Hi Andic
Sorry to hear about how you're feeling.
Did you keep your ovaries or were they taken out at the same time as your full hysterectomy? I am assuming so because you would still be producing a lot of oestrogen otherwise and these could stimulate endometrial deposits outside the womb. Do you know whether the endo remains outside the womb or not?
It sounds like Livial is not suiting you at all but if you do have endo still elsewhere then you do need a continuous progestogen to help control these. There are other tablets - and ones that have proper progestogens in them ( Livial is not quite the same although partly acts as a progestogen) which are probably more effective at porveneting stimulation of endometrial tissues (ie womb lining deposits even outside the womb).
Tablets such as Elleste Duet Conti or Kliofem/Kliovance or Indivina for example contain powerful progestogens which would help if your endo has spread. I am surprised your doc is dismissive and hasn't suggested an alternative to Tibolone because in some women it can be less effective in protecting the endometrium.
Here is what it says on this website about endometriosis:
"
There is a small risk of reactivation of endometriosis with HRT use and any recurrence of symptoms should be reported. If a hysterectomy has been performed for endometriosis, the choice of HRT use thereafter should be influenced by the extent of endometriosis at the time of the operation. Since hysterectomy often causes a premature menopause, it is often advised to take HRT until the average age of the menopause; 51 years. HRT after hysterectomy usually consists of estrogen only. However, in the presence of endometriosis, estrogen may cause stimulation of residual deposits and consideration should be given to using continuous combined (estrogen plus daily progestogen) therapy, or tibolone, though little research has been done on the effect of different types and duration of therapy. Medical treatment of endometriosis often involves ovarian suppression which, along with ovarian removal, may increase the risk of osteoporosis."
I hope you are able to try something else and if your doc won't help - to refer you to a specialist eg meno clinic who will take into account your past history of endo and where it is in your body if known, and then prescribe accordingly. You are too young to be without oestrogen so finding one that works so that you can be flush free without pain is imperative I would say!!
Good luck - hope you manage to sort something out very soon and keep us posted.
Hurdity x
