Please login or register.

Login with username, password and session length
Advanced search  

News:

Mobile version of the Forum Click here

media

Pages: 1 [2] 3

Author Topic: Update on Mirena experience  (Read 7491 times)

Lanzalover

  • Member
  • *
  • Posts: 600
Re: Update on Mirena experience
« Reply #15 on: October 04, 2018, 06:16:30 AM »

Good morning racjen

Hope today is a better day for you.
Please keep posting on here regardless of how you are feeling there's always someone here.

Lanzalover x
Logged

racjen

  • Member
  • *
  • Posts: 1030
Re: Update on Mirena experience
« Reply #16 on: October 04, 2018, 04:35:21 PM »

This morning I came the closest I've come yet to taking an overdose; usually I make myself get up by 8am and dressed by 9 just to keep some routine going, but this morning I simply could not get out of bed I felt so depressed. Realised I was just waiting for my daughters to go out so I could take the stash of pills I can't bring myself to get rid of. But then thank god a tiny sane corner of my brain said 'you promised you'd phone the Crisis Team if you felt like this'. That and another corner of my brain that knows that I only ever get into this state when something's being put into my system that shouldn't be ie antidepressants, sleeping tablets, beta blockers or in this case, the Mirena.

Was then made to promise that I wouldn't stay in the house on my own, so went to a friend and lay on her sofa for a couple of hours. Saw my GP this afternoon - she seems to understand but also seems a bit clueless about what to do about it. The gynaecological referral resulted in this totally inappropriate treatment (I've since discovered that a history of depression is a BIG contraindication for a Mirena, and that depression and nervousness are high up on the list of common side effects),  and I feel that after a year of this kind of extreme reaction I should be being referred to a genuine specialist in sudden and acute menopause symptoms. I did try and make this case and she's going to try and find out what to do next, but surely it's not that  hard?

Has anyone exercised their right under the Patient's Charter to ask to see a particular specialist anywhere in the country? And if I managed to do that, who should I be asking to see? Please don't say Prof Studd because it sounds like all he does is prescribe the same high estrogen low prog regime to everyone and I'm already doing that. Nick Panay seems to come up on here a lot - anybody recommend him?

Getting the Mirena removed tomorrow btw as I feel thoroughly freaked by my reaction - have spent the whole day either crying or lying on the sofa staring into space.
Logged

Kathleen

  • Member
  • *
  • Posts: 4938
Re: Update on Mirena experience
« Reply #17 on: October 04, 2018, 05:01:39 PM »

Hello racjen.

I'm so sorry that you are feeling this way, my heart goes out to you.

I've been following your story and although your symptoms are extreme they are all recognisably menopausal and will resonate with many ladies here.  I certainly know how you feel.

I wish I had the answers for you but a solution must be out there, you surely can't be the first woman to have this distressing experience and I guarantee that you won't be the last.

Hopefully some knowledgeable ladies will be along to advise you but in the meantime sending hugs and best wishes.

Take care and thinking of you.

K.
Logged

racjen

  • Member
  • *
  • Posts: 1030
Re: Update on Mirena experience
« Reply #18 on: October 04, 2018, 06:03:28 PM »

I'm beginning to get the feeling that even the knowledgable ladies are pretty much in the dark here; this has been going on for a year and so far things are getting worse. There seem to be lots of women on here who've had hysterectomy with or without ovary removal, and have a lot of knowledge and experience to share. But chemotherapy menopause seems to be invisible - I can't recall anyone else coming on here to share this experience in the year I've been on this forum. And as far as the medical profession is concerned it just doesn't seem to exist, even though effectively it does exactly the same thing.
Logged

paisley

  • Member
  • *
  • Posts: 942
Re: Update on Mirena experience
« Reply #19 on: October 04, 2018, 06:37:09 PM »

So sorry you are feeling like this. I know what you mean. I have had a full hysterectomy but not for cancer so hence no chemo. There must be someone somewhere who has had a similar experience to you. Don't give up. Answers can sometimes come out of nowhere & even in your darkest hour there can be a change. I am sure there is an answer out there for you. Only last week I couldn't stop crying & felt so down but this week is a different story. Before my hysterectomy progesterone made me totally crazy. Thinking of you. Xxxx
Logged

Optimist

  • Member
  • *
  • Posts: 210
Re: Update on Mirena experience
« Reply #20 on: October 05, 2018, 07:29:16 AM »

Hi Racjen, I found this on one of Dr Nick Panay's info sites.
“Severe menopausal depression may also follow a history of premenstrual syndrome (PMS) and postnatal depression; this triad may be referred to as hormone dependant depression. In these instances the patient's clinical history adds strength to and confidence in the prescribing decision.

Misunderstanding of the distress experienced by women at this time could be a result of fears around HRT risks.”

https://www.guidelinesinpractice.co.uk/womens-health/top-tips-hormone-replacement-therapy/352771.article

This is the link. It doesn't go into detail about your issues but he may be a good specialist to start with.

I remember reading an article around severe PMDD and how hormone replacement therapy stopped the young woman from harming herself.
She also had a hysterectomy and was prescribed oestrogen only Hugh dose which helped her lead a normal life again. Extreme but necessary in her case. Sorry I can't find the article to show you.

