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[Sammyr]

Dear all. I am utterly utterly desperate. I had a failed endometrial ablation. Which meant I've had to be put in a controlled menopause with prostap.... after 6 weeks I was put on tibolone hrt. Which didn't help with the severe joint pain I was feeling. I could barely walk. Then I tried Evorel Conti patches. Which didn't work. Now. I'm on day 10 of elleste duet. And the joint pain is starting to subside but now I've got HORRENDOUS period pain. It comes on suddenly and lasts a few hours. Please please advise me someone. Will the pain get better ?? I have no other symptoms so desperate for this hrt to be the one that works.

Thanks so so so so much.

[CLKD]

Take over-the-counter pain relief, ask your local Pharmacist for advice, they have private rooms these days.

Browse round.  HORMONES    ......... as oestrogen levels drop off so muscles may become lax = aches and pains. 

Do you keep a mood/food/symptom diary?  Some ladies find it useful.

[Dancinggirl]

Hi and welcome to MMSammyr

Tummy cramps can happen, particularly at first, with any HRT regime but particularly with continuous HRT. Why did you have the ablation?  Did they not suggest having a Mirena fitted?

It does take 3-6 months for any HRT to settle and it can be trial and error til you find the one that works best for you.
Tell us more about yourself - your age, what you periods were doing before all this etc?

Dg x

[Sammyr]

Thanks so much for taking the time to reply. I had the ablation due to endometriosis. I'm 42. I have a 15 year old. Hysterectomy wasn't an option after failed ablation as my right ovary is stuck to my bowel. Failed ablation means there is a small piece of lining in my womb that bleeds every month but It can't go anywhere as it's stuck behind the scarred tissue from the ablation. My periods have always been v painful due to the endo.

Have tried all the painkillers in the world - at least that what it feels like.

Ibuprofen tends to work until I get an upset stomach. Codeine spaces me out so that's a no. I've been prescribed diclofenac again and have to wait a couple of days until it's in my system. Shouldn't take tramadol as it interacts with my pregabkin pain relief but today I had to take one. The pain is so sudden I literally buckle over. I spent most of today with a hot water bottle on my tummy and heated cushion on my back. My abdomen was swollen up. Emailed my consultant who is lovely but he just said to hang in there. But this level of pain ugh. Will these cramps happen every day or just around the time my period should have been ?

Deffo going to start a symptom diary x

So many questions   

[Dancinggirl]

I suffered with awful cramps with periods - was put in BCPs very young to control this. I can really relate. I am really surprised they haven't given you a Mirena as this will often help endo and other problems with bleeding. I had one as part of HRT and it was my best option at that time - I only got the occasional bit of spotting and slight cramps.
As they have shut down your own hormones, you do need HRT but I think the Mirena with some Oestrogel or oestrogen patches would be better. DG x

[Sammyr]

I had the Mirena a while back and insisted they rip it out as I was going to murder someone. I just couldn't cope. My consultant has suggested I have a hysterectomy today. He has referred me to a specialist called Natalia price. I'm so confused

[Dancinggirl]

Hi Sammy
It sounds as though you are one of those poor ladies who is severely intolerant to progesterone and taking into account of all the problems you have had to date perhaps a hysterectomy is worth serious consideration to enable you to use just oestrogen for a few years to protect your heart and bones for the long term burger some quality of life back.
Being referred to a specialist is a good idea - you need more specialist advice. Keep us posted. DG x

[weathergirl]

Sammyr I've had endo since my early 20's. I had several laparoscopies over the years to treat the endometriosis - get rid of the lesions. Have you not had this done? If you have adhesions, surgery can help and rectify those issues.

I was never offered an ablation as it is not really the standard of care for endometriosis here in the US (least that I'm aware of).  I had cramping so badly I'd be gripping the edge of the table to get through the waves. The surgery helped a lot.

I was warned by the specialist when I began HRT to be very careful (I'm 52) as it can reignite any endometrial lesions. I've stayed on a very low dose for that reason as it quieted down considerably after peri. 

If you haven't discussed laparoscopy for more complete treatment of the endo, I'd suggest it.  The only way they can actually visualize endometrial lesions scattered in the pelvic cavity is by laparoscopy.  This is if you really do not want to go the hysterectomy route.

I totally feel your pain. My endometriosis, though mild as staging goes, gave me horrible, horrible cramping. xxx