Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Peterspots]

The radiologist the consultant wanted to look at the scans is on Monday.

[CLKD]

Will they ring you or send results via your GP 

[Peterspots]

Still waiting for results been referred to the Eastman dental hospital facial pain clinic. Keeps going up & down with tooth pain. Wearing a mouth guard at night. Now only on vagifem not patches so will see how that effects my bladder problem. Seems stable at the moment with vagifem every other day. Think my only option may be the anti epileptic drug

[Peterspots]

Today woke up & my knees, elbows, hips hurting fro being fine. What is going on. Constant face tingling and odd symptoms like this. Just Wearing me down.

[Peterspots]

It's like my whole body is vibrating.  Still waiting for blood tests & MRI results. Could it be stress, low ferritin, hormones or lots of things. I'm so low it

[Briony]

Reading your symptoms sounds so familiar, especially the crawling ants thing. Have they offered you anything like Gabapentin or Pregablin? I really hope the tests reveal the cause so you can move forward; however, be prepared for the 'all normal' response too. I had to fight back tears when I heard this - not tears of joy, but tears of sheer exhaustion and frustration. I couldn't accept how I could feel as I did, with such physical symptoms, yet be told all was 'normal'. No, it's not normal to be turning into a human vibrator! For me, it was sheer luck that a neurologist said test estrogen as well as FSH (which was normal). In general, estrogen tests are not helpful, but for me this was the break through I needed. Really, really hope you get some answers soon. Big hugs x x

[Peterspots]

Thank you. Woke up this morning & felt so worn down by it all. I did stop the esteogen patch because I was putting on weight but now bits are sore. Stupid. It was only two weeks so going back on today. I am so depressed with my situation. Keep thinking hold on another week/month. When the tooth pain eases I think yay it's gone and it comes back and butted me. Waiting for the blood tests hoping it will show something. Trying to keep positive but it is so lonley being in pain all the time. Thank you for listening

[Briony]

Have they not offered you anything for the pain? Obviously you need to find the cause, but in the meantime, you should not be left to suffer like this. There are certain anti depressants (like Amitriptyline, Cymbalta) and anti convulsants (Gabapentin, Pregablin) prescribed for this purpose. I hate to think of you feeling like this and having to wait for your next appointment x 

[Peterspots]

I have been offered amytriptiline and cymbalta. I was hoping it was going to was but today the burning scalp has co e back. I feel like I have a trapped nerve in my neck but have been told by consultant it was a mistake not to do the mri of my brain and neck. Memo consultant has said I can take progesteronr now. What one is best. I am on estrodot and she has also prescribed estrodel gel but don't know what's next. She did sugar cavette (is that the BCP) hoping to see go next week. Does estrodot come as a dual patch?

[Hurdity]

I can't understand all of your post due to typos and autocorrect! However Estradot does not come as a combi patch so you need to take separate progesterone. I'm not sure if the POPs are high enough dose for opposing HRT and protecting the womb lining but you have two main options - Provera (synthetic) or Utrogestan (bio-identical to our own body's progesterone) listed here: http://www.menopausematters.co.uk/to_progestogens.php

Some GPs or consultants prescribe norethisterone but I'm not sure it comes in low enough doses on its own to be used as part of HRT.

My choice would be utrogestan rather than the synthetic types as less likely to cause odd side effects - and mainly tiredness, possibly headache if unlucky.

Hurdity x

[Peterspots]

Thank you. I have been given femseven 50 Sequi by gp. If this is not the best option then cerrazette is the next option with an estrogen patch.

[Briony]

Be careful with Cerazette. It has the same progesterone on it that Marvelon has. I am usually ok with progesterones, but this one knocked me for six. I agree with Hurdity - if you can try Utrogestan, it would probably be preferable.

I took both Cymbalta and Amitriptyline for the nerve pain. Amitrityline was the easier one to tolerate and did help, but takes a while to work. Push for an MRI if you can. It gave me peace of mind, even if it did not bring any answers!

[Peterspots]

Thank you. I'm trying the femseven first with progesterone in the last two weeks. I was supposed to have an mri on my brain, neck & jaw. But they just did the jaw so have asked consultant to request the mri I was supposed to have. have your neurological problems eased. The last two weeks mine have got worse after I stopped the estrogen. My scalp & neck have joined in with my face and body twitches

[Peterspots]

And now the burning scalp, neck & shoulders have retuned. So sad. Trying to remain positive but I'm so sad with all this. Every new symptom is harder to take. I had this for a week 3 weeks ago & it went. I actually have so many things to be grateful for but this is wearing me down. Writing on here so I don't cry

[Peterspots]

Thank you. The scalp and neck have scared me.  It is so painful & I just don't Know what's happening to me.  I have been through so much this year. I don't want to go out with any friends for Christmas because it just reminds me of what I've lost this year. Every day is a struggle and now this on top. I read about a lady who killed herself because of face pain yesterday and it just panicked me that this may never be over. I still have the anti depressants or the anti convulsants to take but I always hoped this would go or settle the addition of the burning just feels too far. I don't want to go to work I just don't want to see anyone. I've woken up and I'm burning