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[Chi chi]

Following on from my post about thyroid antibodies we had appt with private GP yesterday to discuss things further.
He's pretty much positive that there's no problems with my thyroid but as he doesn't specialise in this he can't be 100% sure? He was surprised that I felt no better after my B12 shots as he said they were a "substantial dose".
He looked at my long list of symptoms and was pretty much baffled saying the only thing he could of was some rare diseases  he asked if I'd ever worked with chemicals which I haven't, but mentioned things like copper poisoning??
He said that I would need to see either an endocrinologist or neurologist who could do more specific tests to try and get to the bottom of things so has written a letter to my own GP's suggesting I be referred to an neurologist, if needed then an endocrinologist.
Don't really know what to think now 

[Annie0710]

How long ago did you have b12 shots and was it your first lot? It takes 4 months I think for cells to renew so might be taking longer to reach cell level

[CLKD]

I would be concerned if this specialist was recommending that you see 'experts' privately, if however he is referring you back to your GP with these recommendations: however .......... I would head for an endocrinologist in the first instance via the NHS.

[countrybumpkin]

I am assuming you are in the Uk??  If so your GP can refer your to either endo or neuro but on the nhs the wait will be months rather than weeks so its best to be prepared for this. Obviously if your not in uk or going privately then you will be seen very quickly but when payment is involved its easy for lots of unecessary testing to be done.
You need to go back to your Gp once the letter has been received from the private GP and discuss in depth with your usual GP.

[Chi chi]

Yes I'm in the UK

I had the shots middle to end of January so presumably they should be having an effect by now?
No the private GP isn't recommending that I see experts privately, he's aware of how much we've spent so far trying to get to the bottom of things so suggested we try and get my own GP to refer and thought this might happen quicker if we went down the route of neurology rather than endocrine at the moment.
He said he's more than happy to refer privately if we want to.
We plan to make an appt at our GP to hand the letter in and discuss everything but lord knows when that will be as it's a nightmare getting an appt lately 

[CLKD]

   so everyone is on the same page !  Can you book on-line at your surgery so that you can pick a date/time ahead?

[countrybumpkin]

thanks for answering my questions    when you used the word shots for the b12 injections I was assuming you were american as they call injections shots.

Is there a GP that you like and think will listen to you at your surgery as it would be worth waiting even weeks to see them if you can book ahead. I appreciate some surgeries will not allow any book ahead appts

[Annie0710]

Did they give you alternate day b12 jabs for 2 weeks ?

[Chi chi]

I had a total of 5 over 2 weeks, so mon, wed, fri first week then mon and wed the 2nd week.
We can book online but there's still a fortnight to 3 week wait 

[Annie0710]

Sounds like they're following guidelines so that's good.  But in order for the b12 to work you need optimal folate levels and potassium, magnesium etc

[Chi chi]

Would that be Red cell folate? As this was out of range low  they never said anything about potassium, magnesium etc 

[Annie0710]

To can't stress enough how beneficial it'd be to join that fb group, they'd guide you through everything x

[CLKD]

  Annie!