Please login or register.

Login with username, password and session length
Advanced search  

News:

Follow us on Twitter and Facebook

media

Author Topic: Should I complain?  (Read 2296 times)

Mary McB

  • Guest
Should I complain?
« on: August 23, 2018, 05:30:52 PM »

Hi

First time posting although I have often turned to the forum to read how others are getting on and was even moved to tears on one occasion to reading one woman's experience of an increased body thermostat - not having flushes per se, I began to think I was going mad!

I have joined the forum now as I have a specific issue which is confusing me  - any advice or guidance will be well-received.

Last summer I mentioned my dysfunctional body thermostat to my lovely (female) GP who prescribed Femoston-conti 1 x 0.5mg/2.5mg daily. It was life-changing. I could wear what I liked and had a new lease of energy and confidence. I told anyone who would listen that HRT was magical! And then the bleeding began - on and off, a few days per month. I returned to the GP almost begging her not to take me off it and reassuring her that my research (the MM website) led me to believe that it was relatively 'normal' for the first six months. When we got to the six-month review, I declared the bleeding over with one last lengthy bleed. For a few months life was good and then in April (the 8-month stage), it recommenced and I was referred to a consultant. By the time I attended the consultant's clinic in July, I was feeling quite down - not only was I bleeding every few weeks (no rhyme or reason - it just happens), but I was also constantly tired, totally lacking in energy and my thermostat was more dysfunctional than ever. I get up and go had got up and scarpered!

The junior doctor that I saw was kind, compassionate and thorough. She examined me and explained that she could go no further on that occasion as I would need to have a local anaesthetic - she said that the procedure would be too painful for me. She went to ask the consultant's advice about my medication and he replied that I should double the dosage as the current prescription was 'little more than homeopathic'.

This I did and whilst there was some improvement in my not being so hot all of the time, the bleeding continued.

When I attended last week for a hysteroscopy, I was pleased to hear that it was being carried out by the consultant. He spoke to me just prior to the procedure when I asked if it was possible that the oestrogen in the HRT was causing the bleeds - he said we would know more after the procedure. I then asked about the local anaesthetic and he said that he would "see "if I needed it. This concerned me me as the registrar was very clear that it would be too painful without.

In short (I really do not want to re-live what happened), it was the most excruciating pain I have ever experienced and I have given birth twice. I wqs offered gas and air after I had screamed while he carried on despite me asking him to stop. The hysteroscopy was not completed and instead a cervical biopsy was taken. I was too shaken to really know what was going on.

In the recovery room, when I asked for painkillers, I was given  two paracetamol. When the consultant came to see me, I stupidly and in confusion apologised (for screaming) saying "I'm sorry, I don't know what happened" To which he replied, "No, neither do I." Consequently I felt a thousand times worse. he said I had three choices:

1. Carry on with current HRT but also take mini pill to help prevent bleeding
2. Change to one with progesterone (to help prevent bleeding)
3. Stop HRT all together

I am left feeling upset and confused. I really don't know what to do. I have'nt had the procedure that was originally considered necessary - will the biopsy alone give the answers?  As to which HRT is best for me - I have no idea!

Apologies this is so long-winded - a symptom of my utter confusion and anger - why didn't he just give me the anaesthetic in the first place?

Hoping someone can help
Mary
Logged

Tiddles

  • Guest
Re: Should I complain?
« Reply #1 on: August 23, 2018, 05:43:26 PM »

OMG, this is appalling Mary!  Yes,  you MUST complain!

A similar thing happened to me in that I had a very painful, rushed and bodged womb biopsy which saw me pass out from the pain.  Once I had recovered from passing out I was so dstressed I just wanted to get out of the hospital and because I was so focused on getting HRT ( the doctor insisted I had months of tests to rule out anything else before he would prescribe it) I decided I didn't have the energy or appetitite to complain.  Eight months later I now wish I HAD complained.  I should not have been put through that pain without anaesthetic and neither should you.  It's disgusting the way we are treated in matters relating to menopause.  There seems to be a view that because we've reached a certain age, we've lost all feeling from the waist down.

I would completely understand if you didn't feel up to complaining but if you do, you should.  You have been treated very, very badly.

