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Author Topic: Not Coping Well At All  (Read 4756 times)

Infinity9

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Not Coping Well At All
« on: June 04, 2018, 03:51:04 PM »

Thanks again for accepting me on to the forum. I'll try to post as short as I can but it will be quite lengthy.

I'm 52 years old and I believe I've been in Perimenopause for several years but the last 2 to 3 have been the most prominent. I've had many of the symptoms, everything from facial flushes to insomnia. Two years ago, I decided to do something about my physical health and today I am proud to say that I've lost just over 8 stone and have reversed my Type 2 Diabetes. Generally I feel amazing and can leap about like a twenty something year old normally but my anxiety is getting me down.

I couldn't possibly go to the doctors every time there is something that worries me but I'm so confused sometimes that I don't know what to do. My periods became very spaced apart last year. I'd go for months without one. I've had a Mirena Coil fitted since 2012 that is due to be replaced in 2019. I've never fully stopped bleeding but given how severe my periods were, (and the fact I've not even used a tampon since the coil was put in), my menstrual cycles are a breeze, relatively speaking. My periods were so bad that sometimes I would have to use 3 super plus tampons only to have to change them an hour/hour and a half later so basically it's never been an easy ride for me.

Even now, when I've had a period, I bleed a little everyday for up to two weeks sometimes but I'd stopped getting the symptoms telling me that my menstrual cycle was coming. About 6 weeks ago, my breasts started with the tenderness again and I get a tightness in breathing that my Ventolin Inhaler takes off. I recognised what this meant and was surprised as I've barely touched an Inhaler in a few years now.

Typically, so many days or a week later, I started to bleed. I got a little lower back pain and have had cramps sometimes that I've not had in years but again, these are symptoms I've had before. The first bleeding was darker. After a few days, it stopped but within days, (not weeks as before when my cycle was the norm for me), my breasts got tender again and the tightness in breathing was there. And again, several days/ a week later I bled again. After a week/10 days, I stopped. The breast tenderness came back about a fortnight ago and I bled again but the bleeding was lighter coloured this time. My breasts are still on the tender side, but not as much and after a week, this Sunday, I started to bleed heavier..like it has been since I've had the Mirena Coil fitted. I have some tiny clots but nothing big.

This has sent my anxiety over the edge. All day, everyday, it is on my mind. I'm terrified that it's something darker that's happening and I don't know what to think anymore. I'm so scared that something is really wrong and yet to get to the doctors surgery sends me into a panic. A friend of mine was similar to me several years ago when she went through the Perimenopause and she helps to calm me down. My mind though, is all over the place through nothing but fear.

Has anyone felt this bad? And even though I know you can't diagnose me, is this sometimes normal in this stage of our lives?

I've said a few times recently that I'd rather have periods forever than watch my poor body go through this. It's hell some days and the rational me is overtaken by the pessimist and negative me. I've worked so hard to become healthier and I just don't want to panic all the time anymore. It isn't easy though.
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Daisydot

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Re: Not Coping Well At All
« Reply #1 on: June 04, 2018, 04:09:04 PM »

Hi Infinity9  :welcomemm:
I have no expertise in your area I'm afraid but I just wanted to say hello and tell you I think your coping very well considering.
Congratulations on the weight loss what an achievement and even better reversing the type 2 that's a mammoth achievement so don't shoot your self down be proud.
Some of our more knowledgeable ladies will come along and advise you I'm sure so meantme keep reading and posting and well done again xx
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Infinity9

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Re: Not Coping Well At All
« Reply #2 on: June 04, 2018, 05:22:15 PM »

Hi Infinity9  :welcomemm:
I have no expertise in your area I'm afraid but I just wanted to say hello and tell you I think your coping very well considering.
Congratulations on the weight loss what an achievement and even better reversing the type 2 that's a mammoth achievement so don't shoot your self down be proud.
Some of our more knowledgeable ladies will come along and advise you I'm sure so meantme keep reading and posting and well done again xx

Hi Daisy, thank you for the welcome x. Sometimes you feel very alone with things like we are going through so it's nice to have a place to come to, where people understand it.

