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Author Topic: Utter confusion- please help!  (Read 780 times)

Oliviatheshark

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Utter confusion- please help!
« on: October 15, 2024, 08:04:37 AM »

I’m perimenopausal. I managed to get prescribed evorel sequi patches and the difference was amazing - gone was the hysterical woman, and I got myself back.

At the three month review, I was daft enough to say I had bother getting them to stick and they slightly irritated my skin. I wish I had never uttered those words!  I was given oestrogen and Utrogestan.

The gel - worked OK when I used one pump in the morning and one at night, but if I did two pumps at the same time (the equivalent dose to the patch I was on), symptom relief was not good. It was like before I went on to the evorel patches.

I was then given estradot patches to try. They stick well, and don’t irritate, but symptom relief is poor - they aren’t doing what the evorel did. I am just over two and a half weeks on them, and I know the say give it 3 months, but the evorel had an almost instant effect. These - not so much.

I had another review - as the overwhelm and anxiety is crippling me. I came out brow beaten. All I had wanted was to go back on evorel - but I was told that the slight irritation was likely to worsen over time, and was likely a sign that I wasn’t absorbing that oestrogen well. My experience of symptom relief for those three months was dismissed out of hand - I was told I felt good probably because I was ovulating. But it was three months in a row - that can’t be a fluke, and unconnected to the patches, surely.

I asked whether it was normal for patch A to work for one woman and patch B not work as well, with some women experiencing it the other way round (B working and A not), and was almost laughed at. But from reading here, it seems that that is common.

Instead, I was prescribed the new generation COCP (qlaira) - with body identical oestrogen, and was told that for perimenopausal women this can often be a better option than HRT, as whilst we’re still producing our own oestrogen (albeit erratically), HRT can sometimes top this up to too much and sometimes still not provide enough. The idea of this pill I think is that effectively it takes over from your body and thereby provides a regular level and cycle of hormones.

I was also told that HRT wouldn’t sort out my mental health issues. I dispute this: to the extent that these are being exacerbated by the hormonal rollercoaster of perimenopause, then nothing other than resolving those fluctuations will help the mental health side. It’s like trying to fill a bath tub with the plug out.

Whilst I’m waiting for that prescription to be available, I wanted to ask for help from you all.

(1) do you find that some patches work well for some women and not others?
(2) have you found that even though a patch doesn’t stick well, the symptom relief is good?
(3) has anyone tried Qlaira, and is it effective?
(4) what do I do? Push to go back on evorel? Stick with Estradot for a couple of months and pray it starts doing something? Or try Qlaira?

I’m just at the end of my tether, utterly confused, and wondering why I can’t just go back on to the patches that I found made life liveable again. I really can’t keep on like this and just want to get things back on track.
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CLKD

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Re: Utter confusion- please help!
« Reply #1 on: October 15, 2024, 08:51:25 AM »

Morning.  Join the Confused Club!   Ask for a referral to a dedicated menopause clinic - not a gynaecologist - there are waiting lists.

HRT can certainly ease mental health issues.  Some of which I think are caused by the lack of medics in the NHS with menopause knowledge!

Browse round. Make notes.  Some find that patches don't stick = lack of absorption or by using a tape over the top it works.  Irritation is a different problem. 

It would seem that your medic has little knowledge about varying the method of replacement delivered.  Hopefully some1 will be along who is familiar with HRT.
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CrispyChick

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Re: Utter confusion- please help!
« Reply #2 on: October 15, 2024, 09:12:56 AM »

Sorry, I don't have any experience in the stuff that you are doing.

Personally, I've been through 7 years of hell and still going. If you found something to work -go back to it. Some woman stick something over the patches I think, to help them stick. I'm sure someone will be along to explain.

Do whatever it takes to get those patches. Private GP if necessary to get back on them?! 

It's awful the fights we have to go through.  >:(
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bombsh3ll

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Re: Utter confusion- please help!
« Reply #3 on: October 15, 2024, 10:48:31 AM »

Patches didn't stick well to me either.

I have only ever used them as an IVF patient, and yes they did work.

My clinic offered me two choices when I said they didn't stick - switch to tablets or buy a roll of softpore or hypafix dressing and stick that over the top. The consultant said it was a common issue because the patches are designed for much older women who aren't very active and don't wash very often!

Having already shelled out for 3 months worth of patches I decided to try the surgical adhesive first rather than buy additional medication and this did the trick for me however it was a faff and not something I would entertain long term.

I take combined pill Zoely now, which in my opinion is better than Qlaira as it is monophasic, which is superior for menstrual suppression (I take it continuously and don't bleed at all) and hormonal stability rather than a triphasic preparation with chaotic dosing.

Personally I will only ever use oral hormone therapy as I don't want the mess, hassle or unreliability of patches or gels, for a statistically minuscule theoretical difference in thrombotic risk.

If you are open to oral therapy but not keen on a contraceptive pill there are also multiple options involving oral estradiol.

My choice amongst these would probably be Femoston.

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Fizwhizz

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Re: Utter confusion- please help!
« Reply #4 on: October 15, 2024, 11:00:24 AM »

I’ve been put on Estradot . So far I’m not a fab. I’ve had other stuff previously and am trying again with HRT. My worst symptoms are low mood, flatness, etc. Estradot don’t stay put on me. I’ve moved site from lower abdomen to buttock and I’m not absorbing them very well either currently according to recent blood test. I’m post menopause.
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CLKD

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Re: Utter confusion- please help!
« Reply #5 on: October 15, 2024, 02:16:34 PM »

How long have U been on estradot Fizwhizz, it can take 3-4 months B4 the body begins to feel benefit.  How were your moods when you had regular periods, I would sob the night B4 a bleed began, even if a period wasn't due.  I knew that was 'normal for me'.  U could try some hypafix or software to place over the patches.
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Pixie

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Re: Utter confusion- please help!
« Reply #6 on: October 15, 2024, 02:59:55 PM »

I use these after having a bad run of unsticky everol patches. They don't budge with these on and I found an NHS advice leaflet recommending these types. Now I absorb it all.

100Pcs Transparent Watertight Bandage,8 x 8cm Disposable Stretch Adhesive Bandage,Breathable Comfortable Shower Protector Film Dressing,Can be Cut https://amzn.eu/d/gDYzTY2

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