This is a recognised severe symptomatic hormonal depression that doesn't stop at menopause for some women.
 
I hope you feel better after having your coil removed and I hope you find some peace with your symptoms being controlled with the right help.

Keep reaching out in your darkest moments xx
Logged

NorthArm

  • Guest
Re: Update on Mirena experience
« Reply #21 on: October 05, 2018, 08:16:06 AM »

Racjen

 :bighug:
Logged

sweettooth

  • Member
  • *
  • Posts: 650
Re: Update on Mirena experience
« Reply #22 on: October 07, 2018, 01:30:31 AM »

Racjen, so sorry to read that you are still suffering.  I just want to say that my experience of the Mirena was not good!  After about 2 to 4 weeks on it, I had to insist it be removed as I was feeling so depressed like a dark hole and this was even whilst using estrogen! Lady Doctor said there was such a tiny amount of progestogen in Mirena that I should be ok and she was reluctant to remove it after such a short time but I knew it had to come out

If you know that you are getting worse since having Mirena fitted please speak to your GP asap!!

God bless xx
Logged

racjen

  • Member
  • *
  • Posts: 1030
Re: Update on Mirena experience
« Reply #23 on: October 07, 2018, 07:16:04 AM »

I had it removed after 3 days - it was that bad. These doctors need to read the leaflets that come with these things, it clearly states that a side effect can be depression and nervousness.
Logged

Hurdity

  • Member
  • *
  • Posts: 14076
Re: Update on Mirena experience
« Reply #24 on: October 07, 2018, 08:23:56 AM »

Sorry to hear you were feeling so bad after the Mirena insertion racjen.

Lady Doctor said there was such a tiny amount of progestogen in Mirena that I should be ok and she was reluctant to remove it after such a short time but I knew it had to come out


In terms of systemic absorption - doctors are quite misleading when it comes to the Mirena and I have posted about this before. The Mirena was designed first for contraception and was promoted as giving minimal systemic absorption COMPARED TO TABLET FORMS OF CONTRACEPTION CONTAINING THE SAME PROGESTOGEN. However I did a comparison a while back and looked up the systemic levels in the body- which do vary over time with the Mirena - but on average very roughly the amount of absorption was approx equivalent to eg a Femseven patch used for HRT - at least in the same ball-park as they say. So if you are progesterone intolerant then it could easily be the case that you would react to the Mirena. I don't know why this is not pointed out more.:-\  Many women are fine with it but it is a fallacy to lead women to believe there is no or almost no systemic absorption because this is only the case by comparison.  Of course it's worth trying as with other HRT types but women need to be fully informed at the outset.

Hope you are feeling better today racjen....at least the sun is shining (hopefully where you are too!).

Hurdity x
Logged

paisley

  • Member
  • *
  • Posts: 942
Re: Update on Mirena experience
« Reply #25 on: October 07, 2018, 10:52:09 AM »

Racjen,
All progesterone maked me feel crazy. You aren't alone.
Hope you are feeling a bit better. Xx
Logged

racjen

  • Member
  • *
  • Posts: 1030
Re: Update on Mirena experience
« Reply #26 on: October 07, 2018, 12:05:26 PM »

Hurdity, that's really interesting and makes a lot of sense, can't believe I'd have reacted so strongly if it really was SUCH a tiny amount. The gynaecological consultant I saw said that there's such a tiny amount in it that it barely reaches the brain at all! In which case why are there side effects like depression and nervousness listed in the info leaflet?

Had it taken out Friday afternoon, spent all of yesterday with that awful familiar withdrawal feeling (in fact was on the sofa watching crap with my daughter all day, couldn't do a thing). Today I'm bleeding and starting to feel a bit better, have done a bit of gardening and going out for a walk in a while, in the sun. But it still leaves me with the ongoing problem which is making my life a complete misery and no-one seems to have any answer to (or even seems to care that much)  :'(.
Logged

BlueButterfly

  • Guest
Re: Update on Mirena experience
« Reply #27 on: October 08, 2018, 01:21:38 AM »

Racjen,

I'm sorry you still aren't feeling well but very happy that you are better than you were!! Hopefully that sunshine gave you some happy hormones! I hope you continue to improve with the depression!
Logged

Lanzalover

  • Member
  • *
  • Posts: 600
Re: Update on Mirena experience
« Reply #28 on: October 08, 2018, 06:20:00 AM »

Good morning ramen

Pleased to hear that you have managed to have the mirena removed and pleased to hear you are feeling slightly better hope this is still the case.
Have you thought about seeing Louise Newson regarding your problems she seems to be highly thought of re menopause problems and I'm sure there are some ladies on here who have seen her.
She has a couple of web sites so it might be worth having a look.

Good luck and hoping today is a better day for you.

Lanzalover x
Logged

NorthArm

  • Guest
Re: Update on Mirena experience
« Reply #29 on: October 08, 2018, 07:42:18 AM »

I hope you're having a better day today Racjen xx
Logged
Pages: 1 [2] 3