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[Aeniad]

Why neurology?  Your tests have been within normal limits.

I’m convinced the persistent twitching and cramping is MS or MND or some other awful disease. My anxiety is through the roof.

[Jules]

Why neurology?  Your tests have been within normal limits.

I’m convinced the persistent twitching and cramping is MS or MND or some other awful disease. My anxiety is through the roof.

I did post a reply earlier but deleted it as there appeared a lot of questions and advice being given but, I wrote that one of my sons had constant leg muscle twitching, I could see it, he was worried sick thinking he had MS as he has a second cousin with it, he was referred to neurology especially as he has a herniated disc, he had a long wait but when he did see the consultant, he was told it was benign muscle tics like the ones you can get in your face. Im sure one or more of the doctors you've seen would have found anything serious by now, they would have acted.  Please reassure yourself that you have done the right things, you have had yourself checked and none of those doctors were concerned and then try to tell yourself that you are healthy. You are young and should be enjoying life,

[Aeniad]

Thank you. I keep thinking the doctors I’ve seen are GPs not neurologists. They’re saying I don’t have muscle weakness therefore I’m fine. But then I read stories online of people who have the big bad and they started with twitching and cramp. It’s just so worrying.

[CLKD]

Morning.  Anxiety is the pits.  It can floor me in moments 

There is also no logic to anxiety!  The brain goes into over load.

General practitioners have access to many specialities to refer problems to as well as being able to order blood tests and other examiantions/tests.  U have had many of these but you are still concerned = anxiety levels to continue to rise.  This isn't unusual for many people.

R U able to describe the burning sensation? 

[Aeniad]

The burning is in my muscles. Like when you work out and your muscles burn. Except it’s been constant for 9 months. When it was really bad I couldn’t straighten my legs.

[CLKD]

Does it keep U awake?   Could it be lactic acid build up, mayB have a chat with a physio for advice?  Or go along to your local leisure centre to see whether there is some1 there to chat with?

Does pain relief help?

[Jules]

The burning is in my muscles. Like when you work out and your muscles burn. Except it’s been constant for 9 months. When it was really bad I couldn’t straighten my legs.

I've asked my son. He still has his twitching so he's had it at least 3 years.  Though forums like these are helpful , you'll just get lay people throwing up more possibilities of cause that you'd not thought about, and questions which will only add to your anxiety. If it were me, I would make another GP appointment and take someone with me and don't be fobbed off till you are satisfied or if you can afford, a private neurology appointment.  You need an assertive person to accompany you. Best of luck.

[Aeniad]

I’m frustrated because I’ve seen multiple doctors and all I’m getting is a shrug and “there’s nothing wrong you’re in perfect health”.

But I’m not. I’m stiff and burning and twitching. I can’t do my housework or exercise or play football with my kids. And I’m terrified.

[CLKD]

Frustrating for you becasue if there isn't any improvement the brain may well focus on the 'what ifs'. 

[Aeniad]

They keep saying it’s “functional neurological disorder caused by anxiety”. Which basically means “it’s all in your mind”.

I know it can be symptoms of perimenopause, and I have other peri symptoms like flooding periods and dry eyes. But they just keep saying I’m too young.

[Jules]

They keep saying it’s “functional neurological disorder caused by anxiety”. Which basically means “it’s all in your mind”.

I know it can be symptoms of perimenopause, and I have other peri symptoms like flooding periods and dry eyes. But they just keep saying I’m too young.

No it doesn't mean that. A neurological disorder is just that, and anxiety can cause neurological disturbance. But they should have directed you to help with anxiety. You really need to address that.

[CLKD]

Change your GP Surgery.

Have a lookC at the Daisy web-site.

make an appt with the Practice Manager to discuss and advise her about this Forum.

[Taz2]

They keep saying it’s “functional neurological disorder caused by anxiety”. Which basically means “it’s all in your mind”.

I know it can be symptoms of perimenopause, and I have other peri symptoms like flooding periods and dry eyes. But they just keep saying I’m too young.

Functional Neurological Disorder is a diagnosis made when all other possibilities have been excluded. It doesn't mean it's all in your mind. Have you investigated this further? There is also a condition called Benign Fasciculation Syndrome. This is also linked to anxiety. It sounds as if you may have both of these syndromes and they do often occur together. It is not an imaginary illness but the physical symptoms are caused by underlying anxiety. Sometimes sufferers feel as if they have MS or MND.

Taz x 

[Aeniad]

The doctor just said FND because we can’t find anything else wrong, gave me a leaflet about it and told me to go away and relax.

[Jules]

They keep saying it’s “functional neurological disorder caused by anxiety”. Which basically means “it’s all in your mind”.

I know it can be symptoms of perimenopause, and I have other peri symptoms like flooding periods and dry eyes. But they just keep saying I’m too young.

Functional Neurological Disorder is a diagnosis made when all other possibilities have been excluded. It doesn't mean it's all in your mind. Have you investigated this further? There is also a condition called Benign Fasciculation Syndrome. This is also linked to anxiety. It sounds as if you may have both of these syndromes and they do often occur together. It is not an imaginary illness but the physical symptoms are caused by underlying anxiety. Sometimes sufferers feel as if they have MS or MND.

Taz x 

That's the diagnosis my son got, either that or peripheral hyperactivity syndrome from the neurologist. He should have had a test but covid struck and by the time they started up again he decided he'd not gone worse, nothing bad had happened so he accepted it was one or the other and has learned to ignore it. He suffers from anxiety.
Aeniad, you have choices, you either accept the doctors diagnosis and try to address the anxiety and review your symptoms or you pay for a private consultation. Otherwise you'll go round in circles increasing your anxiety and panic and make yourself more ill.  You are doing what people with anxiety do; they ask different people because they dont believe what they've been told, youre hoping to get a different answer that makes sense.
If you really are suspicious of your diagnosis,  see a neurologist. It costs around £250 depending on individual consultants however tests and review appointments are extra.