter for you and your daughter.
Hope you hear something soon.
If you need to ask anything else please feel free to do so

[Twin]

Hello it’s me again. Just sitting scrolling all day.     I reduced my oestrogel for 2 days, had one pump instead of 2 and today I’ve not used any.    I’m going to have one more Utrogestan tonight and then that is it.
I wish they’d ring to arrange the next procedure I feel i cant go out, im wearing my mobile on a lanyard so I don’t miss the call.     
When the nurse referred me I said im worried it’s ovarian cancer, she said oh no you don’t get this with that this is what you get with endometrial cancer.   So I can’t stop worrying
I really think women should be offered an annual tvs and issues could be picked up before it’s a problem. It’s such a quick and easy way to check the risks.   
The letter they gave me suggested a hysteroscopy or a pipeline biopsy.  I’ve read the hysteroscopy is painful but what is a pipeline biopsy like?
Thank you.   

[Dotty]

Hi I’ve add 3 pipelle biopsies…..all ok.  I found it uncomfortable, but manageable. 

I know you’re worried, but try not to worry.  I’ve been referred 5 times to the oncology department.  I’ve had 3 pipelle biopsies and a hysteroscopy ( under anaesthetic). Each time nothing has been found.

I didn’t stop hrt for any of the appointments.

[Twin]

Thank you Dotty, im glad you’re ok.  I’m going to ask for a local for the hysteroscopy if that’s what they want me to have.   

[Twin]

They’ve just rang.   Booked in for a pipelle a week on Tuesday.   

[Twin]

So it’s my pipelle biopsy tomorrow.  I am scared.     I’ve done loads research over last 2 weeks and I’m hoping all will be ok but there is that niggle it won’t be.   
I stopped the hrt and have spotted a bit since and there was a jelly like discharge yesterday.     
Im wondering why it’s a pipelle rather than a hysteroscopy im hoping it’s because they’re hopeful the results will be ok.  Or maybe because they couldn’t see fibroids or polyps on the scan.   
I’ll come back tomorrow and say how the biopsy went.   
I never got a letter for the appointment just a notification on the NHS app which only states day and time.   

[che]

So it’s my pipelle biopsy tomorrow.  I am scared.     I’ve done loads research over last 2 weeks and I’m hoping all will be ok but there is that niggle it won’t be.   
I stopped the hrt and have spotted a bit since and there was a jelly like discharge yesterday.     
Im wondering why it’s a pipelle rather than a hysteroscopy im hoping it’s because they’re hopeful the results will be ok.  Or maybe because they couldn’t see fibroids or polyps on the scan.   
I’ll come back tomorrow and say how the biopsy went.   
I never got a letter for the appointment just a notification on the NHS app which only states day and time.   

So it’s my pipelle biopsy tomorrow.  I am scared.     I’ve done loads research over last 2 weeks and I’m hoping all will be ok but there is that niggle it won’t be.   
I stopped the hrt and have spotted a bit since and there was a jelly like discharge yesterday.     
Im wondering why it’s a pipelle rather than a hysteroscopy im hoping it’s because they’re hopeful the results will be ok.  Or maybe because they couldn’t see fibroids or polyps on the scan.   
I’ll come back tomorrow and say how the biopsy went.   
I never got a letter for the appointment just a notification on the NHS app which only states day and time.

Hi i had a hysto 2 weeks back and  pipelle the hysto is to look around the camara bit the pipeille is the biopy, finger crossed it all goes well

[Twin]

Thanks che.