Love and hugs to you xxx
Logged

CLKD

  • Member
  • *
  • Posts: 78907
  • changes can be scary, even when we want them
Re: Should I complain?
« Reply #2 on: August 23, 2018, 07:04:49 PM »

I would make an appt. with the Consultant and explain how shocked you have felt about it all.  Also contact the Anaesthetist, if you had been told that an LA was required then it is abuse not to listen to the patient.

"know more after the procedure" and "see" whether you required it ......... obviously not listening!

Put the HRT you have been given into the search box here and see what pops up.
Logged

CLKD

  • Member
  • *
  • Posts: 78907
  • changes can be scary, even when we want them
Re: Should I complain?
« Reply #3 on: August 24, 2018, 04:17:21 PM »

You could contact the "PALS" or equivalent group at your Hospital.  They liaise between patients and Staff and can look at patient notes to see what was actually suggested if written down.  They can also speak about problems with the Staff concerned.  They were really helpful at King's Lynn a couple of years ago. 
Logged

Mary McB

  • Guest
Re: Should I complain?
« Reply #4 on: September 21, 2018, 12:18:31 PM »

Dear Tiddles, CLKD and Sparkle

Thank you SO much for your kind words, shared experiences and advice. I am so sorry that it has taken me this long to reply but my youngest daughter came home shortly after I posted on here, in preparation for her wedding on 1st September and I kind of blocked this out - so as to focus on happy things  :)

Taking your advice and experiences into account, I have since raised a 'concern' which is being dealt with by the hospital's dedicated concerns team. In essence I have listed 7 questions that I want the consultant to answer. I decided against requesting a meeting with him as I felt I wouldn't get very far - to say his communications skills were poor, would be an understatement. I have however agreed to meet with the sister in charge of the ward to discuss how changes could be implemented so that hopefully other patients won't have this experience.

I saw my lovely GP recently to discuss HRT options, determined not to discuss the experience at the hospital. However she wanted to know what I thought of the consultant as she had never met him. When I told her that I had raised a concern, she was totally supportive and told me that she knew of women who had passed (like you Tiddles) and of another who had described the procedure as 'torture' - not one had been offered local anaesthetic. This really isn't right so I will continue to do my little bit in the hope that someone, somewhere listens.

Right now I am off HRT completely so my body thermostat issues have returned  :'( and my mood is low. I will be seeing my GP again on 2nd October to try and determine what to try next.

I had no idea these years would be this hard

Love and hugs to you all and again, many thanks for replying

Best wishes
Mary xxx

Logged

CLKD

  • Member
  • *
  • Posts: 78907
  • changes can be scary, even when we want them
Re: Should I complain?
« Reply #5 on: September 21, 2018, 02:51:22 PM »

Did you wear a large flowery hat ?  ;) .......... today it would be blown in2 the next County  ;D

Hopefully your GP will refer ladies elsewhere!  Let us know if your 'concerns' get anywhere, and if the Ward Sister is supportive.  Sometimes it is difficult for Staff to raise issues within a team but if patient/s start muttering  ;)

Do you keep a mood/food/symptom diary?  Some find it useful.
Logged

Mary McB

  • Guest
Re: Should I complain?
« Reply #6 on: September 21, 2018, 05:49:20 PM »

Thanks Sparkle - I do indeed intend to hang on to this GP!

CLKD, I will report back - will be interesting to see what, if anything, happens.

I've started keeping a mood and symptom record but actually including food is a great idea - will incorporate as i have no doubt my currently 'comfort-eating diet' isn't helping.

On a lighter note, I did wear a hat  ;) well actually a hatinator  ;D Think even that might have taken flight today.

Again many thanks for your support and interest

Best wishes
Mary x
Logged

CLKD

  • Member
  • *
  • Posts: 78907
  • changes can be scary, even when we want them
Re: Should I complain?
« Reply #7 on: September 21, 2018, 07:10:45 PM »

I have comfort food but I eat well most of the time  ;)
Logged

NorthArm

  • Guest
Re: Should I complain?
« Reply #8 on: October 09, 2018, 06:56:17 AM »

Hi Mary McB

I'm so sorry you had to go through that 😞 That consultant sounds like an a**e!

How are things with you now?
Logged