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[Turkish delight]

Hia ladies!

Thanks for all the help and links you have provided.

Looking at the dosages on scrip(which I took a photo of before filling)gynae did write " thimble full every day/every other day under Testogel, and other items prescribed as I previously said. All handwritten each in a separate line. See link under here.

https://photos.app.goo.gl/k3fLrj34uDCXvSU27

Looking at it again chemist should have given me 28 days of 14 x Utro, doesn't that mean 28 not 14?

Hurdity, thank you so much for looking up these pages and linking them. I have had a look at them, and had a chat with my husband about asking my gp again to be tested for the BRCA1 & 2....yikes! Wish me luck ladies....think I need it. Will keep you posted on this journey, it certainly is a process.

Thanks again guys

D

[Turkish delight]

Hands up if you were me, would you wait to see what the BRCA thing unfolds before carrying on with any bhrt? It could take a while init!

Obv gynae and my gp before him both didn't think about me having a gene test....hm...what to do?!

D

[Turkish delight]

This is the situ I'm looking at in text copy/pasted below from nhs site https://www.nhs.uk/conditions/predictive-genetic-tests-cancer/

"Without looking at the genes of an affected relative first, testing a healthy individual would be like reading through an entire book looking for a spelling mistake without knowing where the mistake is, or if there is a mistake at all.
When there are no affected relatives available, full testing of BRCA1 and BRCA2 may be possible for those with at least a 10% chance of having a genetic fault. This usually means having a very strong family history of early onset breast and particularly ovarian cancer. It takes 4 to 8 weeks to get the result, but this is not fully predictive as a negative test, so cannot rule out that the problem in relatives is due to a different gene."


As I have no mum alive to test from. She had a mastectomy on one boob back in the 70's this was. Sadly her cancer spread from the breast at some stage I don't know much about it tbh as was 13 when she died and lost contact with ppl who did know by the time i was at an age to ask the right questions.

Peace out(for now;))

D

[Turkish delight]

OMG!

I've been picking my older brothers brain and he reminded me that my mums sister died age 35 of some sort of cancer he can't recall. I was age 2 when she died so didn't recall any of that. And he tells me that my mum had a brother which I can't say I knew about either, god knows how I missed that detail. He died in his 40's of brain cancer....bloody el, this isn't looking good is it....I'll say my good byes now lol!

I was so young when my mum died, I just turned 13 and blocked out so many memories and details as a coping mechanism. So everything in my memory is patchy and disjointed.

D

[Ladybt28]

Things are very different now Turkish Delight, treatments, testing etc etc - No saying goodbyes    oh and quit panicking 
otherwise you are more likely to die from the stress hun!! 

We have genetic cardiomyopathy in our family big time!  I dont have it as I "married in" - we have a saying freqently used "you'll be fine, honest, you'll be fine" 

Sending good vibes! xx

[Turkish delight]

Thank you Ladybt, for the good vibes and the sentiment, I'm feeling them load and clear.

I'm not going to worry till I have more reason, life's too short excuse the pun!
I think the few days of oestrogen have chilled me out somewhat, had some decent night sleep for the first time in months, so it's all good.

One good thing is that I have 3 monthly blood tests done covering my inflammation marker ESR and CRP plus kidney and liver function tests due to having ankylosing spondylitis, so they would pick up any changes here I reckon.

D

[Hurdity]

Hi Turkish delight

I'm sorry I didn't want to alarm you by talking about familial risk - but as you brought it up in your first post and also were concerned about the prescription you have been given, I thought it might be helpful. In view of what you have said though, if you would rather know whether you have an increased risk - I think you should note down your family history and do ask to be referred if you can.

Good vibes from me too and yes - defo no goodbyes!!!

Hurdity x

[Turkish delight]

Hurdity my darling, no need to say sorry.

I am grateful for your concern, at the least I will get peace of mind by asking about gene test and at the worst you may have saved my life.

I was getting yearly mammograms up until age 49. If nothing else I'd love to have this extended. I asked the gynae if we could reinstate them to which he said it's not up to him, but for my gp to decide. Gynae said that he would include a request to my doc to start them up again in his letter to gp when he updates gp on our consultation. I'll get a copy too.

D