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Author Topic: Furious about vagifem  (Read 15111 times)

suzysunday

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Re: Furious about vagifem
« Reply #30 on: February 26, 2019, 08:53:02 PM »

How unhelpful of her to keep mentioning your age.  She won't be so keen on natures course when she's 60 with a sore vagina.
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Tc

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Re: Furious about vagifem
« Reply #31 on: February 26, 2019, 08:55:39 PM »

She wont. And I bet shell want to use vagifem more than once a week!!
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Katymac

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Re: Furious about vagifem
« Reply #32 on: February 26, 2019, 08:58:09 PM »

I remember my grandad going to see the GP becasue he was struggling with his golf game (in his late 70s)
He said he was having a problem with his knee - the GP said "Well Mr Mac, you have to expect some wear & tear at your age"  My grandad replied "well the other one is the same age and it's fine....." so a referral to a specialist


It's different for men!

Every appointment is a battlefield!
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Maryjane

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Re: Furious about vagifem
« Reply #33 on: February 27, 2019, 07:50:43 AM »

This makes me 😡😡😡 I Amon twitter quite a lot as I have gone very public with my VA, I also have a very noisy gynae on twitter who is 🤦‍♀️about this kind of attitude. ( she's a medico legal gynae also).

Can I use extracts of your conversation please to hopefully get a conversation going ? It's no different to here a “public” place but anonymous unless me 🙄.

Using vagifem twice a WEEK is the equivalent to ONE HRT pill a year I say no more as it's been said.

Also how doesn't she know you don't have lichen sclerosus? These doctors with x-ray eyes are 👍 amazing. 🤦‍♀️🙄😫
« Last Edit: February 27, 2019, 08:12:16 AM by Maryjane »
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Maryjane

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Re: Furious about vagifem
« Reply #34 on: February 27, 2019, 08:24:37 AM »

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Tc

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Re: Furious about vagifem
« Reply #35 on: February 27, 2019, 11:10:41 AM »

Interesting link. Thank you maryjane.
Yes you may use quotes anonymously hope it helps raise awareness. Be interesting to see what the qynae on Twitter thinks. Here's a summary of how I see the issue

My doc says that's the way they use it in her clinic . Once a week.
Shes is using the "lowest effective dose" reason. . But the manufacturer clearly states twice weekly.
How does she know once a week is an effective dose? Where is her evidence of this?
.
.( I wonder if any other clinics prescribe it once a week.ive not heard of it on here)

Her issue which she clearly stated is that she doesnt believe women on systemic HRT should need to take any  other form of eastrogen as the systemic E will "sort out" the VA at the right dose.and  she stated an ncreased risk of thickening of endometrium and  cancer. From the local preparations.

Her thinking  is clearly at odds with the NICE guidelines but she knows she cant refuse vagifem (,if there are no contra indications) so she gives it in an ineffective dose. That is highly unethical.

She also wanted to stop estriol for my  external VVA. Even though her colleague who examined me 3 months earlier and diagnosed me stated in writing that I should apply some to the outside.area and it has helped.

You know what I find incredible maryjane.?
In this same appointment she was happy for me to increase eastrogel from 4 pumps to 6 pumps a day.  1.5mg of extra estradiol each day absorbed systemically. Yet she freaks out about local vaginal eastrogen with its.very low dose and negligible systemic absorption!!

I will not go back to see her. She is not acting in my best interests and her refusal to prescribe treatment correctly and together with the removal of the estriol cream for the vulva (which has helped me ) will have a negative impact on my VVA condition

. I will ask for a copy of her letter to my GP and see exactly what she has put in it. My GP will not prescribe or change any HRT including dosage without consultants consent and I have made her aware of this so she is making life very difficult for me.

Thanks for your interest and keep up the good work.


