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[Crochet]

Hi.

I went to see a vulva dermatologist today. Was hoping she would have dynamic ideas about recurrent and continuous thrush over 6 months. The thrush started as a side effect of a heart drug. I now have really sore vulva area from so many prescribed fluconazole. 4 positive thrush swabs.

Was so disappointed. So she examined me and said as I have always said there isn’t anything to see. I have no dermatitis or exma. . No thrush discharge. She did a low vaginal swab and I asked if she would ask for culture for specific strain. I told her how it was affecting all aspects of my life. Worrying about eating sugar or yeast products, should I take probiotics,we don’t have sex, I don’t feel good ever and even though she let me talk she didn’t comment at all.

Then she said I think you have vulvadynia. Unexplained vulva pain. And offered me amitriptyline for nerve pain. I believe if I could stop the thrush then no fluconazole I would get rid of the soreness. I now have to wait for the swab results which is fine. I just got no confidence from here dealing with it before. So just as fed up☹️

[Minusminnie]

Just copied and pasting this for you. 

"Various factors contribute to vulvodynia, making it a complex, multifactorial condition where the exact cause is often elusive. Sometimes, it manifests suddenly without any apparent history of discomfort. However, in many cases, there's a triggering event, such as a severe episode of thrush.8 Feb 2024"

https://www.nhs.uk/conditions/vulvodynia/

[Emzib0b]

Hi Crochet,

I’m so sorry to hear your consultation was disappointing. I think, like you, I would be reluctant to accept a vulvodynia diagnosis until you’d had a negative swab for thrush. Did the consultant discuss/rule out vaginal atrophy? I recall from an earlier post you had tried VA treatment but can’t remember if you’d continued with it.

[Crochet]

Thankyou minusminnie that’s interesting. It seems to be a very wide based cover all diagnosis.

The consultant said there was no atrophy everything was really plump. I told her I had tried estriol cream and it had really burned, I also said I had unopened vagifem that was given for when I didn’t have thrush. She said just keep it we may use it at a later date. I said I had read that ladies quite often got thrush when using it-she said she hadn’t heard that. So at the moment I’m only using olive and bee which I took with me and she had not seen that one before.
After reading about all these things from all you experienced ladies it made me lack confidence in her experience.

Im going to wait for my swab result see  what happens then. I have spent all day thinking of different scenarios if it’s this I will do this or if it’s that I will do this. There’s just no point so will be patiently sore and wait.

Thankyou to all your replies it’s such a lonely problem. X

[kathie22]

Hi Crochet
How are things
I did jump onto this thread a few days ago The dermatologist I saw  also diagnosed Vulvodynia and when she explained it it made perfect sense.. but then again we can make lots of symptoms fit a diagnosis
One thing she did advise was to use centraban after every trip to the loo It puts a barrier between skin and the urine and really helps I also use Vagisil with oatmeal it’s really soothing
I really found theses two things helped
Nothing else was ever diagnosed All the obvious things weren’t found and I was in a terrible place mentally trying to cope with the constant discomfort
Hope you get some relief soon