And thank you for the congratulations too. I was never overweight but my love of the sweet things ruled my life for several years. I can't tell you how different it feels now and reversing the Type 2 Diabetes was the cherry on top. I've surprised the doctors and nurses at our surgery who deal with the Diabetes Clinics in a positive way and that made me feel even happier. If anything, my bloods are sometimes now too low but fingers crossed everything is okay and to feel so different is wonderful.

Thanks again Daisy. As you say, hopefully some of the knowledgeable ladies will post here. Knowing so many others feel similar or the same helps xx  :-*
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Taz2

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Re: Not Coping Well At All
« Reply #3 on: June 04, 2018, 05:37:47 PM »

Hi Infinity9 - well done from me too!!

I see that you have had the Mirena in since 2012 and should be replaced in 2019 but, although I've never had one myself, I thought they lasted five years not seven? If so then I would think there is no more hormone left in the Mirena and your own cycle is now re-establishing itself.

In peri meno it is usual to have bleeding such as you describe. Periods can come more often or not so often and then the whole pattern can change again. They can last for a day or two or six weeks or more and all is considered normal due to the changing amount of hormone throughout the month. If you have bleeding after a year without - and you are not on any hormone therapy - or you have bleeding after sex then it does need to be checked out. If you got on well with the mirena why not have another one -that is if I'm right and they do last five years - and you could add in some oestrogen either in the form of patches, pills or gel, which should make you feel better.

Dancinggirl has a lot of knowledge of the Mirena and oestrogen gel and I'm sure she will be along soon to advise you.

Taz x  :welcomemm:
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jillydoll

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Re: Not Coping Well At All
« Reply #4 on: June 04, 2018, 06:20:19 PM »

Hi infinity9

Welcome to the forum.
I have to say, what an achievement, losing all that weight, and even better
getting rid of the diabetes, well done you.  :congrats:

I'm sure someone will come along soon to help with your problems, but please remember
you're not alone, you can always come on here and vent anything you like, we're always
here......
Good luck,

Jd x

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Infinity9

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Re: Not Coping Well At All
« Reply #5 on: June 05, 2018, 01:31:05 PM »

Hi Infinity9 - well done from me too!!

I see that you have had the Mirena in since 2012 and should be replaced in 2019 but, although I've never had one myself, I thought they lasted five years not seven? If so then I would think there is no more hormone left in the Mirena and your own cycle is now re-establishing itself.

In peri meno it is usual to have bleeding such as you describe. Periods can come more often or not so often and then the whole pattern can change again. They can last for a day or two or six weeks or more and all is considered normal due to the changing amount of hormone throughout the month. If you have bleeding after a year without - and you are not on any hormone therapy - or you have bleeding after sex then it does need to be checked out. If you got on well with the mirena why not have another one -that is if I'm right and they do last five years - and you could add in some oestrogen either in the form of patches, pills or gel, which should make you feel better.

Dancinggirl has a lot of knowledge of the Mirena and oestrogen gel and I'm sure she will be along soon to advise you.

Taz x  :welcomemm:

Hi Taz and thank you very much. I can't believe just how much weight had really affected me physically and just feeling like I do is amazing.

I thought the same as you with the Mirena Coil but I have a card that says 2019. The surgery wanted me to have it replaced as a contraception last year but didn't mention the hormone side of the coil itself so I'm confused to be honest. I did wonder if my cycle is now reverting back to what it had been all my life while menstruating and I think the reason why I've bled a little while having the coil is because my periods were so heavy, that there was bound to be some bleeding.

When I'm not having a period, my rational head tells me that next time, NOT to get into such a panic about it but as soon as I start one, (especially like this), I freak out and go into meltdown. I won't Google anything anymore as sometimes just looking for something simple can bring up things that scare me. I'm so glad there are places like this out there now and your words have been comforting. My friend that I mentioned has been amazing for me and being among like minded people like you is brilliant. I've been fortunate too in that my sex drive has come back in a wonderful way, (poor hubby lol I don't know how he keeps up), and then something like this happens. But I really would rather have periods monthly forever and keep our much needed hormones than go up and down like this both mentally and physically.

