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Author Topic: New and really struggling  (Read 13761 times)

jedigirl

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Re: New and really struggling
« Reply #15 on: April 18, 2015, 10:14:55 AM »

Hmm think GypsyRoseLee mentioned that too. Do you think I could do a straight swap with the Sertraline?  I haven't taken todays dose yet and feel loathe to. It doesn't seem to be helping and the reaction i had switching to higher dose makes me wonder if its not right for me.
Shaking inside with this horrible fear  >:( really need to get to the shops for food and school shoes.
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jedigirl

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Re: New and really struggling
« Reply #16 on: April 18, 2015, 10:22:30 AM »

Hi Greenfields,
sorry realised I hijacked your post a little  ::)
How are you doing? Any decisions made?
JG xx
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GypsyRoseLee

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Re: New and really struggling
« Reply #17 on: April 18, 2015, 10:47:22 AM »

Oh jedigirl, what you describe sounds so familiar (hugs).

It isn't actually anxiety. For me it is outright fear mixed with dread. My Mum and husband can tell because my face goes 'tight' and my eyes look 'flat' apparently.

When our daughter was a baby she was very poorly for a few weeks. It was suspected cancer. I felt outright fear mixed with dread, until the tests came back negative.

Well, the fear and dread I experience now feels exactly the same. Except there is NOTHING to cause it. It comes out of nowhere and is caused by nothing. I can feel it at home in bed. In the staff room at work. Driving the car on a sunny day.

I explain it to my husband, as feeling like someone has taken my cable and plug marked 'happy & relaxed' and unplugged it, and plugged it into a socket marked 'frightened & hopeless'.

And everything I do which I normally enjoy such as pottering in the kitchen or garden, or meeting a friend for a coffee, or watching a film with my family seems very frightening. Totally irrational and upside down.

I wonder if somehow, our hormones disrupt our internal flight/fight response and confuse it? So, we are swamped with the 'flight response' which is basically fear. And our hormones keep flicking its switch on when there's absolutely no need.
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GypsyRoseLee

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Re: New and really struggling
« Reply #18 on: April 18, 2015, 11:07:51 AM »

jedigirl, yes it was me who mentioned amitriptyline. It isn't prescribed very much as an AD nowadays as it's an older generation to the SSRIs like sertraline and Prozac. But it is still often prescribed for sleeping issues and nerve pain.

It is EXCELLENT at helping you sleep. Though it does make you feel a bit groggy when you wake up. But I found that once I was up and had my first cup of coffee I was absolutely fine.

It is also very, very good at very gently sedating you for want of a better term. I was still perfectly capable of driving, cooking, doing my job well etc but I was aware that I felt slightly more 'dreamy' than usual and simply didn't get as worked up about things which would normally stress me (our children being messy, people at work not pulling their weight etc).

Amitriptyline gave me a feeling of 'Who cares, what does it matter really' which was actually very liberating. Though I did put on weight because it stopped me caring about my clothes feeling tight  ;)

But overall it was highly effective in calming me down, eradicating the fear/anxiety, and curing the insomnia. It also had the added benefit of not stopping me having an orgasm (sorry if that's TMI) which sertraline and Prozac did. It also made me feel that I was still in touch with my emotions, whereas the SSRIs I had taken made me feel very wooden and numbed.

My GP spoke very highly of amitriptyline. He considered it a very safe and gentle AD to take. For anxiety/insomnia it is prescribed in much smaller dosages than for full blown depression. I was fine on just 50mg a day (for depression people used to take 75-200mg a day).

It is really worth giving it a go. You can swap straight to it from sertraline, I did last year. It took about 6 weeks to fully work for me.

Many years ago when I had PND, I was given amitriptyline because I was breast feeding (it is known to be very safe) and it actually worked very, very well. It gave me that safe, slightly dreamy feeling and helped me get back to sleep immediately after the night feeds. But when I stopped BF my GP swapped me to sertraline. I didn't like that nearly as much. I felt on edge all the time and would fall to pieces if my 'routines' got disrupted. I would also have 'rages' too about silly things.

I actually think being on sertraline stalled my recovery from PND, and put it back by a year. Eventually I had had enough and asked to change to Prozac (GP wouldn't let me back on amitriptyline as 'too old fashioned') and that wasn't much better. So I just stopped taking it because I thought I might as well feel anxious and rough OFF anti depressants, because they're not helping. I was actually fine after I came off them. 100% recovered.

And, when I tried sertraline again last year it completely sent my anxiety off the wall. Full blown panic attacks. Nausea. Zero appetite. Shaking. Diarrhoea. Pacing the house in the middle of the night crying. I only stood it for 26 days before begging my (new) GP for amitriptyline.

