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[Nas]

Fingers crossed for you Crispy, your journey has been relentless and unforgiving.

Once things plateau out, you will get relief. Until then, as you say, treat each  day, as an acceptance day, monitoring symptoms at the same time x

[buffy26]

buffy, I’ve become so resilient to physical pain and suffering, recently, that I’ve learnt to accept this is what I must go through to stay alive.

Chocolate by the bucket full 🍫🍫🍫🍫🍫🍫

Crispy, how are you doing?

 Nas, my heart goes out to you, I hope that you have the very best care and love around you to support you

[Emma]

It sounds like you've been through a lot in your journey through perimenopause, and it's completely understandable to feel exhausted and frustrated by the lack of effective solutions. Acceptance can be a challenging process, but it's also incredibly empowering once you reach that point. Here are some thoughts, some of which you've covered already, on how you might approach this:

• Focus on self-care: Prioritise activities and practices that bring you comfort and peace. This could include things like meditation, gentle exercise, spending time in nature, or engaging in hobbies that you enjoy. Taking care of your physical and emotional well-being can help you navigate this period with greater resilience.
• Seek support: Don't hesitate to lean on friends, family, or support groups who can provide understanding and empathy. Sharing your experiences with others who are going through similar challenges can be incredibly validating and reassuring.
• Explore alternative therapies: While traditional hormone replacement therapies may not have worked for you, there could be alternative approaches or complementary therapies that offer some relief. This might include acupuncture, herbal remedies, or dietary changes. Keep an open mind and consult with healthcare professionals who specialise in integrative or holistic medicine.
• Practice mindfulness: Learning to be present in the moment and accept things as they are can be a powerful tool for coping with difficult emotions. Mindfulness practices, such as deep breathing exercises or mindfulness meditation, can help you cultivate a sense of inner peace and acceptance.
• Set realistic expectations: Recognise that acceptance doesn't mean giving up hope entirely. It means acknowledging the reality of your situation while remaining open to the possibility of small improvements over time. Set realistic expectations for yourself and celebrate even the smallest victories along the way.
• Consider therapy: If you're struggling to come to terms with your situation, speaking with a therapist or counsellor can provide valuable support and guidance. Therapy can help you process your emotions, develop coping strategies, and cultivate a sense of acceptance and resilience.

Acceptance is a process, and it's okay to have good days and bad days along the way. Be patient and compassionate with yourself as you navigate this journey. You've already shown incredible strength and resilience, and you have the capacity to continue moving forward with courage and grace.

[CLKD]

   when I feel better I forget to take care of myself 

[CrispyChick]

Thank you all. There are some good pointers in there.

Right now I'm at my worst, and I suspect it's because I've just dropped all my trials.

I can't even eat. I feel that Ill with my hormones. Crazy what affect they have.

I am going to see a herbalist tomorrow. I know I started out there 6 years ago, but now I have a lot more knowledge and understanding of what's going on. So fingers crossed.

Thanks all for your encouragement. It really does help Xx

[CLKD]

How long since you used HRT or similar? 

What makes you unable to eat?   I suffered with nausea prior to each period   .......    so it's instant for me 



Let us know how you get on.  Do remember that herbalist preparations are not always tested thoroughly.  When I went that route in the 1980s I was going along quite well with the suggestions until he told me not to use anything minty with the 'tea' that he had prepared  but couldn't back this up. 

Remind me which symptom you would like to ease?  [meno brain here  ]

[CrispyChick]

I would most likely to ease the feeling of poision that is running through me.

My head is spinny and vile, my back aches with it. I almost feel it running through my veins. Motion sickness from the spinny head. When like this, E always tests high for me. It makes me feel so ill I completely lose my appetite.

Hrt only tried once 2 years ago. The estrogen part made me feel my poision. That was the lightbulb moment.

I have however tried progesterone only therapy over the last two years, via bhrt clinic. But just can't sole these E spikes. And now got terrible stomach issues that are preventing me using the progesterone.

All a very sorryy state of affairs.

