Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Talli]

Talli - I wasn't worried when I was told that the NHS doesn't do anything about it  and I got the impression that 1 would have to be very ill B4 they considered treatment.  Until this thread I had forgotten 

I already eat little and often though tonight I've gone wrong somewhere with dreadful wind - we haven't yet worked out why this happens periodically.  No rhyme nor reason 

Let us know what the GP suggests.

Thank you CLKD!
That makes me feel so much better!
 
Xx

I will def let you all know what GP says

[CLKD]

Chronic illness usually means that it's long-term rather than an emergency problem.  Put chronic and disease together and the brain might go into free fall 

[Talli]

So…the GP said the problem was mild (stage 3? anyway…) and that there was a ‘new’ initiative from NHS England to offer everyone with high cholesterol and kidney disease statins which is apparently what the phone call was about.
Considering my mum was offered statins a year ago I’m not sure how new this initiative is but anyway.
My Mum has been following a low cholesterol diet for the last year so the GP said they’ll take a blood and urine test in June and see where they go from there.

My Mum said GP was very nice and that she (my Mum) plans to carry on with her diet and then try different statins (the first lot gave her horrific side effects so GP said to come off) after her blood test in June and then she could focus on a more kidney related diet rather than cholesterol because a lot of the foods that are good for cholesterol are bad for kidneys and vice versa.

So…that’s where we’re up to.

Thanks so much for the support and for listening guys! 🌸

[Talli]

Chronic illness usually means that it's long-term rather than an emergency problem.  Put chronic and disease together and the brain might go into free fall 

Yes I’m afraid that’s why my brain did 

Even though I’m aware of the fact that chronic means long term rather than shockingly worrying as I have A LOT of health issues myself other than the grand old menopause so I should have been more sensible.
Dear dear…oh well I’m chalking it up to experience and moving on ha ha

[CLKD]

DH and I have never had problems with statins.  Some have aches and pains in the joints.  DH tried to take his cholesterol down by diet but after 4 months we went onto the medication on advice of the GP. 

Let us know how your Mum gets on.  There's no need to be sensible on here  ....... we're always diagnosing ourselves with something or other .  We have a thread ......... 

[Suza]

Sorry I've just read your message.
I was diagnosed 2 years ago age 63 with stage 3 ckd.
I go for 6 monthly blood tests with the GP.
Doctors won't refer you to a specialist until you go onto stage 4
I started to follow a low salt diet, less than 3g daily and was ok until this month, when a urine test picked up that my kidneys are leaking protein, so I have to start on medication to stop it getting worse.
Tell your Mum to keep hydrated, drink plenty fluids, cut back on ibuprofen as they're kidney killers, and cut back on her salt intake.
I use the nutracheck app to log all my food
As long as her egfr stays in stage 3 and she doesn't develop complications she should be ok, but push for 6 monthly blood tests if you want reassurance
Hope this helps
Susan

[CLKD]

Don't cut back too much on the salt - if U find that cramp sets in, then the body isn't getting enough!

[Talli]

DH and I have never had problems with statins.  Some have aches and pains in the joints.  DH tried to take his cholesterol down by diet but after 4 months we went onto the medication on advice of the GP. 

Let us know how your Mum gets on.  There's no need to be sensible on here  ....... we're always diagnosing ourselves with something or other .  We have a thread ......... 

Hopefully they can give her a different brand if she does need them that don’t make her react like the others did.

Hahaha I’m the queen of self diagnosis and terrible health anxiety! My husband will attest to that! 

[Talli]

Sorry I've just read your message.
I was diagnosed 2 years ago age 63 with stage 3 ckd.
I go for 6 monthly blood tests with the GP.
Doctors won't refer you to a specialist until you go onto stage 4
I started to follow a low salt diet, less than 3g daily and was ok until this month, when a urine test picked up that my kidneys are leaking protein, so I have to start on medication to stop it getting worse.
Tell your Mum to keep hydrated, drink plenty fluids, cut back on ibuprofen as they're kidney killers, and cut back on her salt intake.
I use the nutracheck app to log all my food
As long as her egfr stays in stage 3 and she doesn't develop complications she should be ok, but push for 6 monthly blood tests if you want reassurance
Hope this helps
Susan

Good to know all that! Thank you so much! I will try and keep everyone posted  but my memory is pretty terrible these days! 

[CLKD]

I make notes then 4get where I've put them