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Author Topic: Enough is enough  (Read 17468 times)

Blue Kingfisher

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Re: Enough is enough
« Reply #30 on: April 28, 2019, 09:21:37 AM »

That's interesting to hear Jasmine, can I ask how long you have been dosing with pg every other day?
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Jasmine_2015

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Re: Enough is enough
« Reply #31 on: April 28, 2019, 09:45:47 AM »

I've only been doing it about two-three weeks so far. Do let me know how you get on if you decide to go down that route. I hope you find something that suits you better.
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Tc

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Re: Enough is enough
« Reply #32 on: April 28, 2019, 12:06:11 PM »

Thanks hurdity for the very helpful info. I'm wondering if the effect of ccontinous P on the E receptors in the womb has the same effect on E receptors in other tissues in other parts of the body.which might explain the lack of positive effects of my high dose E.
What you say about retaining the uterus is probably true. I hadnt realy thought of it like that. I was thinking it's just this pretty useless organ now just sitting there causing me problems. But it does have a role to play in the pelvic structure.

Thanks for all your replies ladies. Not much to report yet. But it's only been 3 days.
Xxx
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Tc

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Re: Enough is enough
« Reply #33 on: April 28, 2019, 08:56:30 PM »

Haha birdy. Thanks so much. I guess my meltdown earlier could well be prog withdrawal.
Thanks for the reassurance  xxx
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Tc

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Re: Enough is enough
« Reply #34 on: April 29, 2019, 05:27:44 PM »

Day 5 off the utro. I feel pretty awful. Anxiety is  bad. Today I've got period type pain but no bleed yet.
I'm a bit less tired but swinging between bursting into tears at everything to  being highly anxious.. I've had a sudden reaction to the estradot patches too. It started with rash a couple weeks ago and now the skin on my tummy where the recent different sites are is peeling.
I thought I might finally start to feel the effects of the E but I havent.
I'm seeing gp Wednesday for blood results. Not hormones just blood count and magnesium
Xxx

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pants46

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Re: Enough is enough
« Reply #35 on: April 29, 2019, 06:34:35 PM »

Tc, the skin peeling thing is ok,  don't worry about it. When I had my surgery they put normal dressings over my wounds and then, because I wanted a bath, I put waterproof dressings over the top. I got a reaction to those dressings. The skin went pink, it looked a little blistered as well. Then about a week after the dressings came off, the skin went dry and peeled off.
Don't scratch at it, or try and peel the dry skin off. Just moisturise the areas. Use something like savlon.
And eat something. Try some protein and slow release carbs. Avoid coffee. Try not to smoke too much (easier said than done ... I'm in the same boat). xx
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Tc

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Re: Enough is enough
« Reply #36 on: April 29, 2019, 09:19:59 PM »

Thank you pants. Xxx
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pants46

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Re: Enough is enough
« Reply #37 on: April 29, 2019, 09:45:10 PM »

Tc, how are you now ?
Have you eaten some proper food today ? xx
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Saffy

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Re: Enough is enough
« Reply #38 on: April 30, 2019, 12:01:19 AM »

Oh TC it never stops does it :(. Can you show the GP the rash and get them to prescribe some alternative patches as I guess the allergy might hinder absorption even more?

Hope you're OK. xx
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Tc

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Re: Enough is enough
« Reply #39 on: April 30, 2019, 02:45:37 PM »

Thanks saffy. I will.
Pants. I didnt eat.You know me too well!!  When I'm realy anxious I feel too sick to eat. But I smoke out of  "nerves" and that doesnt help.I have had lunch today tho.

I've got backache and tummy pain. Feels like I'm due on. No bleed yet tho. I guess my eastrogen isnt high enough.
I havent noticed any effects of the testogel. Although it's only been a week. The thing is I didnt absorb the eastrogel so not sure it wont be the same story with the testogel.

Not quite as tired though and not as "weak". Still feel like a zombie though.
Xx
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racjen

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Re: Enough is enough
« Reply #40 on: April 30, 2019, 03:37:21 PM »

No-one has mentioned Provera, which is also available for HRT as an alternative to Utrogestan. I've just started on it cyclically as I didn't get on with Utrogestan - insomnia, depression etc., never made it past 8 days before giving up, or with the Mirena, which made me feel panicky. The gynae I saw today said Provera is the kindest of the synthetic progestins and the one she'd suggest if you're having trouble with Utrogestan. It's only available orally though; I am getting a bit of stomach ache but it hasn't disturbed my sleep which is great. Only on Day 3 though....
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Lanzalover

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Re: Enough is enough
« Reply #41 on: April 30, 2019, 04:38:07 PM »

I also use Provera long cycle as I'm in my 60's and although not perfect for me it suits me better than Utrogestan used either orally or vaginally unfortunately progesterone is downside for many us on HRT.

