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[Scampidoodle]

I was just thinking that about Madame O actually this must be a good sign.

I know what you mean crispy, you’re not fixed but just so glad you have a little relief from the constant onslaught. Fingers crossed for the Eloine.

Gilla it’s totally hormonal isn’t it. Even mirtazapine won’t sort it which is renowned for making people sleepy. It’s so hormonal and no matter how people may say such things have a psych element this really doesn’t.

I know you can get injections to turn your hormones off with add back hrt but I’m hoping the pill works for us all x

[CrispyChick]

Oh geez. It really is severe isn't it. And so different for us all... Totally weird.

Yes, defo on madame ovary front... And all the others that have posted on this forum and gone...

The opening of the sinuses sounds good. I'm just getting my turbinates reduced, or something like that. I have a ton of allergies. But I don't think it will help with this feeling... I think I'm deluding myself if I do 🤣🙈. Had the allergy avd blocked nose all my life.... This is new. Sigh.

[Floo36]

Good luck with the Eloine everyone, we could all do with a bit of luck with our hormones.

[CrispyChick]

I forgot to take my pill yestersay  .

How did that happen?!?!  I'm usually fixated on it. Lol. Felt very foggy yesterday, but fingers crossed no side, affects of the blip 

[RebJT]

Hello girls

Well, FFS, I'm still on the deck, I'm on day 15 of defcon 4, nails down a blackboard, jittery, adrenalised etc.  Consultant says the rising histamine, which drives up the estrogen, which drives up the histamine, and on and on and on eventually means your body starts pumping out tonnes of adrenaline, which is what is causing the shaking, vibrations, jitters and internal taut as a piano wire feeling.  she's added another mast cell stabiliser but must say it's not touching the sides.

I've woken up this morning (at 4am again) just so toxic, distressed, unwell, and just EATEN ALIVE with it all, my first thought was 'I don't want to be alive any more' - not stupid enough to say this out loud to a doctor (that's all they'll hear and not what I'm actually saying, I don't actually not want to live, I do want to live, that's why I'm so bloody distressed!  i want my life back, I'm a hard working, cheerful, ambitious person, I'm also pretty stoic, but Jesus Christ I'm on my knees) but I have sent an SOS to the gynae again, and just called my GP practice and demanded a call back.  I never ever thought I'd write these words, but valium is a potent mast cell stabiliser and I think I need a couple of doses just to get this spiral going the other way, my histamine is still climbing, and it's day 15 of my cycle so my estrogen is rising too, I just need a bloody breather!

I appreciate we are all in the same boat, trying to find a solution, but please do be careful won't you?  I really would not wish this on my very worst enemy, it's totally knocked me off my feet and if I had known what the withdrawal from Qlaira would have been like, what the consequences of putting these hormones into my body would be, and just how terribly, terribly ill it was going to make me, I really would not have done it.  The original complaint seriously is about a thousand times more preferable than this.

I now have two scripts, one for Elione, and one for Zoely, and I don't think I'm taking either.  I want a second opinion before I do anything else.

Lay awake last night obsessing about whether taking some utrogestan in the second half of my cycle might be an idea (I can tolerate about 6 doses over 12 days vaginally usually) to just try to oppose this whopping amount of estrogen in my body right now, progesterone is also a mast cell stabiliser in almost all women (it's mast cell aggravating in some, hence my hesitiation, as nobody can even seem to tell me which hormone is causing what flippin' reaction!!).

In better news, Nuffield will do me a test bundle a lot cheaper than the individual tests, so just sorting that out, oestrogen, progesterone, folate, ferritin and homocysteine (there's a connection with histamiine and folic acid cycle which I have a hunch about).

Anyway, hope you are all surviving, I am but I really am clinging on by my fingernails ....  I mean it, look after yourselves.

Lots of love

Reb
x

[Scampidoodle]

Reb I’m so sorry you’re suffering like this. I hope gynae and the gp call very soon and can give you something to take the edge off, your histamines and mast cells must be on high alert right now and need something to bring you back down and some relief. Definitely you do want to be alive you just want to feel well and I totally understand that.

I hear you re trying hormones and starting the pill, I’m terribly scared about starting mine and as I have Eloine and the mini pill to try I’m still very confused as to which to try or even if to try.

Take care and keep us posted xxx

[RebJT]

Hiya

Thanks so much.  Gynae got back, I need short course valium, she's doubled the rupatidine, and asked me to ask the Gp for Ketotifen at night, and I'm to consider low dose naltrexone (which I have already), at 0.5mg a day. 

It doesn't help that my heart is broken over the boyf, and the stress of that is ramping up the adrenaline, really need a breather before I lose my job (worry about money is the WORST of all of it, I feel so guilty that my poor old mum is bailing me out yet again, I'm a grown woman, I should be able to stand on my own two feet!).

I hear you on the confusion, I honestly do feel like a rat in a trap, around and around and around, with no answers.

Reb
x

[CrispyChick]

Oh Reb

I really fo feel for you. I hear you on the 'trying things avd them making you worse. ' so get back to 'normal' and reevaluate. You have choices.

When I tried my first combined pill 16 months ago after having been on the mini pill, at day 8 I was horrific. My original symptoms of vertigo, dizziness and severe nausea avd illness returned... No idea why?!?! Estrogen I suspect... But, although I haven't yet found my magic cure, gradually those horrific symptoms faded a good bit. It took a long time...

