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Author Topic: HRT supply issues update on all Products see link  (Read 112788 times)

pepperminty

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Re: HRT supply issues update on all Products see link
« Reply #135 on: August 28, 2019, 07:05:33 PM »

Again, would this happen if it were men? These tablets can make the difference between being able to function or not. Again would they say just swop if it were anti depressants?

PMX
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Tc

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Re: HRT supply issues update on all Products see link
« Reply #136 on: August 28, 2019, 08:24:32 PM »

Ladies.  Since last week  .a scrip that couldnt be filled replaced by another scrip that couldnt be filled. And I tried loads of places, sat on the phone best part of the day today.

tThen  I thought "this is ar*se about face". It's pointless  docs stabbing in the dark at what is available. Their information is out of date.  The situation is changing daily. And pharmacists can tell you what they can and cant order if they want to take the time. Mine did. He agreed (after i got on his nerves) that it's the wrong way round to do things  In this situation.. 

 So got on  his computer, went through everything  and told me what IS ACTUALLY available.from manufacturers (in my case it was a choice of one alternative!!) and then in a phone call with GP I filled her in.  She accepted that her screen was showing things available which arent and took the pharmacists word. She wrote me a  scrip and sent it to pharmacy. Ifingers crossed it doesnt become unavailable by tommorow.

Ladies I believe The GPS information is out of date by the time it reaches them.  If a pharmacist will take the time with you as mine did with me they can look at what they  are able to order there and then.

I will let you all know if I get my scrip filled tommorow.

And yes. It's always worth making phone calls as you never know what an independent pharmacy might be holding in stock 

. Good luck with your efforts everyone xxx

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da66

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Re: HRT supply issues update on all Products see link
« Reply #137 on: August 29, 2019, 04:05:49 PM »

I found a pharmacist today who actually knew what was going on and had taken some initiative. She told me something that may be helpful to those of you in severe need. She said that Janssen have a small back up supply of Evorel at their own HQ and that a pharmacist may, in a case of serious need, fax the prescription direct to Janssen who will send the patches direct to that pharmacist. She also said that they expect to run out of their back up supply in October and that they told her it will be October 2020 before they are back in stock. Sorry to be the bearer of bad news on that front but hope that the worst off amongst us might be able to get hold of some patches with the direct fax to Janssen 💪 to all! 
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jaycee

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Re: HRT supply issues update on all Products see link
« Reply #138 on: August 29, 2019, 08:57:44 PM »

The tablets are now in short supply no then are they ?
I see the Viagra ad is back on TV no shortage of them then ? ::)
I wonder how the men who have to have hormone therapy after prostate cancer will go on , as i believe they are given Oestrogen injections
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Katejo

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Re: HRT supply issues update on all Products see link
« Reply #139 on: August 29, 2019, 09:21:29 PM »

I found a pharmacist today who actually knew what was going on and had taken some initiative. She told me something that may be helpful to those of you in severe need. She said that Janssen have a small back up supply of Evorel at their own HQ and that a pharmacist may, in a case of serious need, fax the prescription direct to Janssen who will send the patches direct to that pharmacist. She also said that they expect to run out of their back up supply in October and that they told her it will be October 2020 before they are back in stock. Sorry to be the bearer of bad news on that front but hope that the worst off amongst us might be able to get hold of some patches with the direct fax to Janssen 💪 to all!
   I heard the same suggestion from someone on the FB VA group. I asked about it when I went to Boots to collect my  other medication. The pharmacist explained (as I had predicted to myself) that they were absolutely NOT allowed to do that because it would break their contract with their provider (the middleman who is restricting supplies?).  :(
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jaycee

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Re: HRT supply issues update on all Products see link
« Reply #140 on: August 31, 2019, 10:16:23 AM »

According to the mail online, Drs are up in arms about this new report and say it might stop women who really need it going off it now through fear
It seems too much of a coincidence to me.that this report has now come out, when the previous one said there wasn't the danger first thought,and NICE approved Drs giving it to patients
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Traceylr

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Re: HRT supply issues update on all Products see link
« Reply #141 on: August 31, 2019, 03:29:35 PM »

hi all
feel like im in a pastiche of 'midnight express' returning home from holiday with boxes of estradot taped to my midrif 😂😂😂
on the plus side have got twelve months supply 😃
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Katejo

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Re: HRT supply issues update on all Products see link
« Reply #142 on: August 31, 2019, 05:16:07 PM »

hi all
feel like im in a pastiche of 'midnight express' returning home from holiday with boxes of estradot taped to my midrif 😂😂😂
on the plus side have got twelve months supply 😃

