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Author Topic: Advice Needed  (Read 17121 times)

CLKD

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Re: Advice Needed
« Reply #15 on: May 02, 2016, 05:51:19 PM »

Mary G - I am in tears.  This girl appears to have been treated without any consideration - doesn't a Consultant's advice count for anything?  Particularly when a treatment is 'working' for a patient, surely it is better all round that the regime continues?

I would think that the Gynae who suggested the Livial is on maternity leave and has other things on her mind ;-).  However, the Locum should have known better  :bang:
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PompeyLou

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Re: Advice Needed
« Reply #16 on: May 02, 2016, 05:59:12 PM »

Thank you both so much for listening... and Mary I've read all that  and thought that was the case but the gynecologist I've seen in my original ones place is aparently one of the best and won't let me have it.... I really am feeling so low and don't know what to do
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Halfpint

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Re: Advice Needed
« Reply #17 on: May 02, 2016, 06:10:22 PM »

Type Livial in the search engine on here and you will find some threads about it. One member was taken off it as she had a thickening of the womb plus her Dr told her it has one of the highest rates of uterine cancer. I know it's very frustrating for you that they have taken you off it but it's obviously to guard you against cancer. There must be another alternative form of HRT you can take?
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PompeyLou

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Re: Advice Needed
« Reply #18 on: May 02, 2016, 06:11:55 PM »

Not if it contains progesterone there isn't.
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CLKD

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Re: Advice Needed
« Reply #19 on: May 02, 2016, 06:26:06 PM »

Send an e-mail to Dr Currie ?
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lisa789

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Re: Advice Needed
« Reply #20 on: May 02, 2016, 06:30:31 PM »

From your user name I'm guessing you're in Portsmouth. How about ringing these people for advice http://www.menopausematters.co.uk/clinicdetails.php?id=71
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Mary G

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Re: Advice Needed
« Reply #21 on: May 02, 2016, 06:56:07 PM »

I know many on here will disagree with me but under the extreme circumstances and if you are not prepared to just go ahead and buy the Livial online, I suggest you seek the advice of a real hormone expert like Professor Studd.  I think he will disagree with this gynaecologist and will probably have some better suggestions. 

Considering your are very severely intolerant to progesterone and cannot possible take it, why didn't they give you a full hysterectomy?  Wouldn't that have been a better option for you?  I can't see how that could possibly have put in you a worse place than the one you you in are now. 
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PompeyLou

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Re: Advice Needed
« Reply #22 on: May 02, 2016, 07:02:56 PM »

Mary I was told it would cost more to do a full hysterectomy and because of the reason I was having it done it would have probably been turned down by them above. Xx
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PompeyLou

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Re: Advice Needed
« Reply #23 on: May 02, 2016, 07:06:06 PM »

And yes Lisa I'm from Portsmouth  :)
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Halfpint

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Re: Advice Needed
« Reply #24 on: May 02, 2016, 07:08:24 PM »

Mary I was told it would cost more to do a full hysterectomy and because of the reason I was having it done it would have probably been turned down by them above. Xx

Disgraceful. Another 'postcode lottery' I presume? I feel very sorry for you that you are in this situation.

I had to fight to have an elective c-section with my third child (my second child was born by emergency c-section). Because I had given birth to my first child 'naturally' as they called it, they were reluctant to give me an elective section but I stood my ground and was given one but I suppose it depends on the health authority?


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Mary G

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Re: Advice Needed
« Reply #25 on: May 02, 2016, 07:14:01 PM »

So it was all about cost and they were not thinking ahead.  By the way, I meant to ask, why are you particularly at risk from Livial?  Did they explain in detail their reasoning behind the decision to take you off it and what exactly are their plans for you now?  Presumably they are not just going to leave you like this.

Livial is a well used product which many women take happily for many years so why all the scaremongering about lining build up?  If it is supposedly that dangerous, why is it even on the market? 

In your situation there are very few HRT options left because you cannot take progesterone at all so how about taking Livial and having a uterine scan every year to check the lining?  If this lot won't sanction it you would have to pay for it yourself but under these extreme circumstances, it has to be worth it. 

For God's sake don't just carry on feeling the way you do now, there has to be another option. 
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CLKD

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Re: Advice Needed
« Reply #26 on: May 02, 2016, 07:39:45 PM »

Go along to your GP and ask to see a copy of the letter sent to the Surgery from the Gynae who recommended Livial?  Make a doulbe appt. and ask why they feel that even though you have good results with it, they no longer agree with the Gynae.?

Then change your GP!
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Halfpint

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Re: Advice Needed
« Reply #27 on: May 02, 2016, 07:42:05 PM »

I would change GP. Find a smaller practice with less Dr's (that's what I did and they are much better, the Dr's are also young). I would then ask for a full hysterectomy now they won't allow you Livial.
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CLKD

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Re: Advice Needed
« Reply #28 on: May 02, 2016, 07:45:14 PM »

Also look for GPs with particular interest in womens' problems, they have done extra qualifications.  You could also ask your local Pharmacist/s which Surgeries support menopause ………..
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Halfpint

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Re: Advice Needed
« Reply #29 on: May 02, 2016, 07:53:07 PM »

Most GP practices have a website or even if you google them in your area, it comes up on the NHS Choices website  and gives  reviews from patients and details of what  the GP's specialise in. The small practice I changed to has two female GP's one of whom specialises in womens health.

I would google GP Practices in your surrounding area and have a look at the info on the GP's.
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