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Author Topic: Do you ever feel your heart flutters won't stop?  (Read 11320 times)

KaraShannon

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Re: Do you ever feel your heart flutters won't stop?
« Reply #15 on: June 18, 2022, 11:20:07 AM »

I've been posting about my heart palpitations in the other forum above here, 'All things menopause'.

I've had flutters which literally went on all night. I went to A&E the next day, which was just this bank holiday past. My blood pressure was 158/85 (usually perfect at 120/70) - I work out 4x a week and I'm 9 stone 6lbs and 5 ft 10, so v slim! And I'm 44yo. My ECG was normal. They reassured me that I wasn't in imminent danger of anything and advised that the correct pathway would be to go to GP, get a cardiology referral and then probably 48hr holter to monitor heart and maybe echocardiogram.

For me, this has all started since beginning HRT. I did get the typical skipped beat thing before I went on HRT, especially in the evenings and at night. I wasn't worried about that because I knew it was a v common peri symptom.

After beginning HRT in March, I think I was okay at 25 patch for 2 weeks but on the 50 patch I started to feel myself throbbing sometimes. It felt like the mattress in bed was moving under me, or I could feel myself pulsing against a chair I was sitting on. I also was occasionally getting higher than usual blood pressure readings - not as high as when I went to A&E, but like 144. I was getting 'irregular pulse' readings about 50% of the time on the blood pressure monitor. My Kardia ECG device was giving me weird results sometimes, like Sinus rhythm with wide QRS. When I went up to the 75 patch, this happened every single night the first week - and ALL NIGHT. I also couldn't sleep, as it's impossible to sleep whilst your heart is fluttering away like that. I just dozed semi-consciously and was exhausted the next day. I got really anxious about it all at this point and it's when I went to A&E.

I reduced my patch down to 62.5 (don't ask, I didn't want to go back to 50 because my estrogen was only at 233nmol at 50). I've felt much better since going to A&E and haven't had another bad night like that. I am now living in fear of it happening again and this is really tricky because feeling anxious makes it more likely to happen, so I am constantly telling myself to relax and breathe and doing meditation and breathing apps etc etc!!!

I've come to the conclusion that I'm really sensitive to estrogen and if I change dose, I need to do it very gradually and slowly. I was at 50 for 7 weeks before increasing to 75 but I wish I'd waited 12 weeks and until I had zero symptoms like this at 50, before I increased - and then split the increase to 62.5 first. (That does mean cutting a 50 patch in 4 at the moment for the extra 12.5  ;D but in future hopefully I can get some 25 patches and cut those in half!!)

I have a review with my menopause dr on Weds this week and I will ask her if she thinks I should go get all these tests run now, or if I should wait for the HRT to settle for a couple of months. I don't want to do the tests and have all kinds of weird and worrying results which are just due to hormones and might fix themselves anyway. But I also just don't know if I can continue to live like this, if it doesn't settle. I hope I don't have to come off HRT. I am probably catastrophising....  ;D

joziel, thanks for sharing your experience.  You're braver than me I won't use kardia or take my bp or anything, there is a reason for this anxiety that I can't put publicly, but at some point I need the doctor to give me a check over.  I never want to know my bp, I just tell them if I don't need to do anything, don't tell me what it is.  But I have a specific issue about it all. 

Did you mention the kardia results to a cardiologist?  Just curious what wide QRS means to them.  Most things are not worrisome, was just curious.  Also curious if the doctors think hrt is responsible for all this, but it sounds like you're on the case with making the necessary changes, etc.

If anything my flutters were better on HRT, but I'm messed up my regime atm.

I wish you all the best, let me know how you get on  :)
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KaraShannon

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Re: Do you ever feel your heart flutters won't stop?
« Reply #16 on: June 18, 2022, 12:17:06 PM »

Thank you QueenofReds3 and Songbird

Helpful to know. 

What I'm mainly concerned about is when it goes on for about 4 seconds, giving me the impression it's not going to right itself. 

