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[Peterspots]

Thank you ancient runner. It has improved with HRT & vagifem & the initial pain of the procedure started to fade. An aquilizer is a mouth guard that is supposed to balance the jaw when you sleep. I'm waiting for advice but I'm so reluctant to see a cranial osteopath but I'm so reluctant to trust anyone as I am now worse off after having the massage as I now have tooth pain. It is so demoralising.  It's like they don't know what's wrong with me. My face is spasming & tingling &
It is so wearing. I just feel so traumatised by what's happening to me. My body twitches & I put that down to the HRT or menopause. The tooth pain has really tipped me over the edge

[Peterspots]

Going to dentist Friday but before the massage I didn't have the tooth pain.  Just feel in an awful tunnel with no way out with nerve pain in face, aching growing & now tooth pain. I can't be the only one who has pain in their face. I just don't know what to do next. Can't believe my face can be from clenching. Just getting it out on here. Even if I heard this I would think there was something not right with that person. No one has so many things go wrong in my RL.

[ancient runner]

Yes, a good talk with your dentist might be helpful.
I wouldn't rule out the clenching being a big contributor to the problem though - you do sound (understandably) very anxious and it may be a vicious circle.

[Peterspots]

My face is tingling and I have pressure. Habe asked to be referred to the Eastman dental hospital. It is really getting me down. Seeing max fax person next week. If it is tmd not sure what would be next. Going to ask for a nerve test. Went to see a tmd person and they tested my nerves by pressing in certain areas so I don't know how scientific it is & they thought it was originating in my neck but I'm just so unsure if that. Have been offered anti depressants but just not sure as if the oain was gone I wouldn't be so sad. It's 10 months of face & bladder (easinf) that has ground me down.

[Peterspots]

Been to Dentist. He things I have either trigeminal neuralgia or atypical facial pain. Could still be TMd but there seems to be too many nerve symptoms

[Peterspots]

Seeing maxillary facial man tomorrow. Face twitching & sore. I have low ferritin don't know if this is relevant. I am also getting body twitches

[Peterspots]

Thank you sparkle

[Peterspots]

My problem started before hrt. Went to see max fax consultant. He said I need an Mir on brain,face,jaw & neck. Really getting me down.  Scalp burning today. He also took blood test for iron (ferritin very low and iron saturation) and calcium and parathyroid. It will be a year in January & emotionally I think I have to accept I may go past a year and also my 50th in January feeling like this. If things dont show a ready. He suggests an anti epileptic. My face is twitching timgling burning. One twitch stopped after the massage inside my mouth but gave me toothache so not s good swap. Feel like a freak. Struggling to keep it together at work........& what is with the burning scalp aaaaaaarrrrrrrgggghhh!  What Physio are you having?

[CLKD]

Trigenimal neuralgia isn't constant.  It is due to the blood vessel laying across the nerve and as the vessel pulsates, it causes ACUTE sudden pain in the top sinus area along the bone near the nose.  I can still feel the bruising in the area and I haven't had it since 1999.  The GP gave me Amitripalyene but it didn't touch the pain.  It was so acute that I hit the floor with shock, it was instant, sudden and fortunately didn't last long each time.  People watching me walking my dog probably thought I was drunk  .  Cold wind can cause it to happen too.

There is an operation to release the blood vessel - only a few Surgeons perform it.  Initially an injection is given into the nerve affected to see how long the results last …….. B4 surgical intervention is considered.

How long before the blood test results are back?  Will they be sent to your GP with a copy to yourself?  There are lots of nerve roots around the mouth/face area which can become aggravated. What pain relief do you take [sorry I can't remember  ]

[Peterspots]

I have an MRI booked Friday. I'm so worn down. Since Monday I have had a burning scalp and neck and I have seen an osteopath.  Not for treatment but to ask if he thought the face pain & burin scalp were connected.  He said they are different nerves so now I could possibly have two nerve problems. Can't even put into words how I feel.

[CLKD]

I read an article by Dr Sarah Jarvis last night, *if* I remember I'll quote …….. chronic pain is wearisome 

 

[Peterspots]

I don't know what's happening anymore. Why after all this time would my scalp start to burn. The more this goes on I feel like I will never recover.

[CLKD]

My scalp hurts if I haven't washed my hair often enough  ……. due to laziness, usually!

Of course, I forgot to find the article 

[Peterspots]

Went for mri today. Left my home at 10.30, walk, train, tube , bus, scan, bus,tube,train walk. Got home at 5.30. I thought the mri was to be on my brain, jaw & neck. They only had the jaw, tmj on their sheet. So disappointed. I had scan then 3 more scans with different positions with my mouth open. Feel like I have a 100 ants on my face

[CLKD]

When do you get the results?  Did you get the chance to discuss your symptoms?