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[Winnie]

CLKD

Once I left the hospital that was me discharged into to my doctors care so I presume I have no follow up appointment.
Still waiting for the results of the biopsy.  This whole thing has not been handled very well at all.  I have been at work today all red faced and clammy feeling but hands are frozen and feeling cold at times?  Went to the loo because I felt like period cramps and have a small amount of blood.  Fed up I will go to bed and not sleep even though I take antidepressants to help me sleep. ?  Winnie
 

[CLKD]

I would still ring the Consultant's secretary to see if this is 'within normal limits' and if she recommends being seen again.  It amazes me that there is no Hospital follow up with the Consultant who is dealing with these situations daily  ……….

Feet up.  If you fall asleep in the chair, let yourself drift.  Sleep when you can!

I had cold flushes with Tamoxifen    felt I was in for the 'flu.  Being cold can be a thyroid disfunction too!

Let us know how you are in the morning.

[tiger74]

Hi Winnie - to follow up on what CLKD has said.  I am also surprised that you will have no follow-up appointment at outpatients having had a surgical procedure.  How will you be receiving the biopsy results?

For what it's worth, having had a laparoscopic BSO a few years ago, I wouldn't have thought that significant abdominal swelling 3 weeks after the surgery is 'normal' so a call to your hospital or GP sounds like a good idea. 

[Taz2]

I also think you should get an appointment with your GP. Cold hands and feet while the rest of you is hot and then feeling cold at times could be a sign that you are fighting infection. Hope you feel better soon.

Taz x

[Linsey44]

Winnie, having had ovaries removed earlier this yeat, I think swelling should be reducing not increasing at this stage of your recovery.

You def need dr appoint asap in case there is infection, do you have a temperature?

Are your bowels and bladder working okay?  After 4 gynae surgeries any post op issues I had were always related to bowels or bladder especially if either of them were full.

Let us know how you get on. X

[Winnie]

No swollen belly today, but very painful abdomen and like a pulling sensation on the left hand side of stomach
not walking straight or upright because of the pulling if that makes sense. At least I had a good nights sleep last night but whenever I turn over still aware of vast sweating.   I do not have a temperature. Had a few sweats today while at work.  Winnie

[Linsey44]

You could try mebeverine used for IBS avail over counter, use it for a few days and see if it makes a difference.

Ive used it after all my ops as my insides are not very good after they have been disturbed by surgery.

Was it laparoscopic surgey? If so is the wound area at the left inflamed/red/tender to touch?

[Taz2]

I would say that the sweating is absolutely normal Winnie for someone who has been plunged into surgical menopause. Overnight your oestrogen supply has been switched off - it hasn't dwindled slowly and so given your body time to adjust - it has just disappeared.

I realise that you may be worried about the risk of breast cancer but if you have only one member of your family who has suffered from it and you are not even certain that it was oestrogen receptive then it could be that the risk is very small. Would your GP consider sending your for genetic testing?

Taz x

[Linsey44]

Winnie, i have BRCA2 gene mutation and am on HRT, like you I had concerns, relatives have had both ovarian and breast cancer and my gynae consultant said you will need something.  This was backed up by a genetics counseller, a breast surgeon and also NICE guidelines and info produced by the Royal Marsden.

He explained it by saying that pre op my natural hormone level was eg 75%, post op it drops to zero and symptoms will kick in. Taking low dose hrt will bring you back to about 30/35% and will make it more bearable and offers protection re osteo and heart disease.

I have read many articles on line to back this up, here is one that you may like to read http://medicineworld.org/stories/lead/6-2011/women-with-brca-mutations-can-take-hrt.html

I am not suggesting you take hrt but read up and make a more informed choice, in reality most families unfortunately will have someone with breast cancer.

My personal view is in addition there are lifestyle / dietary changes that we can make to reduce our risk of cancers and if we adopt those we are giving our bodies the best chance anyway.  For me its a choice of quality of life.

Also I took around 5 weeks to recover from laparoscopic ovary removal so give yourself time, some people just take longer than others to heal.

Keep updating us with your progress. x

[Winnie]

UPDATE;-
Back at the doctor's yesterday got the results of the ovary biopsy it was normal so that was a relief.  Have to go back and have smear done again due to lack of cells showing.  I decided to try and ride it out with no HRT it's not been easy the night sweats are annoying every time I turn over you feel it.  I toss and turn half the night, also rather hot in the day time, having a sweat just now so annoying.  I have returned to work and managing OK
been put on antidepressants to help with symptoms, been taking Evening Primrose Oil with Star flower also
vitamins full of vitamin b's etc.  So lets see how it goes.  Thanks to everyone for their support.
Winnie 

[Limpy]

   Wonderful news Winnie