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Author Topic: Desperate for help with VA  (Read 12672 times)

sorbet

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Re: Desperate for help with VA
« Reply #75 on: September 08, 2023, 07:18:14 PM »

As well as all this the GP said I had an open sore on my bum ! She put me in the urgent 2 week check category. I thought I can’t take much more, anyway after all the anxiety, it was a pile .
Life really is a rollercoaster.
I can’t bear to think of my poor mum going through all this, she had weekly UTI’s which was probably VA .
xx
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CLKD

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Re: Desperate for help with VA
« Reply #76 on: September 08, 2023, 08:22:40 PM »

Wales doesn't currently have a particularly good health system particularly with HRT   ;). However.  It's a great country!

Sorbet - start your own thread as there's a lot there to comment on.
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sorbet

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Re: Desperate for help with VA
« Reply #77 on: September 09, 2023, 12:06:57 AM »

Thank you for replying CLKD , I would have checked the burning club and increased the Vagifem as you’ve so rightly advised me many times.
I’ll start a new thread in the morning, I fell asleep watching tv . I’m not in Wales although I wouldn’t mind , I thought their health services were better than here . I think it’s the fact they found bacteria in the private tests that’s thrown me . 😊 x
Anyway night night and once again thank you.
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Kirsti

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Re: Desperate for help with VA
« Reply #78 on: September 09, 2023, 08:26:58 AM »

Hi Sorbet
Sorry to hear you are having such a horrible time too. I hope you can soon get your UTI problems under control.
I hope increasing the Vagifem helps you too.
For some reason everything I do isn't helping so that is why I want a 2nd opinion, I may have to look into a private consultation with a menopause specialist as the NHS waiting is horrendous, over a month just to see a female doctor, there is only one at my surgery and all the doctors are leaving! I'm fed up with having to keep putting my hand in my pocket for all this too, we should have better treatment on the NHS,  something we all have to keep petitioning and fighting for I guess!
Anyway i dream of feeling some sort of improvement by Christmas, I can only hope.
I have had Covid a couple of times and I seem to have more symptoms because of it. I had it in July and now seem to get dry eyes!
Latest thing on top of everything else is that my breasts are sorer than ever and I am getting nausea every morning. It's never ending😓
So sorry to hear about your mum too. It is heartbreaking isn't it. My mum was in a nursing home for 3 years in bed with a catheter, it must have been so awful and uncomfortable for her which is extremely upsetting.
Sending you hugs, good luck with your thread and I hope you find some good advice and feel much better soon. Hugs xxx
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sorbet

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Re: Desperate for help with VA
« Reply #79 on: September 09, 2023, 10:07:47 AM »

Hello Kirsti , so sorry you lost your Mum . My mum was bedridden too , they didn’t repair her broken hip because of the pandemic, shipped her off to a nursing home during the lockdown . It was heartbreaking, she went from being fitter than me to being bedridden with a catheter. It was a downwards slope after that.
I can’t get this sorted, there can be a couple of days of respite then it’s back again , with a vengeance . It’s just going around in circles. I booked an appointment at the Newson clinic but cancelled, I decided I’ll see the dermatologist to check if it’s lichen sclerosis first .
You really don’t know what to do for the best .
 I throw everything at it , Vagifem, antibiotics, Diflucan, Coconut oil , Emuaid.
 The coconut oil is the most soothing. I’ve put Emuaid on and Topida , sometimes I’ve had to jump in the shower and wash it off quickly if it stings too much . I have wondered about prolapses too Kirsty . I had the same burning several years ago when I had an overnight catheter after my gallbladder was removed.
I’ve definitely got a small bladder prolapse, I’ve wondered if doing more walking aggravates it , also the coughing from covid.
My GP is most unhelpful, I want to sort this because it is debilitating and affects your quality of life , but wish there was a magic solution.
We need the oestrogen that’s for sure. Sending you hugs , I would book a private appointment , there are a few menopause specialists now . I look forward to reading you’re feeling more like yourself again. xxx
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Lesred

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Re: Desperate for help with VA
« Reply #80 on: September 09, 2023, 02:14:01 PM »

Hi girls

Well I’m back from Greece! And it’s been quite a rollercoaster, hi Sorbet  :) and obvs Kirsti  ;)! So sorry to hear you’re both stuck in the hormonal nightmare, as am I! I stopped using ovestin as my lady bits just got more and more uncomfortable and what is interesting Sorbet I also started to have a sore bum which I got in a state over even though I’ve had a naughty pile since my first pregnancy which flares up. Results from FIT test came back while on hol and the receptionist rang to say it was positive  :-\ well I had a melt down, it was Fri afternoon so I sent message to doc who v kindly rang to reassure that he wasn’t at all worried, in meantime my digestive system, bowels you name it went into overdrive, now back I’ve had to repeat test and now waiting,… but tummy isn’t right and bladder while not bad lurks in background. I genuinely believe coming off systemic hrt has thrown my body a bit but how long it’ll take to settle, who knows? And I still don’t know what to do about VA but all these awful digestive symptoms I got in peri are back, but they passed! I hope they do this time too.

