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[Anjia]

I still have tingling in my face most of the time I have gone back to pill hrt after trying the patch so I'm waiting to see if this solves it.I am fed up with doctors so can't be bothered to even tell them about it anymore just put up with it some days are better than others .

[Briony]

Anjia, I know that feeling. Sometimes I don't even mention things to my partner as I worry he'll just think 'not again?!!'. Remember, things take time. My symptoms didn't go until I'd been taking a 2mg pill for several months (three at least, possibly more). x

[Peterspots]

Hello. Yes, it's like really is that wrong with me now too!  I will let you know how I get on with the face/jaw person to see if there is a muscle reason or just freaky body wants to make me life miserable reason. X

[Peterspots]

Went to see massage therapist who specialises in faces, jaw,neck. She was very gentle & worked inside & outside my mouth/face. Will have to wait and see.  Fingers crossed.

[CLKD]

What advice did she offer between sessions?  Did she show you how to massage your skin?

[Peterspots]

To do exercises stretching my tongue & face. Hard to relax when bladders smarting & tried y do some exercise & Achilles hurting again. The one thing it has done is enabled my tongue to rest in the proper place

[CLKD]

Have you done the exercises this morning 

[Peterspots]

I did. Thank you for asking.

[Briony]

Fingers crossed for you x

[Peterspots]

Had the massage a week agai & my face is tingling and I have pressure in my mouth.  No one has diagnosed me. Maybe teeth clenching, maybe TMD or ...... Just so tired of being told I clench but do people who clench have nerve spasms in their face. I had so much hope for the face massage now my confidence has gone & im worried about makin things worse

[Briony]

I know how you feel. When I had the pain, pressure and tingling, it was in a slightly different place but I am sure the sheer exhaustion of coping with it is the same. I spent £££ on treatments, every time convinced 'this is the one' when in fact, it wasnt.     

Until you definitely know the cause, you cant easily treat it. Assuming it's some sort of nerve/neuralgic pain (estrogen does affect the nervous system and it was in fact a neurologist who made the connection with my weird symptoms and my hormones), and not related to your bones/structural issues (have you had x rays?) have you tried any of the drugs available for nerve pain such as Gabapentin, Amitriptyline, Pregablin or Cymbalta? 

For me, I think water retention was the problem, caused by hormonal issues. This impinged  on nearby nerves (I believe this is why pregnant women can get CTS, a condition that causes similar issues but obviously in a different part of the body!). Once my hormones were a bit more under control, the symptoms eased. x

B XX



It's possible that hormones have something to do with carpal tunnel syndrome as some women develop the condition during pregnancy or the menopause. Hormones released during pregnancy can result in fluid retention in the tissues and increased pressure in your carpal tunnel. See our frequently asked questions for more information.

[Peterspots]

Hello. Thank you so much both. the face pain feels like nerves & now my teeth are hurting. The massage seems to have stirred things up. I just don't know if I have trigemeral neuralgia but it's not typical. I clench but I don't immediately wake up with it. If I wake up in the night I can feel the nerve pain. It's almost as if smiling, talking makes it worse. I haven't tried any real long term medication as I was told it was muscular & would go but it has really got worse the last two weeks. I don't know if the massage has loosened
My jaw & the clenching is irritating the nerve more. Been doing the exercises strengthening my tongue. I am worried I have made things worse. There is the Eastman dental hospital that deals with face pain.  I wonder whether to ask to be referred. I haven't know it this bad & im annoyed
That trying to make it better. I've made it worse. I
Can email the therapist but I'm just so worried now.

[Peterspots]

My face is burning at the moment. I have been away come back & done exercises for my face & its smarting  just started on estrogel.

[Peterspots]

I haven't had any medication. Just massage. Really think I need some more help. Will see my gp again

[Briony]

I found in the short term nerve med  helped as it eased the pain and also, coincidentally, calmed me down (it was an AD as well as a nerve pain reliever). That got me in a better frame of mind to make choices re longer term. Have you had any blood tests to rule out vit deficiencies ? I know many (rightly) say blood tests for hormones are not very helpful, but I did feel that - after so many other tests revealing nothing -  it was reassuring to know my esteogen was very low. In my mind this confirmed the weird symptom was hormonal. I also found the 34 Symptoms of Peri Menopause site helpful too.

Really hope you get some relief soon xx