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Author Topic: GP has prescribed Qlaira - Feeling scared and need encouragement!  (Read 92947 times)

CrispyChick

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #345 on: April 06, 2021, 04:22:49 PM »

Ah. I see your plan scampi. Yes, sounds good.

Is there a reason you wouldn't go back to mirena??

I'm sorry you're feeling bad today too. Its just do awful. I've had this for 3 years now. Do fed up of it.

I'll give it a week, if no better, I'll make thd switch to eloine. Gutting to live through 8 weeks of torturous moods only to feel better in my moods. Grrrr. Now the physical symptoms. Every one of the 30mg combined pills has got me. I felt poisoned on some of them. I've near enough tried them all.

I did try 20mg last year, but felt rubbish, but I didn't give it long. I guess that's my next stop.

Cerazette works a treat for stopping my period etc...but bit, thd pmt I was getting was horrific.

When are you ready to start??? X

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Scampidoodle

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #346 on: April 06, 2021, 04:49:19 PM »

I still have the Mirena in which I tolerate and stops my heavy periods. It’s just trying oestrogel last April for four months set my histamine off again which I’m still battling. So I guessed progesterone somehow helped me last time so I’ll try again. I feel bad on climbing oestrogen, ovulation and pre period so just want it all shut down! But as you’ve found it’s not that easy.

Have you tried Mirena and oestrogen patch or gel crispy? X
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CrispyChick

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #347 on: April 06, 2021, 05:12:18 PM »

Interesting. I was feeling bad in first 2 weeks of cycle too... And I have tons of allergies... 🤔.

Anyway, so are u trying cerelle on top of mirena to shut down ovulation??? Cerazette certainly shut mine down and, I believe, it keeps estrogen at a low level.

No, I've not tried mirena. Don't fancy it to be honest. Lack of control etc... But mostly because on the mini pill my moods were awful, so I dont think solo prog is what I need. Also, I'm not ready for hrt. I tried femoston in Dec... Was horrific. My own estrogen is clearly too high or surging, so I'm guessing it would continue to do that on the mirena. So yes, I want shut down...
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Scampidoodle

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #348 on: April 06, 2021, 06:49:07 PM »

Yes I’m keeping the Mirena in (as I guess the pill may not work and I don’t want to lose Mirena) so I’ll try Cerelle to shut down the cycle. I don’t really bleed now so it’s not that, I just want to stop the hormone fluctuation. My gp said not all mini pills stop ovulation but Cerelle and cerazette tend to.

Can you start it at any point in your cycle do you know?

I was wondering what happened re oestrogen when on the mini pill so interesting it keeps it at low level - I presume not too low?!

Makes sense that Mirena wouldn’t work for you, I think it stops ovulation in some but not many. And like you say you want shut down. HRT not for me either. Was told initially the oestrogel would even me out. It improved my mood somewhat but I still struggled on the climbing oestrogen days and got loads of histamine symptoms like nausea, brain fog, fatigue, jittery symptoms, memory loss and hair shedding! My FSH is fine and I guessed I was in peri until I went through all the above and now I’ve no idea. Pmdd, histamine issues etc I guess.

X
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CrispyChick

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #349 on: April 06, 2021, 07:01:07 PM »

I think you can start cerelle any day. I'm guessing with the mirena stopping the bleeds you might not know where u are anyway!!!

I'm not 100% sure on the estrogen. I think I read it on this forum. Certainly for me last year, I felt lacking in estrogen. Cerazette certainly stopped all bleeding and ovulation for me. So great in that respect. You're right though. Not everyone benefits from that. I've got a friend trying it just now and she has constant spotting.

My husband is trying to convince me I have a bug just now. But I pointed out I cant get a bug every week or so... 🤔
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Scampidoodle

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #350 on: April 06, 2021, 07:53:49 PM »

There’s lots of ‘helpful’ advice around isn’t there  :) we must all have the same bug!

I’ll maybe start Cerelle soon then, I’m just ovulating now. On Mirena I get a spot or two so I know where I am in my cycle and could pretty much predict based on how I feel too!

So maybe you are nearing the swap to Eloine then. It does sound like the higher dose oestrogen is causing you issues. X
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CrispyChick

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #351 on: April 07, 2021, 12:26:43 PM »

OK, so I'm still feeling dreadful. Headacy, nose issue, mild nausea, fatigue. Lower backache, mild sore throat.

I've looked back and I felt like this 4 weeks ago - that's when I blamed the covid jab...

I'm pretty sure I'm not 'ill'. 4 weeks is an interesting timescale...

Thoughts????
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Alicess

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #352 on: April 07, 2021, 12:57:04 PM »


CrispyChick, maybe you can try Microgynon 20 first? That way you will know for sure it's high estrogen. Eloine contains a different progestin, drosperinone, which has a different activity. It's a anti- androgenic progestin and surpresses testosterone, mostly used for treating acne and hirutisme.

