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[Floral]

Hi ladies,  great to have a page for thyroid.
I have been on a journey ongoing and it’s so slow.  My story is that TSH was always within range but my T4 was below range at 11 and low T3 (3.9).  Could be central hypo.  I was put on 50mcg of T4 and I began to feel a bit better but my next T3 was 3.7 and my T4 16. 

I was tried on Very low dose of T3 but my headaches and anxiety were unbearable.  I am now increasing T4 slowly - extra 12.5 so currently in 62.5.

Iv just had covid and my moods are so low again, I sometimes feel I cant go on☹️  Please can someone give me some hope that this will get better.


Iv heard of NDT, has anyone had a better experience on this than straight T3 Thybon added to T4.

Floral x

[Floral]

SORRY I MEANT TO POST THIS ON THE THYROID PAGE!!!

[Floral]

Really don’t know if I have posted on right page, my brain fog is bad today🙄

[CLKD]

U carry on.  Brain fog is common during peri!

Be kind to yourself!    SARS virus/Covid flu-like symptoms attack the immune system so we need to give the body time to recover.  Feet up.  !!

[Floral]

Thanks for your kind words CLKD

[AKatieD]

Suggest you join the Thyroid Uk group on HealthUnlocked as a good specialist source of help.

You need to supply lab ranges with blood test results to evaluate properly where you are within them. It sounds like you are just on too low a dose of T4 still  (50 is a starter dose and at least 75 more usual)

People often start feeling well with a little treatment but get worse as their body adjusts by cutting down its own production and conversion of T4 to T3 (T3 is the active hormone).  It is a response to an initial dose that is too low. 

If you can stick with it, increasing your dose til free t4 is towards upper quarter of range you should start to feel better. You can also check free T3 to see if that is in a similar place in the range. If not T3 or NDT may help. I know you have tried a small amount ( not sure how much) but probably too soon in the process.

Once you are being treated, TSH is irrelevant (although that is not what g.ps are trained, patient experience and common sense says otherwise) and you need to look at the free hormone levels in your blood.

Best of luck, stick with it and you should get to a good place, although it may take some time, a deal of determination with the medical profession and some self help!

[Floral]

Thanks Katie, that’s gives me some hope and encouragement!  Yes I have joined that group they’re great!  Same as you’re saying it takes time so I’m going to try my best to keep the faith and know slow is the way forward.  Having had covid on top has certainly slowed me up again but today I was able to do a few little bits so that’s a big bonus and of course rest afterwards!
You’re post means a lot x

[HellsBells]

I take Armour Thyroid - it is prescribed by my GP as I had the same problems as you. It is from the states, but NDT (natural dessicated thyroid) is available from other manufacturers. It is used in Canada and the USA. It contains all the Ts including T3 and works better than synthetic T3 which I have also tried.

I get it on the NHS.

[Floral]

Hellsbells that’s good to know.  Did you find the T3 hard to take and in what way please? Tk u

[HellsBells]

The desicated thyroid products contain it all - compared to the synthetic T3 it had no effect other than made me feel better.

[Floral]

Thank you HB that’s kind of you to reply.  Did you find the synthetic T3 raised anxiety?  It did when I took even a small amount!!

I’m on 50 T4 and trying to increase that and that also is a disaster.  I’m at end of my tether🥲 suffering this is hell.

The problem I had is that GP and Endo only tested TSH and mine was within range but my T4 was fluctuating to below range then 16 and my T3 was 3.9 now 3.7.

Thank you 💐