[CLKD]

  

Head spinning is awful.  I have a nerve in the back of my neck which sometimes when I move suddenly, it's enough to make me go 'OH!' causing light headedness.  I've had vertigo which is awful, I know when I open my eyes in the morning that it's there.

Adrenaline gives me the 'running through the veins' sensations, like hot water.  Scared the life from me initially, now I do recognise it ........ I have to sit until it calms.

Let us know how you get on.

[Hollyboll]

Hollyboll - I think you're right. I have extra reactions to these fluctuations. That many do not seem to experience.

I test my estrogen regularly and I know it is the culprit.

Given how I'll I feel this morning, I'm not sure acceptable is an option either. 🙈🙈🙈🙈

Lots of great tips on this thread - I hope they, acceptance and the herbalist help between them.

It was a great consultant who said that to me about fluctuations - unfortunately there's so much chat around about 'in peri everyone has fluctuations' that people forget not only that some people have larger than others but as he pointed out that even the same fluctuations have different effects on different people ... makes total sense as hormones are like any other drug and nobody would suggest everyone reacts the same to starting, increasing, decreasing or stopping any other drug.

If you want to be at 0 estrogen, I don't think the chemical meno is a starter - although I've not researched it fully as I'm not there yet, my understanding is that it's only short-term before any responsible doctor 'adds back' estrogen, so it's more for dealing with fluctuations. 

Finally, fwiw, same great consultant has been clear with me that what worked (or didn't) or what my levels did even 18 months ago is no indication of what's going on and what might work now - things change a lot in our bodies over this horrible adventure!

xx

[CLKD]

Hormones aren't a drug though 

[Hollyboll]

Hormones aren't a drug though 

Depends on your definition ... how would you class insulin? xx

[CrispyChick]

Thanks hollyboll, that's really useful.

So from what you're saying, you take her, but the high doses were fairing problems along with your own spikes?

It's all very true, unfortunately I'm finding out the hard way that what worked before no longer works. I retried cerazette, mini pill and it can no longer bring my E levels down. Yet the mini pill is renowned for keeping E at early follicular levels. Not me. Not this time. It worked previously, but gave me awful pms.

I honestly feel right back at the start. As bad as I did when all this started 6 1/2 years ago. So demoralising.

I'm trying to accept it, but the last few days have been absolute hell. I have changed a lot though, so I'm hoping time helps.

Is your specialist someone worth me seeing??? 

[CLKD]

Totally different, for those who require it in order to live.  Natural Hormones are not a drug.

[AngelaH]

Not so long ago I accepted that nothing can help me to get out of my post meno hell caused by low estrogen and progesterone symptoms. My hot flashes and night sweats stopped themselves very unexpectedly, I just woke up one morning and realised that I slept deeply all night and didn’t have any single hot flash. I thought my meno hell was over, my last blood test came with very low estrogen and progesterone, probably my body somehow managed to balance them and hot flashes with night sweats stopped. But strangely I started wake up in the morning feeling very tired and with severe nausea, which lasted all day. After a couple of weeks permanent torture to my body with severe fatigue and non stop nausea I had to except that my body would not be able to function anymore and because no NHS treatment is available for me due to my “estrogen poisoning symptoms”, it means I am disabled person now. I had to make a very hard decision to give up my job, stay at home and meditate in the garden if the weather is good, if not just stay on the sofa for whole day like a plant in the pot. I felt very ill and my mood went down, I was scared of that. My GP gave my 6 weeks off work sick notice and I started my resignation.

At work I was offered further adjustment if I wanted to stay at work, but I couldn’t function like a human, I was “a plant in the pot”. So I refused.

Eventually I found how to keep my symptoms away, I am back to my normal life now, I stopped my resignation at work and was back to work much earlier than 6 weeks.

Sometimes we need to except things as they are, but we need to remember that in the future everything can be changed.

CrispyChick don’t lose your hope. Your very unique and individual treatment is somewhere near you, you just need to find it. 

[CrispyChick]

Thank you Angela.

Dare I ask what your solution was for the 'poison'?

Or is that when u got the mirena???