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[GypsyRoseLee]

If you want to try using proper Oestrogel again Tempest, I can let you have the details of the private pharmacy that Prof Studd uses. They seem to have no problem getting hold of the proper stuff. But, you will need a private prescription for it, as they can't dispense NHS prescriptions.

3 months of Oestrogel cost me about £60, but I do use 4 pumps a day. Just let me know.

[Tempest]

That's another good suggestion, Annie and as I have never tried oral Estradiol it might well be the way to go! Starting by splitting the tablet sounds like a sensible suggestion. Thank you! xxxxx

[Annie0710]

I bought a pill splitter from eBay for about £2, you could even 1/4 it to start with !

I do hope you find something that brings relief xx

[Tempest]

GRL, that may be worth a try from the point of view that last time I was at Professor Lumsden's clinic, she says if ladies are having problems and in the case of surgically induced menopause, she does prefer to use implants and therefore prefers that that these women try to achieve a level that is measurable that they feel good at by tweaking the gel dosage so that she can gauge best which strength implant to use. (Gosh, that was a bit garbled but I hope you get the gist)!

She might want to go down this route but i'd need to be very sure so I may need to revisit the gel again, so if you would be so kind as to PM me the pharmacy details that would be marvellous! Thank you so much. xxxx

Annie, I'm ordering a pill cutter too - just in case! I want to cover all bases. Thank you! xxxx

[Annie0710]

A pill cutter is always handy to have Tempest xx

[Wrensong]

Hi Tempest, thank you for the good wishes.  My Endo was also very much in favour of bringing a little oestrogen back into the ol' girl's life!  I think in difficult cases like yours (& mine, though less so compared with what you have been through), a multidisciplinary approach - Endo-Gynae-GP can be invaluable, ensuring that nothing is missed and all bases are covered.  I have had to abandon my latest regimen after just 5 weeks - reverting to Evorel Conti at 3am today, as a result of return to truly fearful sweats, racing heart impossible to calm & enough tension to suggest my body thinks it's about to sit an exam, followed by a driving test, then major surgery!  Sure ain't easy is it?!  I wish you far more luck than you've had so far & with a good team behind you, feel sure you'll get there in the end.
Wx

[CLKD]

Have you read through the Daisy web-site as well as on here?

[Tempest]

Oh, thank you so much Wrensong! I do wish you so much luck with the Evorel Conti.

After staggering, wobbling, sweating and feeling nauseous with double vision whilst trying to drag myself around Morrison's today doing the weekly shop with Hubby I've decided enough is enough. I've checked my calendar today and I'm 65 days off HRT and realise that this is how long its taken to hit rock bottom estrogen deficiency. It certainly ain't pretty! Add to that a terrifying incident at 6.15 am this morning when I thought I was literally going to die with panic!

I take it all back - life is NOT better off HRT even though I feel strangely ok in myself head wise. It's hard to explain. I feel like me mind wise but I am being plagued now by terrifying adrenal surges that last anything from 1 - 2 hours each! Is this a record, I wonder? I've timed the blighters, and let me tell you its a looooong 2 hours! They are so intense that I actually feel like I'm going to vomit.

So tonight as its the only thing I have in the house, I'm going to start with 1 pump of Oestrogel and hope, HOPE that it doesn't give me a rash. If it does, at least I'm seeing Professor Lumsden in 6 days time and hopefully we can figure something out.

Other things that have shown up literally in the last week is skin on my palms and soles of my feet that is paper thin (and I mean PAPER thin. I can hardly bear to wash my hands), an extremely dry mouth and throat, dry eyes and pretty intense muscle pain. And it hurts to walk too as it feels like I've lost the 'cushioning' on the soles of my feet. It's been fast and its been drastic - I am truly shocked! Now that I've experienced this I recommend that anyone in surgical menopause who is 2 years plus from surgery be very, very wary if tempted to stop HRT (especially if you're younger).

God knows how Kirsty Wark has managed to cope and hold down a job for the 10 years she has been off HRT after stopping it at 51 after having a hysterectomy including oopherectomy, and STILL look in remarkably good shape!

Wish me luck. I'm going very slow with this as my body will doubtless get a shock when estrogen is introduced again. 

[MIS71MUM]

Hi Tempest
Hope you are okay. I've been thinking about you and your Oestrogen taking!
My thoughts are, you definitely need a method of delivery that is consistent throughout.

Pill - can these be cut in half and you get 50 % or is there a risk that some of the tablet is filler? Just a thought as I know some tablets, AD's for example, some allow cutting and some don't.

Patches - Estradot has a supply issue so you'd need Evorel maybe, which is bigger. I'm on patches but still think the delivery is consistent over the 3 days, however, that might be because I'm not on the correct doseage yet.

Gel - you and I both had issues when we tried the gel with jitters etc, could you perhaps consider the tiniest pea size maybe, then when you are happy with this, then apply every 12 hours, then every 8. I've read Studd recommends this for PMS so would assume this offers less peaks and troughs.

Premarin - not sure about this, but would worry it could be discontinued with it being an older style HRT.

Just thought I'd offer my opinion but I think you need to know for your own piece of mind that the method is as consistent as it can be just so that you don't suffer too many ups and downs.

[Annie0710]

Elleste solo is definitely cuttable

Tempest, pump that one pump but don't use it all, build up gradual so your body isn't shocked x

[Wrensong]

Good luck Tempest.  Will be thinking of you, with everything crossed for success.

[edelweiss]

Good luck Tempest, good luck. I am thinking of you and wishing you better, and have everything crossed for success too xxx

[Rhiner]

Hi Tempest, Ive not been on here for a while, sorry to hear you are still struggling. Just wanted to say good luck with whatever dosage form you try, Id recommend transdermal due to consistent dose, but I know that you had difficulty absorbing. Just to mention, I do not absorb that much from a 75mcg patch only 115 pmol/litre, which is quite low, so it certainly varies from person to person.
All the best, R x

[warwick01]

Hi Tempest,

Just read your post. I have been thinking about you lately as we were both on the Tibolone journey together.

I really liked Tibolone as I felt it worked wonders for my mood/anxiety which as been horrendous over the last 3 years. However the dizziness (side effect) became so bad my DH had to hold on to me on holiday, after 4 months enough was enough

I am 3 weeks off Tibolone and the adrenalin surges/hot flushes anxiety are all back. I was hopeing with Tibolone being low oestrogen I could do without......NOT A CHANCE. So like you it's back to the drawing board I have started taking half Angeliq as I think my anxiety settles with a combined HRT. I'm on day 6, feeling a bit odd but will see what happens. I tried Angeliqu 2 years ago and my dizziness disappeared and I felt quite good up until week 6 and my mood plummeted, so stopped immediately. May be half will be better or even staying on it longer...who knows.

Patches seem to lose their effect after 3 days.
Gel causes anxiety/jitters

Good luck Tempest Wxx

 

[Tempest]

Thank you, everyone!

I just applied one pump (I'll see how it goes, Annie. Bless you)! xxxx

Marchone, thank you so very much for your terrific considered reply! I didn't know that Professor Studd recommended 8 hourly application and you have really considered my dilemma with my previous problems using HRT. I'll take this to my meeting with Professor Lumsden. I can't believe that you've been so very kind and thoughtful! How are the patches going for you? Any sign of the flushes easing? xxxx