Thank you for letting me know about Dancinggirl. Fingers crossed her knowledge will help me. I appreciate this xx  :)
« Last Edit: June 05, 2018, 01:33:05 PM by Infinity9 »
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Infinity9

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Re: Not Coping Well At All
« Reply #6 on: June 05, 2018, 01:37:54 PM »

Hi infinity9

Welcome to the forum.
I have to say, what an achievement, losing all that weight, and even better
getting rid of the diabetes, well done you.  :congrats:

I'm sure someone will come along soon to help with your problems, but please remember
you're not alone, you can always come on here and vent anything you like, we're always
here......
Good luck,

Jd x

Hi Jilly and thank you to you too. I thought that losing the weight would help my Type 2 Diabetes but to reverse it was fantastic. I keep saying to my hubby that I wish he could see the doctors and nurses when I go to see them. I've never flummoxed anyone medical like this before and I must admit it makes me feel special.

And you guys have already made me feel very welcome and not alone in how I feel. I am so fortunate to have married an amazing man nearly 31 years ago now. He's so supportive and understanding. Even though he's not a lady going through this, he's there for me to listen when I rant and vent or just simply sob because of how I feel. It's lovely to know my venting will be okay here. Thank you xx  :)
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Hurdity

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Re: Not Coping Well At All
« Reply #7 on: June 05, 2018, 07:20:42 PM »

Hi again Infinity9 - I've welcomed you on your introductory thread and asked a couple of questions!

Well done on the weight loss :medal: !!!! That is absolutely fantastic and to reverse the Type 2 diabetes - yes I think this happens quite a lot in similar circumstances. In fact the other day there was one of these health/weight loss programmes on TV ( this one was looking at crash diets and the science behind them). One of the guys taking part was very overweight vicar (all the participants were obese) who also lost a huge amount of weight and reversed his Type 2 diabetes as you did so hopeful for anyone in a similar position!!! 

As Taz says the Mirena should have been replaced after 5 years for contraception and it has been this for as long as I've been posting on here  but maybe it used to be 7 years ( can't find the info though!). It probably won't have actually run out of hormones, but just not giving out sufficient to fully protect you re contraception - bit like use by dates on food - it's not going to be OK to eat one day and then off the next. Ditto Mirena - it's not going to be full of hormones one week and they're all gone the next - there is a gradual decline in how much trickles out over the months and years. Not sure when it actually runs out completely though....?

In terms of your periods - because the Mirena either makes them much lighter or stops them completely - you can't tell whereabouts exactly in menopause you are unless you actually have it removed and do nothing for a few months - which in your position re bleeding you might not want to do - or perhaps you will find it's not much heavier than you are getting now as the progestogen in the coil will be getting low? Yes I agree with Taz - the reason for your increase in bleeding is most likely your cycle re-establishing itself hence the heavier bleeding.

It is still definitely worth running this all past the doctors and tell them you are concerned about the bleeding just in case they want to check you out but from what you say the symptoms sound like typical pms with the breast tenderness? Then have another coil put in if this is what you want?

I've just thought that if you have a Mirena prescribed just to control bleeding then maybe 7 years is the normal time - but for contraception it's 5 and HRT it's 4 - although I still didn't find anything on the web ( but probably didn't look for long enough!!).

Anyway all the best - and if you start to get flushes por sweats then you can add an oestrogen patch or gel to the Mirena coil and that may well also help with the anxiety too :)

Hurdity x
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Infinity9

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Re: Not Coping Well At All
« Reply #8 on: June 06, 2018, 06:20:14 PM »

Hi again Infinity9 - I've welcomed you on your introductory thread and asked a couple of questions!

Well done on the weight loss :medal: !!!! That is absolutely fantastic and to reverse the Type 2 diabetes - yes I think this happens quite a lot in similar circumstances. In fact the other day there was one of these health/weight loss programmes on TV ( this one was looking at crash diets and the science behind them). One of the guys taking part was very overweight vicar (all the participants were obese) who also lost a huge amount of weight and reversed his Type 2 diabetes as you did so hopeful for anyone in a similar position!!! 

As Taz says the Mirena should have been replaced after 5 years for contraception and it has been this for as long as I've been posting on here  but maybe it used to be 7 years ( can't find the info though!). It probably won't have actually run out of hormones, but just not giving out sufficient to fully protect you re contraception - bit like use by dates on food - it's not going to be OK to eat one day and then off the next. Ditto Mirena - it's not going to be full of hormones one week and they're all gone the next - there is a gradual decline in how much trickles out over the months and years. Not sure when it actually runs out completely though....?