When I had my cardiology appointment he said if it goes on 30 seconds (or did he say 30 mins) then maybe seek medical advice (or did he say call an ambulance).........and then he said 'but in your case, if you feel ok when that's happening you could even wait longer.'  Hence...........why I've no idea if it's 30 seconds, 30 mins, medical advice or an ambulance now  ;D

Anyone reading this, please understand the above is definitely not medical advice of any sort!  it was individualised to me based on a battery of tests and a cardiologist that wasn't worried.


anyway what I'm really wondering is has anyone else been in that position where the flutters have gone on longer than a couple of seconds and they've actually got to that point of wondering is this going to correct itself? 

Thanks   :)
Hi KaraShannon

It's 30 seconds continuously,  more than 6 per minute or in groups of 3 when you need to see a doctor asap.
I suffered with this during peri alot and had the monitor for 24 hours, ECG's and a heart scan, all was ok.
Our hormones rule our bodies and when they fluctuate so do we.
After covid and vaccinations I had a wobble with palpatations (had ecg) and night sweats because it upset my hormones.
Also anxiety will do it everytime. Knowing all of this helps me calm down and accept  this happens sometimes but it's OK, I'm going to be OK.
I'm not on HRT, just local, so no idea what does what but it makes sense what the ladies have advised to gradually adjust to get the right balance and stop the fluctuation.
You've had all the heart tests so try not worry, I know that"s easier said but anxiety will set them off and then you'll be anxious, just going round in circles.

thanks for clarifying Diedre

that is correct, 30 seconds continuously, I think what he said to me after all my checks was that yes, that's correct but even 30 mins, as long as I felt ok and could function is ok.  He was basing it on my test results and his consideration of my anxiety.  That's not the general advice for anyone else reading.  My anxiety doesn't cause it, but I am anxious if it happens and it's not just a tidy missed beat.

I think I'm just wondering if anyone else gets the type of missed beats that really feel like chaos is happening in their heart and it goes on long enough for them to wonder if will ever correct. 

Yes tests all normal which is reassuring
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joziel

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Re: Do you ever feel your heart flutters won't stop?
« Reply #17 on: June 18, 2022, 03:53:30 PM »

I'm not really have palpitations any longer so it seems like my body is getting used to the higher estrogen dose.  :)  I do need to go up again though (because I came down a bit when the palps started) and I'm not looking forwards to them starting up again.

I am still waking at 5am feeling a bit 'pulse-y' for want of a better word - but I think that is a lesser version of what I had before and is also hopefully on the way out.

The A&E doctor I showed the Kardia thing to said that 'Sinus rhythm with wide QRS' is still a sinus rhythm. Or something. And didn't seem bothered. But he couldn't really read the ECG properly (the one I brought with me) because the quality of it was so poor. So I think I'm just going to throw out the Kardia. I can't see the point in freaking out over something which no one can then read when I try to get them to check it and then I don't even know if the Kardia itself is working and analysing things properly if the readout is this rubbish?! I tried changing the batteries but that doesn't seem to have helped. I could get a new one but I get freaked out about checking my health and totally get you with that KaraShannon - I have been very happy to put the blood pressure machine away in the cupboard.

My palpitations most definitely went on for longer than 30mins when they were happening. I had two kinds, the skipped beat kind - which I had before starting HRT. And then this ongoing high-up fluttering thing associated with high blood pressure episodes, which is the 'adjusting to estrogen' palpitation I seem to get for 2-3 weeks after increasing.
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KaraShannon

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Re: Do you ever feel your heart flutters won't stop?
« Reply #18 on: July 02, 2022, 09:23:35 PM »

I'm not really have palpitations any longer so it seems like my body is getting used to the higher estrogen dose.  :)  I do need to go up again though (because I came down a bit when the palps started) and I'm not looking forwards to them starting up again.

