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Author Topic: Louise Newson  (Read 46677 times)

joziel

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Re: Louise Newson
« Reply #180 on: October 06, 2024, 07:39:09 PM »

The thing is that there are many of us who do need higher dosages and for sure, women should be allowed to try those if they are suffering life-altering symptoms and have tried lower dosages first - especially if their bloods are not especially high. And if we need to encourage each other on social media to do that, we will.... If there was adequate decent healthcare we wouldn't need to impart this kind of information to each other on social media.

By the way, I'm in many US HRT groups on FB as well, because I like to know what's going on elsewhere in the world - and I can confirm that the top online menopause providers in the US - like Defy and Elevate - aim to get women into the range of 100-150ng which is 450-650pmol. This is exactly what my Newson doctor aimed to do, too. So Newson isn't doing something unheard of by other top providers world-wide.

I do think there was an issue a few years ago, where they were not using enough progesterone when women couldn't tolerate it. They had quite a relaxed attitude towards progesterone. I think that had changed in recent years - but some of the women interviewed may have been affected before this change, on the old regime.

My other experience with them has been that they have a shedload of doctors and there is a lot of variability in terms of how good they are, how much they listen to patients, how much you feel seen as an individual and that kind of thing. That's to be expected and you can easily switch between doctors there if you want to. I have a couple of times.
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margherita

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Re: Louise Newson
« Reply #181 on: October 06, 2024, 09:45:02 PM »

Yes, as someone here pointed out, Newson is basically practising the protocol established by Studd  - for some women particularly with hormonal depression Studd advocated up to 800pmol E2.
And re a relaxed attitude towards progesterone, in Nick Panay's White Paper mentioned in this thread he still advocates 7-10 days of 100mg progesterone for prog intolerant women and I doubt he would do that recklessly (with the caveat of regular uterus monitoring), all of which simply confirms that one can work within quite wide prescribing margins according to individual needs and biology.
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joziel

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Re: Louise Newson
« Reply #182 on: October 06, 2024, 10:14:28 PM »

Yup!
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Gilla999

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Re: Louise Newson
« Reply #183 on: October 07, 2024, 07:06:44 AM »

I'm going to possibly disagree with you slightly Joziel - I don't think we should be encouraging each other on social media to do things like increase their dose of HRT without it being approved by / the awareness of their doctor (but perhaps this isn't what you meant). In general I've noticed an increasing amount on this forum in the 5 years that I've been a part of it of well intentioned people thinking that what worked for them will work for someone else and advising them based on that. We all want to help each other, so it 100% comes from a good place - but there is SO much variability between women and what their hormones are doing depending on their stage of meno and personal hormonal picture, and it has bothered sometimes seeing people here or on Facebook groups be told "facts" without linking to studies to back it up, or being advised to do things based on what has worked for them, when (in my eyes) it could actually be making the situation worse. And I'm not only referring to increasing doses of HRT, I've also seen people being advised to use transdermal P cream as their HRT P, so it's in all sorts of areas. I think explaining what has worked for you and suggesting things to talk about with their doctor is great, but we have to be so careful. I've no doubt been guilty of doing this myself in the past too, so not a dig at anyone in particular - just an observation  :)
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Minusminnie

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Re: Louise Newson
« Reply #184 on: October 07, 2024, 07:17:08 AM »

(with the caveat of regular uterus monitoring), all of which simply confirms that one can work within quite wide prescribing margins according to individual needs and biology.

I looked at Nick Panays website last night many of his Associates in their profiles mention a link in some way to the BMS.

Maybe Kirsty Wark could have emphasised more about why Louise Newson has lost her accreditation rather than on the use of higher doses of oestrogen which came across more in the programme.
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CLKD

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Re: Louise Newson
« Reply #185 on: October 07, 2024, 07:59:29 AM »

Gilla - over the years Hurdity has posted many links on various aspects of HRT etc.. 

This thread is basically about the Panorama programme being 'one sided'.  There is an article by Louise in one of the Sunday papers, yet to be read as I slept most of yesterday  :'(
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Dr. Heather Currie

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Re: Louise Newson
« Reply #186 on: October 07, 2024, 08:33:34 AM »

I am saddened to see so much misinformation and judgement in these posts. I feel that it is important to clarify a few points that particularly concern me, and apologies for the length of this post!

Background
First of all, this forum was set up many years ago to provide a safe platform for sharing of experiences, to reduce isolation, to provide accurate information, along with other resources on the website so that menopause matters' users felt able to make informed decisions about their menopause.
Menopause Matters Ltd was founded in 2001, the website was launched in 2002, and Menopause Matters magazine in 2005. This was a time when the fallout from publication of the Women's Health Initiative trial and the Million Women study was having a huge impact on interest and investment in menopause, with many women and healthcare professionals having concerns about risks of HRT. Many were denied the benefits of treatment either due to choice or advice. Myself and many others spent much time providing information in many ways for both women and healthcare professionals to show risks in perspective, while reinforcing understanding of benefits of HRT, along with other treatment options. Gradually, interest returned, with a turning point in 2015, with publication of the first NICE guideline on diagnosis and management of the menopause. Kirsty Wark presented a key BBC Scotland programme, "The Menopause and Me" in 2017, which was the beginning of raising awareness of the menopause widely. Subsequent celebrity attention, more television programmes and intense increase in social media discussions, including the work of Newson Health, has been fantastic for continuing to raise the importance of menopause.
However, it is important that accurate information is provided, that people are not encouraged to try something because it worked for someone else, that guidelines, which go through rigorous processes with examination of all available scientific evidence before publication, are recognised and used.