I do think trying a pill will give you a bad 3 months to start... I've just been through them with this one... You have to weigh it up. Obviously there's no guarantee for long term benefit.

I'm still feeling headacy/nose pressure, but not ready to jump yet. Just picked up eloine and another microgynon (much to the pharmacists disgust! - she couldnt understand why I had two different contraceptive pills - but I wasn't for going into detail. Gp prescribed them 🤷‍♀️). Anyway, I feel better just knowing I have a choice and it's readily accessible e.g in my own bathroom cupboard 😊

Gilla... How are you fairing? Any better nights???

[Gilla999]

Last couple of nights have been much better Crispy and the weird thing is I literally felt the shift... I knew I would sleep fine, I could feel the difference even though it's hard to explain how. I'm finding it hard when people try to insinuate the issue is purely psychological - though I'm sure there is an element of that too once the problems start, I am adamant from the physical symptoms I get too that something hormonal triggers it (night sweats, boobs dropped from super painful and swollen to less so and was getting period cramps). I have a gynea app on 12th April so will talk it all over with her - hoping she doesn't just fob me off.

Crispy I think if you've felt a positive mood shift on Microgynon and can cope with the nose/head pressure it's worth seeing if you can stick at it for a bit, but reassuring to know you have the scripts there! A bit like with my digestion, I'm sort of hoping they can treat that somehow, hopefully they can do the same for your nose. Is it Septoplasty you need? Can't remember if I asked already xx

Reb I'm so sorry to hear you're suffering so much. I can totally empathise - during my days on end of extreme sleep deprivation I am in a terrible, terrible state mentally and physically. Even though it's hard to see it right now it WILL subside and you'll be able to then take stock. Don't worry about the valium - I also have that on regular script just for the days after no sleep where my anxiety gets so bad I'm literally vomiting. As long as you're careful not to take it regularly it's fine (I never take it for more than 3 days in a row). I think focusing on restabilising is the best thing to do now, and you can work out the plan for the future when you're coming from a clearer place. Sending you much love and good vibes xx

[Kathleen]

Hello RabJT

I am so sorry that you are suffering and my heart goes out to you.

My trusty Meno book claims that the  jittery, internal shaking sensations are caused by low Oestrogen and this was certainly my experience as they only began when I was post meno.

If your Gynae thinks that Histamine and Adrenalin are also having an impact then increasing Oestrogen will not solve the problem alone. Does your specialist subscribe to the 'less is more' approach to adding Oestrogen  which I know some NHS Consultants favour?

Sorry for the questions but you are clearly working hard to think this whole thing through and I admire you for that, especially as you are feeling so unwell atm.

Take care and sending hugs to you.

K.

[MadameOvary]

Hi
Sorry I haven't been around for a while. I've just been busy and haven't had much to report. Qlaira is still working well for me. My sleep is still disturbed a lot of the time but not all the time. I've had more spotting/breakthrough bleeding this month but, apart from that, it's all been good. My main worry is what I'll do if/when my GP decides I'm too old to stay on it. Or if supply is disrupted.

I've missed so much and I haven't caught up with all the posts but I'm really sorry things are so bad for you Reb. I know you don't want to tell the doctor about your darkest thoughts and I understand but I do think it's important to tell someone how bad you're feeling. Can you talk to your partner?

Gilla and Crispy, it sounds like things are looking up a bit for both of you. I'm so pleased 

[CrispyChick]

Hi ladies. How is everyone doing???

I'm not good. Not been feeling right at all since Friday. Headachy, exhausted, sick. Then last night I had vertigo spins in bed... Awful. Those were my original symptoms. Which I now think we're due to estrogen surges.

So, my only thought is, the estrogen from microgynon kind of accumulates... Maybe it's now stabalised (mood fine) but is now constantly too high for me???

Just so fed up of this. I have eloine in the cupboard... But I'd rather not swap... But really feeling ill.

Any thoughts?

[Scampidoodle]

It does sounds like high oestrogen symptoms crispy. But why it only happened from Friday I’m not sure unless it was a high oestrogen point in your normal cycle and compounded by the oestrogen in the pill. Is microgynon a 30mcg pill? Sorry things are rough still. Good your mood is steady, to be honest thats my main symptom.

I haven’t started Eloine yet I’m actually going to try Cerelle the mini pill first. Keep chopping and changing my mind but need to start somewhere.

[CrispyChick]

Thanks scampi.

It's not actually just started on Thurs, this is my latest bout. Had this at least every week since my mood settled. Some days rougher than others. Parti ulaeky bad since Thurs and then the vertigo spins.

Yes, microgynon is 30mg estrogen, nut is the most potent prog which means it should have less estrogenic effect. 🤷‍♀️. I'm so scared of swapping. But I cavt walk around feeling like I have the flu 4 days out of every 7 😬.

How come you've decided on mini pill now??? I was on cerazette before these combined pills. Used to be on it befiore all this and it was grand. But not now...

I'm looking at eloine. Maybe I'll give it another 7 days... See where I get to... X

[Scampidoodle]

I agree you can’t put up with those symptoms! I’m so sorry crispy.

I’ve never tried the mini pill and I have added complication of histamine/mast cell issues for which oestrogen is the devil so thought I need to try one. I’ll try mini pill first and if that goes pear shaped I’ll try Eloine. I just know when I had the Mirena coil it helped my cyclical mood symptoms a few years ago. So I’m just using that as my decision to try another progesterone format! I’ve felt terrible todsy and think I’m ovulating it’s like falling off a cliff mentally x