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Author Topic: Positive Anti CCP  (Read 3207 times)

charpar

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Positive Anti CCP
« on: November 18, 2024, 01:55:34 PM »

Did you get a positive anti-ccp or told arthritis is present in peri-menopause?

I'm new and 43 have what i feel like are really strong peri-menopausal symptoms. I had an appointment with the GP following achy joints. The aches migrate around my joints though mostly in shoulders, hands and elbows along with other peri-menopausal symptoms. The Dr did a full blood works on me but said she suspected Rheumatoid arthritis which i didn't worry about as i have more symptoms of peri-menopause than I do of the that. The blood tests came back and the rheumatoid factor came back negative but the anti ccp which indicates arthritis came back positive. This came back through a text message from my Dr's surgery at ten to eight on a Friday night. I have an appoinment booked in for later this week but just wondering if anyone else experienced a positive anti-ccp and what was discussed with you following that.

Thanks
Char
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CLKD

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Re: Positive Anti CCP
« Reply #1 on: November 18, 2024, 02:41:00 PM »

 :welcomemm:

I wasn't aware that blood tests can show osteo arthritis, which is common wear and tear of joints.  Inflammation markets may show up ......

I would think that aches and pains are caused by low oestrogen levels = laxity of muscles.   Also the body may become dry: inside and out; skin, vagina, deep in the ears, nostrils, eyes ......

Make a list of your symptoms to take with you to the appt.  What R your periods up to?  Many GPs still believe that a loss of periods along with hot flushes are the symptoms = menopause when in reality, peri - those years leading up the final bleed = menopause - may begin 10 years B4. 

I don't understand anti-CCP?  Do your joints feel hot or swell with excruciating pain which is common for RA.? 

Keeping a mood/food/syptom diary may be of use.

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charpar

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Re: Positive Anti CCP
« Reply #2 on: November 18, 2024, 07:44:01 PM »

Hi, thank you for replying. Your right there is no direct test for osteoarthritis but the anti ccp test is apparently a test that indicates arthritis. The Dr’s haven’t spoken to me about the results. It’s just a confusing result as I don’t have any symptoms that correlate with arthritis expect for the joints pains which I think correlate more with perimenopause as well as lots of other symptoms that correlate with perimenopause.

My periods are all over the place, Ive had a couple of months of two periods a month and then they are monthly but vary as to when they come.
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CLKD

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Re: Positive Anti CCP
« Reply #3 on: November 18, 2024, 08:17:28 PM »

The test is performed to check for inflammation markers which may indicate that a person is at risk of developing Rheumatoid Arthritis - NHS info.

Osteo arthritis: natural wear and tear: it is diagnosed by X-rays/MRI scan on the affected joints.  These pains can be felt on movement, walking, sitting, rising from a chair/bed.  They can be intermittent dependant on exercise.  Over the counter pain relief should help, especially when taken 20 mins B4 exercise. 

How did U get the result if it isn't via your GP Surgery?  Both OA and RA as separate conditions can develop in childhood .  A physiotherapist can advise on movement, i.e. lifting correctly etc.. 

R any of your joints particularly 'bad' and when do you notice any pain?  I have a bursitis in both hips and R elbow joint  >:(.  Hips wake me in the early hours, the elbow is sensitive to clothing/touch - I think due to weeding with a forward/backwards movement  ::)
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charpar

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Re: Positive Anti CCP
« Reply #4 on: November 18, 2024, 09:52:29 PM »

The dr put in for this particular test and the result was sent to me via text message. I then googled to see what the test was for and got the same information as you.

The joint pain migrates around my body, it’s doesn’t stay in one place for long, like today for example, my index finger specifically was very stiff and sore this morning, this evening that’s gone and my elbow feels stiff and sore. Which is why I’m confused with the result
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CLKD

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Re: Positive Anti CCP
« Reply #5 on: November 19, 2024, 09:37:02 AM »

Morning.  My aches and pains migrate.  As well as sudden shooting pains deep in the ear !  What Plan do you have moving forwards? 
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charpar

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Re: Positive Anti CCP
« Reply #6 on: November 21, 2024, 01:10:11 PM »

I went to the dr today and they have said they will refer me to a rheumatologist as the test is very specific for Rheumatoid Arthritis.

Do you have a diagnosis?
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chopsuey

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Re: Positive Anti CCP
« Reply #7 on: November 21, 2024, 04:15:32 PM »

It is very specific for Rheumatoid Arthritis (RA) but it can also occasionally be an indicator for other autoimmune connective tissue disorders, like Lupus. Having a negative Rheumatoid Factor does not mean you don't have RA - there are many people with RA that are negative for this but also many people who are Rheumatoid Factor positive that don't have RA.

You don't say what other symptoms you are having but RA can also present with fatigue, fever and generally feeling unwell. Anti- CCP can be present in the blood before significant symptoms show in the body. With RA, it is common for joint pains, stiffness and swelling to move around the body to different sites - hands, feet, shoulders and elbows are commonly affected. 

Your referral to rheumatology will hopefully be treated as urgent, as if you do have RA, the sooner you can get treatment, the better the outcome. The rheumatologist will probably want to do further investigations, like x-rays or ultrasound, possibly further blood tests to make the diagnosis.

You may well be perimenopausal as well of course. Do you have any family history of autoimmune, inflammatory joint conditions?   
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CLKD

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Re: Positive Anti CCP
« Reply #8 on: November 21, 2024, 05:00:47 PM »

My aches and pains, in particular the bilateral hip bursitis and R elbow similar affected, are really annoying in the early hours.

A friend who suffered RA for many years would spend his Winters in Crete - warm weather cured the pains.

Let us know how you get on. U may benefit from ring the dept and asking how long the wait is likely to be: R U able to take a cancellation appt. at short notice, when another patient fails to show? 
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SarahT

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Re: Positive Anti CCP
« Reply #9 on: November 23, 2024, 08:48:04 PM »

Charpar
If you havent already done so, take a look at two very respected UK sites, Versus Arthritis and NRAS.  These are very very good informative sites, ( my GP and rheumatologist consultant even recommend them )

They offer leaflets by post or download and even have phone numbers to call if you want to speak with someone.appt
 It may just help to have some basic knowledge prior to your appt. It may look and feel a bit overwhelming but theres help to be had.

I have seronegative inflammatory arthritis ( similar to RA) and osteoarthritis and fibromyalgia.

Make some basic notes prior to your rheumy appt
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