.
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CrispyChick

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #353 on: April 07, 2021, 01:01:29 PM »

I'm open to that, but I don't think you can get microgynon 20 in the UK...
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Alicess

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #354 on: April 07, 2021, 02:26:04 PM »

Maybe ask your pharmacist? Or search for ethinylestradiol 0.02/ levonorgestrel 0,1.
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Scampidoodle

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #355 on: April 07, 2021, 03:38:50 PM »

Crispy what part of your natural cycle is this Worse ill feeling falling in do you know? Just wondering if it’s at a high oestrogen phase or pre period etc

Interesting about the Eloine suppressing testosterone I didn’t know that x
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Gilla999

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #356 on: April 07, 2021, 03:53:40 PM »

Crispy I just caught up with these messages and my first thought was "this sounds like when Crispy thought it was the covid jab". What I'm really confused with though is do you think this is your natural hormones underneath the Pill causing this - is that what you meant by "original symptoms"? Or do you think this is the estrogen side effects of the Pill? I'm trying to work out if it's Pill side effects why you would be ok some days and not ok others (and also to not have had these symptoms for the first few weeks). Vertigo symptoms etc are awful - a bit like migraines, that's not liveable with  :'( 

Feel so bad for you, wish I could offer you some good advice xx

I didn't know that about drosperinone and testosterone either - not a problem for me as my natural testosterone levels are high anyway, but does explain why my sex drive has completely disappeared! But that's the least of my worries.
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CrispyChick

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #357 on: April 07, 2021, 05:20:59 PM »

Thanks ladies. It's so good to know I'm not alone.

I honestly have no idea what is going on. But yes, this is totally crispy post covid jab...although even worse. 😭. I agree gilla, if it was side affect of the pill, I'd have it all the time, or certainly earlier in my taking. So does that mean it's my own?!? I'm defo not ovulating (because I get bad pain) I have no spotting... No hint of a period. So I'm at a loss. Also no idea where I would be if I were still cycling underneath scampi 🤷‍♀️. I wonder if it's like a shift, like you get with the sleepless  thing gilla?!?!

This just seems to be me... On the pill. Or off the pill. Grrr.

I sorted out the bathroom cupboard today and, in doing so, found all the pills I have tried in the last year and half... There were a lot. Unfortunately, I had no recollection of trying millinette 20mg...as well as the 30mg. So I checked bsck on my diary and it was not good 😬. So I have tried two 20mg pills already. Admittedly not for long.

I can't find any trace of a 20mg with levongesteral in UK. But, if I am going to change, why not try a new prog too. 🤷‍♀️. I hear you alicess on the testosterone thing, but that prog is also sold as the best for pmt... Mine was terrible on nothing. Admittedly my mood is quite stable just now. Ironic since microgynon gave me 8 weeks of grief.

I honestly don't know ladies. It's like the pill just doesn't suit me anymore.

I think if I can, I will stay on a bit longer, see if this lifts again. It's only been 3 months. Only...🤣🤣🤣. Mind you, I am getting the nose/head pressure daily... That's not good.

My only other option would be back to the mini pill. But my moods were terrible on it... There just seems to be no solution. It's awful.

How are you getting on with yasmin gilla???
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Gilla999

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #358 on: April 07, 2021, 07:35:43 PM »

If this is also how you are not on any Pill at all (is that what you meant?) then are you still sure that what you're experiencing now is hormonal? Obviously I don't want to lead you down a rabbit hole as I totally understand what that's like, I'm just thinking about things like Epstein Barr or all kinds of different things that could give you flu like / vertigo symptoms. For it to be your own hormones and not sure effects of the Pill (which it doesn't sound like, if it's happening cyclically) that would mean your own hormones are still fluctuating underneath... not impossible I suppose?

I've been fine, but it's only been a week since my last insomnia / night sweats / period pains ended so I've got a long way to go. My boobs are ridiculously gigantic and painful... more so than when I was pregnant, on Zoely or on HRT. So I know my estrogen is still sky high and at some point it will come down which is what I think triggers the episodes for me... so I'm sort of waiting for when that happens. The only time I'll be able to say it's "working" is if my boobs were normal ish (so I knew my body had adjusted to the Pill) and i had gone at least a couple of months without it happening.

What I do find interesting is that the boob situation for me clearly shows that the estrogen in normal pills is SO much stronger than in Zoely or Qlaira. Whether that's good or bad I guess depends on your circumstances

Wish I could help more Crispy- always around to talk it through anyway!
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CrispyChick

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Re: GP has prescribed Qlaira - Feeling scared and need encouragement!
« Reply #359 on: April 07, 2021, 08:19:27 PM »

 ??? You're making me think. I've been pretty sure it's all hormonal for a while now. Been down so many tests at the beginning.

OK. So at the start of this hell I had serious constant dizziness, severe nausea, bouts of vertigo and felt extremely ill. I got rid of a bit of that using the mini pill. But with every pill I still get moments of wooziness and odd nausea (like motion sickness). It's not been bad in microgynon until this week. Millinette for example, I was dizzy every day. Along with that poisoned feeling.

No. I guess I'm not the same on nothing. On nothing I had days where I felt dizzy and ill (I do feel a big like that today, but I've defo not had that every day). I also had severe pmt. That's gone on the microgynon. Woo hoo. I also had severe ovulation pain that lasted days (don't need to put up with that). But I am feeling pretty ill and woozy like this week... And yes, it does feel similar to what I was getting on nothing.

To put it in context 7 days after I stopped the mini pill and started a combined pill I got horrific vertigo and nausea... So that's kinda why I think it's all hormonal.

I guess, the only possibility could be my own estrogen doing some surging in the background... But why?!?! It's soooo frustrating.

To be honest, I'd take 2 days of this every month. But it's been the odd day here and there too. And I'm already on day 6 of this 'episode'. It's too much. Then there's the daily head/nose thing...i think that's side affect. But then... No pmt. No pmt!!!! If I'm being honest, how I feel now is how I felt on the lower dose 20mg pills.... But the higher estrogen gives me migraines.... Ahhhhh.

So glad you're having a good week. Sometimes u need to hear others issues, to realise you're having a good week. I hope it continues. What do u think happens, during your sleepless week then??? Drop in estrogen???
« Last Edit: April 07, 2021, 08:30:35 PM by CrispyChick »
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