Sorry for the essay  ::)
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Greenfields

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Re: New and really struggling
« Reply #19 on: April 18, 2015, 11:27:41 AM »

Just wanted to say a huge thank you to everyone for posting here - it really helps to read other people's accounts of what happened to them because I can't believe what has happened to me over the space of 3-4 weeks. I was due to move back to Canada this coming week and, although I have been feeling physically better the last day or so, a big part of me is like "what the hell happened?" Psychologically I am in a state of shock as to what has occurred - complete disbelief.  I was well enough yesterday to start looking at jobs on the internet and kept thinking - I've wrecked my life - I'd planned to do the MSW in Canada and become a clinical counsellor working with people with trauma, using yoga and meditation as well as my clinical skills (in Canada social work is very different and I was really looking forward to returning there and doing that work once I got my MSW).  I'm not keen on working as a social worker in England as it's practiced differently here - plus I'm going to have a devil of a job getting a social work job here because I haven't trained in the English system, have not had UK statutory placements, am not familiar with much of the UK legislation and the system here is very very stressful - so the burnout rate is very high. 

As well, the problem with the UK is that the housing costs are so high and the rentals are so insecure - so as much as I love being around English people and the English countryside, I really can't see financially how to make it work. So all that has happened has really thrown a spanner in the works.

Someone mentioned about the CAB and landlords with respect to my rent - I haven't been well enough to sort this out but, when I do get stronger and plan to move on, I am going to seek support in getting any money I am owed back.  Unfortunately where I live is a very small expensive town in Hampshire and there is a complete shortage of rental accommodation - so at the time all this occurred, all I could think was, I can't be homeless - I was terrified of that, so I offered the landlord 6 months rent up front and it was then insisted on in order for me to stay where I am.  I didn't know at the time I wasn't mentally well - I didn't recognise the panic attack for what it was because I had never experienced a panic attack like it - I was completely caught up in terror. 

When I think back to the whole thing now, what I feel is that while I offered the money up front, the landlord didn't have to take it!  The letting agent told me that they (the landlords, a husband and wife) are pensioners and need the security of the income  >:( .... just to say that these landlords have a property portfolio of at least 5 or 6 properties in the area.  I have always paid my rent and bills on time (automatically by DD) and they have a 975 pounds deposit - and the rent I pay them is 650 pounds a month ...
 
I think my menopausal symptoms (particularly the mental ones) were made worse by the extreme stress I was put under in my last job - I'm thinking that extreme stress and massive hormonal imbalances can cause people to do strange things?  That's the only explanation I can come up with to rationalise what has happened to me so far. I am really looking forward to seeing the psychotherapist this coming week - maybe she will be able to shed some light on it.

I think I'm on Day 17 or 18 of the HRT now. I've started having bleeding - sort of rust coloured - like a period. I've also picked up the booklet that came with the Nuvelle Continuous and reread the side effects and I think I've had quite a few of them (although none of the serious one's yet - thank God!).  The digestive issues I've been having are also, I am realising, possibly side effects.  I had issues not only with my bowels (which have again reverted to producing sludge) but also with a feeling of food sitting in my stomach and not moving (after having eaten a meal) - very uncomfortable.  The Nuvelle book says bloating is a side effect - so maybe that's what I have been experiencing?

I think the acupuncture is helping but it's difficult to say how much is that and how much is more of the HRT.

I am in awe of the people who have taken Sertraline! I seriously thought I had poisoned myself.  I was hesitant to take it to begin with but the doctor I saw said confidently "I've never had a patient that it's not worked for!" - little did I know what I was letting myself in for!  I'm so glad I stopped taking it after 2 doses.

The worse thing is that I was cognitively aware of everything that was happening to me when I went through all this.  And having worked in mental health, I knew the things I needed to do to take care of myself - and I attempted to do them each day as best I could (wash, dress, eat, exercise, connect with others). I wasn't psychotic.  I wasn't suicidal.  But I knew that something wasn't right with me. 

When I asked the doctor for help and said I needed to be checked up on by a community mental health team or someone because I was living on my own she said I wasn't ill enough and gave me the number of the Samaritans.  Honestly, words fail me. It's not that I don't recognise that the health service is overstretched but I feel so fortunate that I do have, at the moment, the financial resources and the wherewithal to seek help from people like acupuncturists and psychotherapists.  Having said that, I saw first hand what health services were available when I supported clients with serious mental health issues - and let's just say they fall way short of what should be available.

I was also so so lucky that the one friend I had (who I didn't know that well before all this happened) came forward and helped to remind me that I would get better, that I was whole and that I wasn't going mad and I didn't have any underlying organic mental illness - that what she thought I was experiencing was as a result of extreme hormonal imbalance, stress, anxiety and some trauma and PTSD from my last job. If I hadn't had her support, I think I would have ended up in hospital because I just couldn't have got through it completely by myself.

In my last email, I asked about questions for the doctor's appointment.  I guess what I'm wondering is whether there are any specific things I should ask her to test?  My last doctor (the one who tried Sertraline on me) did tests for thyroid, diabetes and my kidneys.  Everything came back normal.  I've since read about hormone tests that tell you what stage your at with the menopause (FSH tests?) - I am wondering whether to ask for any more tests?

I have also, I think, decided to give myself 3 months (till at least the end of June) to see how things go with the medications and getting better.  My short term plan, I think, if I continue to have more good days than bad, is to see if I can pick up a couple of days of care work shifts which will at least reduce the amount my savings go down by.  There is a lot of care work in this area (going around to people's homes) and I have a car so providing I can take care with my back and am physically robust enough, I will look into doing this in a few weeks ... assuming that my symptoms don't get worse again.