I am still waking at 5am feeling a bit 'pulse-y' for want of a better word - but I think that is a lesser version of what I had before and is also hopefully on the way out.

The A&E doctor I showed the Kardia thing to said that 'Sinus rhythm with wide QRS' is still a sinus rhythm. Or something. And didn't seem bothered. But he couldn't really read the ECG properly (the one I brought with me) because the quality of it was so poor. So I think I'm just going to throw out the Kardia. I can't see the point in freaking out over something which no one can then read when I try to get them to check it and then I don't even know if the Kardia itself is working and analysing things properly if the readout is this rubbish?! I tried changing the batteries but that doesn't seem to have helped. I could get a new one but I get freaked out about checking my health and totally get you with that KaraShannon - I have been very happy to put the blood pressure machine away in the cupboard.

My palpitations most definitely went on for longer than 30mins when they were happening. I had two kinds, the skipped beat kind - which I had before starting HRT. And then this ongoing high-up fluttering thing associated with high blood pressure episodes, which is the 'adjusting to estrogen' palpitation I seem to get for 2-3 weeks after increasing.

I certainly have had my fair share of feeling 'pulse-y,'  I'm so glad someone else understands that  ;D

The cardiologist I saw said a lot of heart issues can go on for longer than 30 mins.  Once we are checked over properly, then they can say whether we can sit with those symptoms or whether we need to get checked again, etc.

I get my 'blow torch' symptom too sometimes, it's just a feeling like there's a surging blow torch going off behind my sternum.  Very odd.  Told him about it but he's not worried.  I do tend to get my period the next day after all that surging  ;D
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joziel

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Re: Do you ever feel your heart flutters won't stop?
« Reply #19 on: July 04, 2022, 12:34:51 PM »

Just to include on this thread: I am now exploring histamine intolerance as a cause of all this for me and I've started a thread on this site about my upcoming 2 weeks of low histamine diet...

If I rule that out, then I guess I will next reduce my estrogen back to 50 and see if I can stabilise there... (Not keen to do that as serum estrogen wasn't great at 233nmol.)
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KaraShannon

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Re: Do you ever feel your heart flutters won't stop?
« Reply #20 on: July 07, 2022, 12:00:01 AM »

Just to include on this thread: I am now exploring histamine intolerance as a cause of all this for me and I've started a thread on this site about my upcoming 2 weeks of low histamine diet...

If I rule that out, then I guess I will next reduce my estrogen back to 50 and see if I can stabilise there... (Not keen to do that as serum estrogen wasn't great at 233nmol.)

Interesting, I'll follow the thread.

I'm seeing the doctor on saturday and will discuss reducing my oestrogen slightly.  Not yet had a blood test.  At the moment the skin on my face and around my eyes feels noticeably thinner.  I don't mean in an 'ageing' sense, it seems more of a sudden thing since being on continuous estradiol, my skin also feels very subtley 'sore.' I'm not taking any progesterone and need to sort that out with the doctor.  I really do need a blood test.
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joziel

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Re: Do you ever feel your heart flutters won't stop?
« Reply #21 on: July 07, 2022, 09:32:27 AM »

Usually thinning skin (and skin losing elasticity) is due to collagen production hugely decreasing, due to a lack of estrogen. So you might want to wait till you get your serum estrogen tested before reducing estrogen more if you can bear it.

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KaraShannon

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Re: Do you ever feel your heart flutters won't stop?
« Reply #22 on: July 07, 2022, 09:52:35 PM »

Usually thinning skin (and skin losing elasticity) is due to collagen production hugely decreasing, due to a lack of estrogen. So you might want to wait till you get your serum estrogen tested before reducing estrogen more if you can bear it.

thanks Joziel.  I keep telling myself all my symptoms are low estrogen but this is really sudden and has come alongside all the migraines and postural hypotension, which all seems to be since going on continuous estradiol 100. 

But I will hold out for a blood test as I take your point, I've waited this long now.   :)
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