Hi WickedWitch
How long has your mother suffered IC? I developed it about 7 years ago. It started off in small doses after an initial bout of UTI and then the flares of urge/frequency got longer and longer until I realised that I had the urge constantly. I eventually had a cystoscopy and the Hunners Ulcers were clearly visible. This is only the case in 10% of sufferers, so my diagnosis was clear. I was put on Elmiron immediately and it is 100% effective in my case. Most sufferers are not as lucky as I am. It has a very high rate of depression and even suicide as some people get no relief from symptoms. Elmiron is very expensive, but my private health insurance covers 90% of the cost which is $124 per month. There is no other drug for this condition, so most people try diet and all sorts of other remedies. It's interesting really because I look very healthy. I don't tell many people about my IC and migraines because both are under control, but I did go through a period where both were not under control and now I have tremendous sympathy for people with chronic conditions.
As far as my perimenopause goes, I think I have been in it for about 2 years. My periods used to be 28 days like clockwork and very light. I lasted about 2 days per period. Over the last two years, anything goes really. I do remember going a couple of months without a period a couple of years ago and then getting a really painful heavy one after that. Since that time they would come a bit early or a bit late and then I went 5 months without one early this year and then the next one after that was about 35 days later. Both were heavy and painful on Day 1. I do not get night sweats or flushing, but I had a pituitary tumour for 15 years (diagnosed at 26 years of age and spontaneous remission at 41 years of age), so I am well and truly used to flushes anyway as this condition causes the ovaries to fail. I actually had my son whilst on medication for the condition.
I have a complex and interesting medical history, but I live relatively symptom free now. I am quite persistent in getting to the bottom of things and have faced many challenges in getting diagnosed and then getting the right treatment.