In terms of your periods - because the Mirena either makes them much lighter or stops them completely - you can't tell whereabouts exactly in menopause you are unless you actually have it removed and do nothing for a few months - which in your position re bleeding you might not want to do - or perhaps you will find it's not much heavier than you are getting now as the progestogen in the coil will be getting low? Yes I agree with Taz - the reason for your increase in bleeding is most likely your cycle re-establishing itself hence the heavier bleeding.

It is still definitely worth running this all past the doctors and tell them you are concerned about the bleeding just in case they want to check you out but from what you say the symptoms sound like typical pms with the breast tenderness? Then have another coil put in if this is what you want?

I've just thought that if you have a Mirena prescribed just to control bleeding then maybe 7 years is the normal time - but for contraception it's 5 and HRT it's 4 - although I still didn't find anything on the web ( but probably didn't look for long enough!!).

Anyway all the best - and if you start to get flushes por sweats then you can add an oestrogen patch or gel to the Mirena coil and that may well also help with the anxiety too :)

Hurdity x

Hi Hurdity. Thank you for the welcome. I will go and have a look at your post when I've posted here.

I thought it wasn't a rare achievement to reverse Type 2 Diabetes but it seems that it's unusual at the very least. My husband believes that our surgery hasn't seen this before, or maybe not done so quickly. Their reactions are nothing less than surprised and amazed. One doctor wants to use my particular case in a student class concerning Diabetes and I was more than happy to agree. It just shows how much sugar I ate, even at 1.00pm, 2.00pm and 3.00pm in the morning some nights. My body craved it and I was addicted. I still have chocolate, as a rule, everyday with my main meal but nothing on the scale that I used to eat it.

What you and Taz have said makes a lot of sense and I think that my Mirena has needed replacing for a while. As you say, use by dates on food don't just change at midnight going into the next day. It's a gradual decline in how it happens. I can't praise the coil enough because my periods were so bad that some days I couldn't even leave the house. I did think that 7 years was a long time but I've gone along with what our surgery has said and I do believe that the coil has had to work hard to stop me bleeding like I did.

I do want another coil fitted as I can't go through the bleeding again like it used to be. One worry though is that if my periods are so hit and miss usually, how will they be able to fit one comfortably? I know they prefer to do it when you're having a period and I assume it's because it's easier to take out and fit? But if I don't have one, the bleeding could come back. It's a bit of a catch 22 really.

I've been using Vagifem pessaries with the coil but one of our doctors gave me HRT to use. I haven't used it though as two of the side effects are gaining weight and hair loss and both of these possible side effects scare me. I need to have a chat again with her. Thanks again Hurdity xx  :-*

« Last Edit: June 06, 2018, 06:24:10 PM by Infinity9 »
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Tempest

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Re: Not Coping Well At All
« Reply #9 on: June 07, 2018, 04:56:29 PM »

Welcome, Infinity9! I know you'll receive some valuable help and support here, but I just wanted to congratulate you on your amazing achievement.  :) xxxx
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Hurdity

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Re: Not Coping Well At All
« Reply #10 on: June 07, 2018, 05:08:30 PM »

Which HRT were you given Infinity9? If you have another Mirena fitted then as we have said you can choose whichever oestrogen you like to go with it - instead of taking the combi HRT (presumably) that you have been given?

I would take advice from the clinic re the fitting and make an appointment and chance it. Sorry I don't know about the bleeding - and fitting - but hopefully someone else can give you their experience of this?

I hope you get it sorted soon!

Hurdity x
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Kathleen

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Re: Not Coping Well At All
« Reply #11 on: June 07, 2018, 06:22:36 PM »

Hello Infinity9 and welcome to the forum.

Congratulations on your weight loss and reversing your diabetes, definitely an achievement to be proud of.

