All sympathy to you, it sounds really bad. I have had similar when I stopped hrt following bleeding then I got cystisis. I didn't want more systemic hrt so I have been on ovestin since, yes it's on prescription.. it took months to settle down, almost a year, using every night for a month and alternate since. It's that horrible feeling like you can't stop thinking about peeing. Yours sounds worse than mine so with the systemic hrt as well things should improve, but it can be very slow. It really gets you down and I did a lot of crying. It's like you're constantly thinking about your bits and what sort of life is that! I also stopped drinking alcohol, especially wine and spirits, no hot baths and no spicy food. Sex was off limits for ages too. All sympathy to you as it's an awful feeling and really hope you feel better soon.