Yes vm has helped a lot with discomfort, handnt tried before and I’m a fan, haven’t tried coconut oil yet, but now I’m concentrating on the other end at mo the rest settles down! Are we all going mad what tricks is our body playing on us? Is it all stress? You guys have had a great deal of that to deal with you poor things, and I’m generally quite stressy ( never used to be  ::) )

Anyway wanted to send hugs and sympathy and just to say my own knickers are in a right old knot …. X
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CLKD

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Re: Desperate for help with VA
« Reply #81 on: September 09, 2023, 02:20:00 PM »

Sorry: what's FIT?
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Lesred

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Re: Desperate for help with VA
« Reply #82 on: September 09, 2023, 02:33:18 PM »

Hi CLKD

It’s the poo test the NHS screening do x
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sorbet

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Re: Desperate for help with VA
« Reply #83 on: September 09, 2023, 04:40:05 PM »

Hi Lesred ,
Thank you for replying,  I’m sorry you are still experiencing this horrendous condition.
My digestive system has been awful, I always have an awful upset stomach with anxiety.
For the past year it’s been relentless constipation, always needing laxatives, which then cause diarrhoea .
 If I don’t get emptied it aggravates the burning and restricts urine flow. Diarrhoea seems to cause piles to worsen.
I didn’t know I’d got them internally too,  until I saw the colo rectal surgeon who checked with his proctoscope .
I’m absolutely certain they’ve picked up a trace of blood from the pile .
They may suggest a colonoscopy or sigmoidoscopy or be satisfied it’s piles .
 I’m using germoloids suppositories and a natural external cream called Hemosan , plus wiping with pure wet wipes and patting rather than rubbing. I’ve found witch hazel good for this with a cotton wool pad.
 Anusol thins the skin so decided against that.
I know for certain this whole menopause affects our emotions as well as causing these awful bodily changes.
I’d do some mindfulness and meditation to help with the worry , but know all will be well. 
I’m going to keep trying the Vagifem and load up with it . I read too we should be moisturising down there twice a day , same as we would our faces .
Let us know how you are .
I feel stronger and comforted knowing others understand.
Sending you big hugs xx
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Lesred

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Re: Desperate for help with VA
« Reply #84 on: September 09, 2023, 04:48:30 PM »

Sorbet

Thank you so much for your reassuring response it’s helped massively  :) I have bought anusol as helped in past but as Dr hasn’t said to use I’m holding off, it does ring a bell about thinning skin, so I’ll try the germoloid and hemosan instead once Dr has results.

Interesting re moisturising, it makes sense and does make things a lot more comfortable!

Thank you again you’ve been really helpful!!

Will keep you posted and take care

Les x x
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Kirsti

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Re: Desperate for help with VA
« Reply #85 on: September 09, 2023, 07:38:33 PM »

Hi Sorbet

So sorry to hear what your mum went through as well. Very similar to what happened to my mum, she was in a care home (Alzheimers) and fell broke her femur, had a partial hip replacement, then ended up bed bound with a catheter and being fed pureed food. This happened Feb 2020, then Covid hit and as I'm sure you well know we had the nightmare care home visiting scenario for the next 18 months . All very upsetting and stressful and just so awful. I really feel for you having a similar situation. So sad.

Anyway just wanted to say i am thinking of you and know how hard it is. Sending hugs xxx
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Kirsti

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Re: Desperate for help with VA
« Reply #86 on: September 09, 2023, 07:46:01 PM »

Hi Lesred
Oh no so sorry to hear you have been through all that. What a nightmare.
Take care of yourself and I hope things settle for you soon.
Yes meditation is good to try for relaxation. Do you use You Tube?
I have play lists on there for meditation, sound healing, yoga and Qi Gong which I find really helpful. I go to a weekly yoga class and have just started going to a qi gong class too. It all helps to take my mind off the pain as much as possible for a while. These are all really good for anxiety and using essential oils really help too. Hope you find something to help you and your anxiety soon. Kirsti xxx
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sorbet

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Re: Desperate for help with VA
« Reply #87 on: September 14, 2023, 11:40:46 AM »

Sending hugs Les  , i understand how stressful it all is.
I know the GP’s prescribe Anusol , I wasn’t happy using the steroid on already thin skin .
I hope you’re feeling less anxious. It’s a no win when the anxiety goes hand in hand with menopause too . We’re living in a state of almost constant high alert .
Do let us know how you are . xx
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sorbet

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Re: Desperate for help with VA
« Reply #88 on: September 14, 2023, 11:51:18 AM »

Hi Kirsti
I’m so sorry about your Mum, bless her, it’s incredibly painful, it is so sad our precious Mum’s had to go through that awfulness. .
 Part of me feels this dreadful stress and sadness contributes to this horrendous burning . I miss her so very badly.
There isn’t any rhyme or reason why it flares up and becomes debilitating . Why can we have a brilliant day without burning when the following day it’s back again.
Thank you for your kindness.
Thinking of you all xxx
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Lesred

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Re: Desperate for help with VA
« Reply #89 on: September 17, 2023, 01:29:58 PM »

Sending hugs Les  , i understand how stressful it all is.
I know the GP’s prescribe Anusol , I wasn’t happy using the steroid on already thin skin .
I hope you’re feeling less anxious. It’s a no win when the anxiety goes hand in hand with menopause too . We’re living in a state of almost constant high alert .
Do let us know how you are . xx

Hello Sorbet

Thanks for message, yes I think my body is in v high alert!, sent email to check on test result on Fri as had heard nothing since a week last Thursday when put sample in ( so really assumed they’d say all was fine) but to be told no results back yet! I was a bit fed up as I wanted to put that to rest as my anxiety symptoms are awful, my tummy, heartburn etc are really causing discomfort ( had this years ago but not since). I’m really trying to tell myself it’s anxiety not anything scary but with results not back it’s difficult!

Sorbet you are so right about living in a constant state of high alert! That describes it perfectly.

So, bladder still behaving ( very weird as it’s normally the first on high alert) but whole digestive system is absolutely mucked up which I don’t often get but hey it’s always good to throw a curve ball every now and again to keep you on your toes!  Also I’m still wondering if coming off Hrt has unbalanced the old hormones  :-\.

Anyway that’s me at mo.. not great. How are you all? Hope things looking up.

Big hugs

Lesred x. 
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