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Tc

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Re: Furious about vagifem
« Reply #36 on: February 27, 2019, 08:35:21 PM »

Birdy I wasnt absorbing the eastrogel 4 pumps and symptoms and blood tests backed this up. Today I started on estradot 75 patch . So we will see..
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Tc

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Re: Furious about vagifem
« Reply #37 on: February 28, 2019, 06:28:37 PM »

I remember you saying that  birdy. was that when you switched to gel. Your level went up on the eastrogel  didn't it?
I do personally feel blood tests can help us to back up what we are telling the doc about our symptoms and like you found with the everol and I found with the gel if the tests show you are not absorbing at all there is no point continuing with a treatment that is t working for you.
I'm on my second day of estradot. Its my 3rd different hrt  in 6 months!! Oh dear at this rate I'm going to run out of new options pretty quick!!!
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Tc

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Re: Furious about vagifem
« Reply #38 on: February 28, 2019, 08:56:39 PM »

Oh yes thats right you had the lozenge in between. When I first swapped to eastrogel my flushes came back. Interestingly they were the only symptom the femseven sequi seemed to treat.
I've  had terrible sweats last 24 hours but not sure if that's the estradot or the fact that I've come down with some horrible virul lurgy :beaurk:
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Tc

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Re: Furious about vagifem
« Reply #39 on: February 28, 2019, 09:42:22 PM »

Headache, throwing up. Temperature. And such sore chest and throat.
I've got otc  stuff. Lucky for me I could stay in bed today and rest my legs are like lead.
Got my cat cuddled up with me. I think its cos I'm like a furnace shes laying close as possible!!
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Tc

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Re: Furious about vagifem
« Reply #40 on: February 28, 2019, 11:08:20 PM »

Are you feeling better now?
Yes cats seem to love it when you take to your bed dont they?
She is company but I wish she could make a cuppa!!
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Tc

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Re: Furious about vagifem
« Reply #41 on: March 06, 2019, 05:02:42 PM »

Update. Ladies.
I emailed womens health concern about my vagifem debacle I just said what I'd been prescribed and that it wasnt the same as the patient leaflet.

I got a reply from a lady whose name I wont mention but I looked her up and she is a well renowned menopause clinician.
She has stated once a week is not enough. She goes on to quote the correct dose and then says
'It sounds like your doctor needs updating"

I knew my consultant was wrong but now I have something in writing. I've also emailed the manufacturer about the efficacy of one dose per week and collected any other info I have found researching it. I have to say I have not found a single pie e of evidence of it being prescribed once a week.

. I dont see how she can defend her position on this unless she has some evidence that one dose a week works which nobody else knows about.

I'm seeing gp Monday to see if I get anywhere as my main concern is being able to start the treatment which I cant at the moment as I dont have enough  but I am determined to pursue this with the gynae especially as she has stated that this is how she always prescribes it in her clinic so it's not just me that's being failed by her.

Thought you might like to know.
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Lanzalover

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Re: Furious about vagifem
« Reply #42 on: March 06, 2019, 05:54:07 PM »

Thanks for the update Tc Hopefully your GP will be a little more helpful.
Let us know how you get on

Lanzalover x
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Tc

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Re: Furious about vagifem
« Reply #43 on: March 06, 2019, 06:22:38 PM »

Thank you and happy birthdayxxx
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Katejo

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Re: Furious about vagifem
« Reply #44 on: March 06, 2019, 06:57:30 PM »

Update. Ladies.
I emailed womens health concern about my vagifem debacle I just said what I'd been prescribed and that it wasnt the same as the patient leaflet.

I got a reply from a lady whose name I wont mention but I looked her up and she is a well renowned menopause clinician.
She has stated once a week is not enough. She goes on to quote the correct dose and then says
'It sounds like your doctor needs updating"

I knew my consultant was wrong but now I have something in writing. I've also emailed the manufacturer about the efficacy of one dose per week and collected any other info I have found researching it. I have to say I have not found a single pie e of evidence of it being prescribed once a week.

. I dont see how she can defend her position on this unless she has some evidence that one dose a week works which nobody else knows about.

I'm seeing gp Monday to see if I get anywhere as my main concern is being able to start the treatment which I cant at the moment as I dont have enough  but I am determined to pursue this with the gynae especially as she has stated that this is how she always prescribes it in her clinic so it's not just me that's being failed by her.

Thought you might like to know.
Hope thus works for you. I have been using Vagifem a mixture of daily and alternate days for 6 months now and it is working well so far.
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