Lanzalover x
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Tc

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Re: Enough is enough
« Reply #42 on: May 01, 2019, 01:06:57 PM »

Update. Its a bit long ladies.
Saw GP today.
1. She said "who told you to take utrogestan without a 3 day break"   (it was the gynae).
I told her I stopped it a week ago and she said "well that's up to you, but you've been taking it wrong".

2.she refused point blank to refer me to meno clinic. She said we referred you to a gynae. They have to refer you back to us before I will even consider it.

3 She wrote a scrip for generic "100 estradiol" patch. I explained that the pharmasist said it needs to specifically say "estradot". She said ",they are all the same, why have you got a thing about estradot". God help us!!!

I argued all of the above  points to no effect.except she dramatically ripped up the scrip and gave me a months worth of estradot.

She rolled her eyes and sighed when I asked for more vagifem and estriol. She said "all these hormones!!!" in such an exasperated tone.

I told her I need vagifem more than twice a week. I also asked for ovestin instead of estriol which she refused. She practically threw the prescriptions at me and said "all these prescriptions I'm having to write, questions will be asked"!!!

OMG. What a cow!!

The upshot was she said 100 patch is as high as I can go and my eastrogen level is fine post meno (129pmol)  if you are not on hrt. Aaaarggggh!! But I AM on HRT. I argued that my symptoms are not controlled so it obviously isnt enough for me and I said that the level might be o.k post meno in her opinion   but it doesnt address bone health or VA  at that level  (i have read that it needs to be >300.   I Said Its all irrelevant anyway if I'm not absorbing it as it hasnt moved an inch on HRT which  realy needs looking into and that is why I want a referral to specialist meno clinic.

She  gave me a blood test just for eastrogen only. I said what's the point of not doing all the hormones. She grudgingly  added testosterone and then  I brought up the question of SHBG. She was visibly angry with me by this point and snatched the blood  test form back and wrote it on.

Why do they make life so difficult these docs. She acted as if she thinks I'm some sort of hormone junkie!!!

The final straw was the result of recent blood count  iron, b12 and folate are as low as could be without falling below normal. She showed me. There was a fraction of a point in it on each. There is a huge chasm between my level and the highest normal and so she said  I need to supplement.  But...she said "you will have to buy some supplements yourself.. I cant prescribe until they fall a fraction more. Considering I presented today with extreme fatigue and weakness you would think she might have made a connection somewhere and just given me the damn things.

I left so angry, frustrated and tearful.

The only thing that cheered me up was realising the pharmasist has accidentally given me ovestin instead of the estriol she wrote up!! I felt like I'd scored a point!!! But it shouldnt be like that. It shouldnt feel like going into battle every time.

Xx
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Jasmine_2015

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Re: Enough is enough
« Reply #43 on: May 01, 2019, 01:10:51 PM »

TC, my goodness that's absolutely awful. I'm so sorry she was so difficult about everything.
There is absolutely no need for that attitude. Maybe it's worth thinking about seeing a different Gp? You don't need that on top of everything else.
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Ladybt28

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Re: Enough is enough
« Reply #44 on: May 01, 2019, 01:19:19 PM »

Oh Tc....what can I say...I feel a major complaint coming on.  GP's cannot treat their patients that way and get away with it!  You need to get a new doctor or practice even and a complaint needs to go to the practice manager and then to the health trust!
Yep she is a cow and we will all be praying collectively that her menopause is the most awful ever on the planet and she is surrounded by idiots like her when she wants it dealt with!  ;D

At least after the battle you did get estrodot, testosterone and your ovestin (even if it was by accident) I am just praying that it starts to work for you.. 

What really got up her nose was that you knew more than she did but well done for fighting your corner so hard but you're right none of us should have to.  You haven't been taking it wrong, there a people far more experienced than her posting here on the forum and from my own experience as you know, I feel safer with them than any flaming health professional! even a meno consultant.  Don't let her undermine what you think you should try...trust your own judgement you will get there, I'm absolutely positive..it's just a long old haul.   :foryou: xx
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