I completely understand your health anxiety regarding your periods. I have something similar in that I've had IBS type issues since age nineteen which included diarrhoea at period time. I have always had a fear of soiling myself and this created a lot of anxiety. About eight years ago I was diagnosed with Ulcerative Colitis which is an auto immune disease and a few months later I had my last period and my meno symptoms really kicked in. I now have horrible gut issues when I'm anxious which makes me more anxious but I can't shake the fear that my UC is returning and I'm about to have an accident and embarrass myself. My logical brain knows that this is unlikely, especially as I have been in total remission for years and my digestive system is behaving normally.

I hope you can find a way to deal with your worries and if you learn any tricks please pass them on lol. Health anxiety is a frequent topic on the forum so you are not alone.

Wishing you well.

K.
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Infinity9

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Re: Not Coping Well At All
« Reply #12 on: June 08, 2018, 12:09:36 PM »

Welcome, Infinity9! I know you'll receive some valuable help and support here, but I just wanted to congratulate you on your amazing achievement.  :) xxxx

Hi Tempest and thank you so much. It is a lovely forum with lots of advice and support. I am proud of myself for what I've achieved and I had to do it. Being so overweight is no good for anyone and I'm absolutely thrilled that I reversed my Type 2 Diabetes. I'm happy that the doctors and nurses and pleased too xx  :)
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Infinity9

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Re: Not Coping Well At All
« Reply #13 on: June 08, 2018, 12:14:09 PM »

Which HRT were you given Infinity9? If you have another Mirena fitted then as we have said you can choose whichever oestrogen you like to go with it - instead of taking the combi HRT (presumably) that you have been given?

I would take advice from the clinic re the fitting and make an appointment and chance it. Sorry I don't know about the bleeding - and fitting - but hopefully someone else can give you their experience of this?

I hope you get it sorted soon!

Hurdity x

I'll have to double check Hurdity but I think it was Estradiol in patches to make it easier to tolerate? My doctor gave it with me to combine with the Mirena Coil and I think it was one reason that she wanted my coil changed. Something to do with the progesterone being stronger I believe.

Yes I'll chat with a doctor concerning the coil change. Fingers crossed, it works like last time as I didn't feel anything when it was inserted. I can't bleed like I was again. I honestly don't know how I got to my forties without something like a coil. As one of our doctors said though, when I asked one time..people have different tolerance levels. Mine must be a good one.

Thanks again for the help Hurdity xx.
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Infinity9

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Re: Not Coping Well At All
« Reply #14 on: June 08, 2018, 12:24:40 PM »

Hello Infinity9 and welcome to the forum.

Congratulations on your weight loss and reversing your diabetes, definitely an achievement to be proud of.

I completely understand your health anxiety regarding your periods. I have something similar in that I've had IBS type issues since age nineteen which included diarrhoea at period time. I have always had a fear of soiling myself and this created a lot of anxiety. About eight years ago I was diagnosed with Ulcerative Colitis which is an auto immune disease and a few months later I had my last period and my meno symptoms really kicked in. I now have horrible gut issues when I'm anxious which makes me more anxious but I can't shake the fear that my UC is returning and I'm about to have an accident and embarrass myself. My logical brain knows that this is unlikely, especially as I have been in total remission for years and my digestive system is behaving normally.

I hope you can find a way to deal with your worries and if you learn any tricks please pass them on lol. Health anxiety is a frequent topic on the forum so you are not alone.

Wishing you well.

K.



Hi Kathleen and thank you and for the welcome.

I feel sorry for you. A friend of mine had something similar and she was in agony so I can understand your fear of it coming back. Fingers crossed though, it doesn't and it sounds like you're doing everything to prevent that.

I also have an autoimmune condition called Hidradenitis Suppurativa. I get abscesses in my groin, creases of my legs and have had them under both arms. Two have had to be medically lanced and treated and they're directly linked to my hormones. In the weeks before a period, several would flare and usually one had to burst a few days before my period. They're agony and you can't walk, raise your arms and do much at all depending on where they are and they wear you down. I'm hoping that once I'm through the Perimenopause, they will stop altogether, or at least be very infrequent. HS also causes anxiety because I'm scared that an abscess may go wrong and they do make you feel ill sometimes. The very nature of this condition means you have to be careful. It's amazing how hormones can play a part in so many things and how they affect you.

Lol, any good tips and I'll shout your way. Having a supportive husband and people who understand has helped me tremendously. Thanks again Kathleen xx.
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