Was it really easy to find the exact same  product? I am a bit envious that you have managed to get a whole year's supply. Approx how much did you have to pay (if you don't mind me asking)?
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linz57

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Re: HRT supply issues update on all Products see link
« Reply #143 on: August 31, 2019, 08:20:11 PM »

I found a pharmacist today who actually knew what was going on and had taken some initiative. She told me something that may be helpful to those of you in severe need. She said that Janssen have a small back up supply of Evorel at their own HQ and that a pharmacist may, in a case of serious need, fax the prescription direct to Janssen who will send the patches direct to that pharmacist. She also said that they expect to run out of their back up supply in October and that they told her it will be October 2020 before they are back in stock. Sorry to be the bearer of bad news on that front but hope that the worst off amongst us might be able to get hold of some patches with the direct fax to Janssen 💪 to all!

I really hope some women have pharmacists who will do this for them. I too contacted Janssen recently and was told my pharmacist could ring them  and they would send them direct. All the ones I visited refused to do this 😫

Great news Traceylr, that's got to be a relief. I'm off to Spain shortly and am hoping to buy some patches but it will all depend on the cost. I'll probably only be able to afford around three months supply

« Last Edit: August 31, 2019, 08:24:22 PM by linz57 »
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Traceylr

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Re: HRT supply issues update on all Products see link
« Reply #144 on: September 01, 2019, 10:00:15 AM »

hi all,
I started 'stocking up' in April as had as i mentionined on here had issues getting supplies before then .( fortunately i am prescribed six months supply at each appointment) so usually have a box over before a new script is issued. i ordered 6 boxes from my local lloyds  pharmacy before i went on holiday , which they miracuously had no probs getting! i had no probs either getting the exact same patch from the pharmacy in Spain , no hassle and they were very helpful . they cost @19 euros a box  so was able to get 9 boxes within 2 weeks plus my stock in hand .
I could have bought more in Spain at the time but hopefully this supply issues will be resolved by the time i need to re stock. Its been a 3 year battle with my gp and finally getting what works for me so theres no way im giving it up without a fight 😂😂Hope others can get whay they need
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Butterfly22

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Re: HRT supply issues update on all Products see link
« Reply #145 on: September 01, 2019, 10:22:14 AM »

20 year fight for me and still not settled on something. Xx I feel this hrt journey has been a joke xx
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bear

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Re: HRT supply issues update on all Products see link
« Reply #146 on: September 01, 2019, 11:54:30 AM »

20 year fight for me and still not settled on something. Xx I feel this hrt journey has been a joke xx

Hello Butterfly22,

Are you trying to settle on HRT for 20 years? Poor thing, have a hug  :hug:
I will read your previous posts, as I'm trying to learn how HRT works (or not).

BeaR.
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Butterfly22

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Re: HRT supply issues update on all Products see link
« Reply #147 on: September 01, 2019, 12:40:06 PM »

Ah thanks bear, I did start early but this carry on with hrt is nothing new to me, just had problems all the time.
I was on nouvelle for about 9 yrs discontinued, then few years to find premique which I was on for two yrs then discontinued yet again.
Took couple more years to take duavine which was hard to get some months then hot flushes came back when I had my hormone levels tested it was to low a dose so I started Estraderm and what do ya know,, can't bloody get it.
I'm so fed up which I could just say to hell with it but I'm still only 45 and could have a long way to go with symptoms plus I have osteopenia and can tell my skin is losing a lot of elasticity compared to others my age and my mum, sis ect.
I just feel like HRT has never been stable. And not enough choice ect. And now this! Xx 
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Kathleen

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Re: HRT supply issues update on all Products see link
« Reply #148 on: September 01, 2019, 12:50:52 PM »

Hello ladies

As I've said before, I seem to have chosen a good time to take a break from HRT.  However I still have my stash  if I do need to return to it!

I wonder why production problems haven't affected Spain? Perhaps it is just a UK problem  or only certain products affected?

Nevertheless let's hope these issues resolve soon. The meno is stressful enough without having this to worry about.

Take Care ladies.

K.
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Katejo

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Re: HRT supply issues update on all Products see link
« Reply #149 on: September 01, 2019, 01:25:37 PM »

Hello ladies

As I've said before, I seem to have chosen a good time to take a break from HRT.  However I still have my stash  if I do need to return to it!

I wonder why production problems haven't affected Spain? Perhaps it is just a UK problem  or only certain products affected?

Nevertheless let's hope these issues resolve soon. The meno is stressful enough without having this to worry about.

Take Care ladies.

K.
Hi Kathleen. Another member recently sent me links to 2  forums similar to MM in Germany and Italy. I browsed the comments. It seems that the problem is affecting other countries. Why Spain has escaped I don't know.
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