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Author Topic: Worried there’s something really wrong. Calming words needed!  (Read 5447 times)

CLKD

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #15 on: January 02, 2025, 10:27:21 AM »

I wonder with the amount of investigations that you have been referred for, how long these worries have persisted? 
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Flossy McFlossy

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #16 on: January 02, 2025, 12:44:37 PM »

Hi CE1976.  I hope you're doing OK and feeling reassured by the previous posts.

I just wanted to say that I felt exactly like you when I had bad fatigue.  I had never known anything like it - even lifting the kettle felt like hard work.  My whole body felt weighed down and it was really scary.  Plus I had all these other random things going on - lots of joint and muscle pain, tinnitus, sinus issues ... even BO which I had never had before ... the list goes on, and, like you, my sleep was not good.

I also thought on many occasions that the docs were missing something, although my docs at the time were no way near as thorough as yours seem to have been - mine were quite dismissive and it took a while for me to get the HRT from a new and much better GP.

I'm happy to say that the HRT, which I started using in July has dealt with the fatigue (and the aches and pains and lots of the other things have improved too) and that's made me realise that, for me, it was definitely hormonal.

It's not all plain sailing and I have been struggling with anxiety still, and bad sleep - but that is also improving now since I came here and got some really helpful advice. 
 
So, I guess I just wanted you to know that you're not alone, and that things can change and improve.

xxxx
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CE1976

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #17 on: January 02, 2025, 03:17:19 PM »

Hi all, thanks for all the replies. I do feel somewhat reassured. I’ve started on the hrt now a few days ago and felt better this morning (probably psychological at this stage!) but feel tired again now.
Still getting strange tightness in chest, crazy heart rate changes and lightheadedness. Having an echocardiogram on Tuesday so hopefully that’ll give some answers.

CDLK - the tests have all been since October believe it or not! The ultrasounds were from a consultation in July for pelvic pain but took 4 months to come through!
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CLKD

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #18 on: January 02, 2025, 03:28:24 PM »

I believe that low hormone levels may cause those current symptoms.
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Dierdre

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #19 on: January 02, 2025, 06:14:18 PM »

Hi all, thanks for all the replies. I do feel somewhat reassured. I’ve started on the hrt now a few days ago and felt better this morning (probably psychological at this stage!) but feel tired again now.
Still getting strange tightness in chest, crazy heart rate changes and lightheadedness. Having an echocardiogram on Tuesday so hopefully that’ll give some answers.

CDLK - the tests have all been since October believe it or not! The ultrasounds were from a consultation in July for pelvic pain but took 4 months to come through!

I've been suffering with ectopic heartbeats and palpitations since October too, had ECG and all was normal but still getting them. When I'm busy and with people I'm fine, when I feel anxious they fire up again. I'm not surprised you're suffering with irregular heartbeats with all this anxiety, it's a vicious circle. Mine started on holiday after a man nearly drowned on the beach and we had to administer first aid until the ambulance arrived. Then I was anxious about the irregular beats that caused more anxiety that caused the irregular beats and more anxiety and  so on and so on... it's still continuing!!!
Hopefully when you get the all clear for yours it will help and you will believe all is well, as it sounds like this is what started this roller coaster.
I know i should practice what i preach, mine are getting less but it's mind over body.
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CLKD

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #20 on: January 03, 2025, 09:16:32 AM »

I'm trying to make note of everything I put into my digestive tract without much success  :-\
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Dierdre

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #21 on: January 03, 2025, 01:55:55 PM »

I'm getting the palpatations after eating, especially carbs or sweet stuff so limiting this now. It's supposed to be normal after eating but it's new to me. I've started taking vit D again as low deficiency can cause irregular heart beat but too much can too.
 I'm fed up of googling, guessing and treating myself but the doctors appointment was over the phone and a 2 minute ecg with the nurse, so not even been seen or examined by anyone let alone been sent for further investigation. The doctor I spoke to said the nhs is in a mess and it makes you feel you're wasting their time as they've got more serious things to deal with than palpatations.
« Last Edit: January 03, 2025, 01:58:12 PM by Dierdre »
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CE1976

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #22 on: January 03, 2025, 02:13:10 PM »

I also get heart racing after eating, especially a big meal. Also wake up in the early hours with it, then get a rush of heat too and takes a long time to calm down. It’s exhausting!
One of my drs said NHS cardiology is completely broken so I ended up seeing someone privately (estimated NHS waiting time just for a 24hr monitor was 22 weeks!)
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CLKD

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #23 on: January 03, 2025, 02:23:26 PM »

That sounds like there is 1 monitor to pass round each Health Authority region?

Cortisol. The waking hormone.  Would cause extreme anxiety surges anytime from 3.00 a.m. onwards  :'(
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Dierdre

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #24 on: January 03, 2025, 04:21:39 PM »

I also get heart racing after eating, especially a big meal. Also wake up in the early hours with it, then get a rush of heat too and takes a long time to calm down. It’s exhausting!
One of my drs said NHS cardiology is completely broken so I ended up seeing someone privately (estimated NHS waiting time just for a 24hr monitor was 22 weeks!)

I've just looked at a private company that deliver a monitor to your home with instructions how to use it for 24 hours. They then collect it and send results in 3 days, cost £265.
Might be an option if it gets worse. My ECG in the surgery was normal but I wasn't palpatating at the time so don't know if that really counts. The doctor said it was reassuring but I'm not reassured at all.
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CLKD

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Re: Worried there’s something really wrong. Calming words needed!
« Reply #25 on: January 03, 2025, 04:47:00 PM »

If after all these months the palpations were 'dangerous to health', symptoms would have changed or exacerbated requiring admission for further tests.  Usually these unusual feelings are due to hormone upheaval, sometimes we become more aware of issues like my tinnitus for example. It's a nuisance today  >:(.

Fortunately I've not noticed palpitation-type feelings.
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