So what about the British Menopause Society (BMS)?
The BMS was establishes in 1989 and has been pivotal in providing education for healthcare professionals with the aim that if advice is needed from a healthcare professional, consistent advice will be given. During the years of lack of interest in menopause, the BMS continued to develop guidelines, run conferences and education programmes. In recent years, with welcomed renewed interest and awareness, along with awareness of inconsistencies in advice being provided, the education provision has been accelerated at pace to try to reach demand. I am founder and MD of Menopause Matters as well as Trustee and past Chair of the BMS. Menopause Matters regularly quotes and refers to guidelines, publications, and news items from the BMS, but we work completely separately. Women's Health Concern is the patient arm of the British Menopause Society and provides excellent fact sheets on many aspects of the menopause, but there area also brilliant resources on the BMS website free for all, not just healthcare professionals. The BMS charity employs a very small dedicated team and all the trustees and members of the Medical Advisory Council provide clinical advice in their own time. All are committed to working hard to continue to improve menopause education and care in the UK and further afield and many have been involved in key research to further improve knowledge.

I hope that this has provided some clarity, not around the background of the Panorama programme, which is complex, but around Menopause Matters and the BMS. Regarding my input to the forum, while I cannot respond to questions raised on the forum, and it is not intended to be a source of medical advice, we do have moderators who alert me to key issues as required.
I can only ask that you use the forum for its intended purpose, for which it has helped thousands of women over the last 20+ years, and trust the recommended resources.
 
So where to go?
The British Menopause Society: The specialist authority for menopause and post reproductive health in the UK, affiliated to the Royal College of Obstetricians and Gynaecologists. (thebms.org.uk)
Women's Health Concern: The patient arm of The British Menopause Society. It offers confidential Advice, Reassurance and Education (womens-health-concern.org)
Women’s Health platform on NHS Inform: The Women's Health Platform sets out information on women's health at key stages of life, from puberty to later years, with a focus on menopause. Menopause and Post Menopause Health.
The International Menopause Society: The International Menopause Society (IMS) brings together the leading specialists to study and share knowledge about all aspects of aging in women, with a specific focus each year on World Menopause Day (imsociety.org)
Menopause Matters:  Website, magazine and podcasts providing up-to-date, accurate information about the menopause, menopausal symptoms and treatment options. Here women will find information on what happens leading up to, during and after the menopause, what the consequences can be, what they can do to help and what treatments are available. (menopausematters.co.uk)
Other resources: Women can find many recommended resources outside of Menopause Matters here. 

Healthcare professionals:  If you do need advice and support from a healthcare professional, be reassured that the British Menopause Society is the go-to place with excellent free resources online for healthcare professionals and public, as well as masterclasses, conferences, and the recently launched online BMS Management of the Menopause Certificate for healthcare professionals. More education is always needed but amazing progress is being made.

Best wishes to you all and thank-you for using Menopause Matters.



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Gilla999

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Re: Louise Newson
« Reply #187 on: October 07, 2024, 08:38:51 AM »

Yes I know she has CLKD, and always very helpful. Was just an observation on the aspect being discussed on this thread regarding the Daily Mail article quoting people on this forum and the caution I feel is needed about encouraging other people to do things because it worked for them, especially if it's something like increasing HRT.

Excellent post from Dr Currie  :)
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Wrensong

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Re: Louise Newson
« Reply #188 on: October 07, 2024, 09:42:30 AM »

Joziel, thank you for posting this:-

Quote
She has posted on all her social media about it and today all patients at Newson Health got an email about it.

Hello,


As a patient of Newson Health, we wanted to write to you personally following recent media coverage of our clinic. . .

As a (distant) past patient of NH from when the first clinic had just opened, monthly newsletters & other informative NH mailshots still land frequently in my inbox & I welcome being included in this courtesy, but didn't receive the statement you posted.  I'd been waiting for some sort of official NH response to the Panorama broadcast & was surprised not to hear anything.  Do you know whether this was only sent to current patients please?
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CLKD

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Re: Louise Newson
« Reply #189 on: October 07, 2024, 11:28:37 AM »

tnx Heather - mayB post in a new thread [locked] for clarification? 
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Dr. Heather Currie

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Re: Louise Newson
« Reply #190 on: October 07, 2024, 11:56:23 AM »

Thank-you--good idea re new post. Hopefully I have done so!
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K45

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Re: Louise Newson
« Reply #191 on: October 07, 2024, 11:57:13 AM »

Agree CKLD as this info would likely be helpful for all members to be aware of...
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CLKD

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Re: Louise Newson
« Reply #192 on: October 07, 2024, 11:58:02 AM »

It worked Heather ! Tnx.
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Minusminnie

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Re: Louise Newson
« Reply #193 on: October 07, 2024, 12:08:29 PM »

Joziel, thank you for posting this:-

Quote
She has posted on all her social media about it and today all patients at Newson Health got an email about it.

Hello,


As a patient of Newson Health, we wanted to write to you personally following recent media coverage of our clinic. . .

As a (distant) past patient of NH from when the first clinic had just opened, monthly newsletters & other informative NH mailshots still land frequently in my inbox & I welcome being included in this courtesy, but didn't receive the statement you posted.  I'd been waiting for some sort of official NH response to the Panorama broadcast & was surprised not to hear anything.  Do you know whether this was only sent to current patients please?

Catching up on email lunchtime I received an October Newsletter from Newson Health. I have never used them or received emails before but did make an enquiry some time ago on behalf of my daughter.

Clicking on the ‘Our Clinics’ bit there is what seems to be a new statement banner at the top.
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CLKD

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Re: Louise Newson
« Reply #194 on: October 07, 2024, 01:16:31 PM »

 :thankyou:  Minusminnie
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