Does anyone know a good source of information on the menopause and mental health?  I keep reading these innocuous descriptions of what women will go through at menopause but nothing as extreme as what I have gone through.  One of the nice things about this board is that I am, for the first time, reading things that are extreme - which helps to see because if this hadn't happened to me, I would never have believed that it could happen to people - it just seems so far fetched!

I guess one should never try and change countries while menopausal!

I am also incredibly grateful for the Buddhist practice of Loving Kindness (metta) meditation which kept me going through my darkest days.  If you have not tried it, I strongly encourage people to - it has really helped me mentally.  As well, I have CDs of Pema Chodron's teachings and I played those over and over - her teachings on coping with fear have helped me so much and she has a very soothing voice.

Sorry this is another long post ...

   

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jedigirl

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Re: New and really struggling
« Reply #20 on: April 18, 2015, 11:38:49 AM »

Greenfields
Sounds like you have a plan now, that's great!
Re tests, my GP has just ordered some for me and asked for liver, thyroid, calcium, iron, FSH and oestrogen level.
I think that the FSH and oestrogen levels are notoriously unreliable though as they only give a snapshot of how those levels are that day. Might be worth asking though.
GypsyRoseLee
Thanks , might just ask about that next time I'm at GPs xxx
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Judith57

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Re: New and really struggling
« Reply #21 on: April 18, 2015, 12:59:15 PM »

Gypsy Rose, I am back on amitriptyline now but only a small dose 20mg. I found the same as you it took away the fear and even when I woke in the night, instead of pacing around full of fear, I just stayed put and it acted like a comfort blanket, keeping me just sedated enough not to care. I would be very reluctant to go on any other AD now.

xxx

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GypsyRoseLee

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Re: New and really struggling
« Reply #22 on: April 18, 2015, 04:10:51 PM »

Yes, 'comforting' is a very good word to describe amitriptyline Judith  :)

When I had PND I started off on 25mg of it, then upped it to 50mg. Last year I started on 50mg again, tried dropping it to 25mg which was too low, so increased to 40mg which was fine for me.
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jedigirl

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Re: New and really struggling
« Reply #23 on: April 18, 2015, 07:35:10 PM »

I didn't take my sertraline today and actually feel more clear headed. Maybr its coincidence but haven't missed it all  :)
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Sarai

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Re: New and really struggling
« Reply #24 on: April 18, 2015, 07:57:04 PM »

Jedigirl do be careful doing that. I was on sertraline a long time and chose to come off slowly over 9 months but the last 25mg I just dropped on the advice of a pharmacist. I had a total breakdown and after 6 months I had to go back on it. Never ever just stop.
I had been fine on it at 75mg for 4 years until a traumatic time, an allergic reaction to a massive vitamin D dose and meno symptoms kicking in.
I am still taking 75mg I don't think I will ever dare stop it again.
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jedigirl

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Re: New and really struggling
« Reply #25 on: April 18, 2015, 08:14:24 PM »

Will do Sarai,
I havent been on it so long. I will be careful thanks x
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jedigirl

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Re: New and really struggling
« Reply #26 on: April 18, 2015, 08:18:50 PM »

Sarai,
how did you come off it? My tablets are 50mg and film coated so am presuming I cant halve them?
Could i take them every other day for a while do you think?
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CLKD

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Re: New and really struggling
« Reply #27 on: April 18, 2015, 09:52:05 PM »

With regards anxiety - the fight/flight response goes back to the Cave days when we had to flee from the Sabre toothed tiger or chase the mammoth for grub.  Basic instincts and survival which have never left us.  For those coping with The Tube etc. daily, they are using those skills as we had to in the Cave days but when Life takes over ………. when I think how busy I was in my 20s/30s even with back ground anxiety, to where I am now.  No way could I even consider an interview for a Job. 

So we do have similar experiences which induce the fight/flight response but for me, having panic attacks at home where once I felt safe, bu..ered up Life completely  :'( - so travelling away is harder, I no longer visit friends, we avoid family (easy to do) and tend to stick to a routine otherwise I'm floored again  ::)

There was a time when anxiety was so bad that I couldn't go into the garden if the neighbours were there in case they wanted to talk over the fence, I couldn't answer the 'phone, go to the door or walk the dog  :'(

Will read the threads above tomorrow …….
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Sarai

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Re: New and really struggling
« Reply #28 on: April 19, 2015, 12:16:17 PM »

At present I have 50mg tablets and to get the 75mg I snap one I half. They have a coating but a groove so are easy to snap.
When I went back on them 4 years ago they did make my anxiety much worse but it is known that if this happens it means they will ultimately work. It took about 2 months to come back to the old me and fix the anxiety.
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jedigirl

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Re: New and really struggling
« Reply #29 on: April 19, 2015, 01:30:03 PM »

I took one this morning as feel I have too much going on to face coming off them at the moment. Felt fine yesterday without them, or at least no different.
Maybe I'll start taking half a tablet when things ease up at home.
Thanks all x
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