Hi ladies,
I just thought I would give an update, there has been a lot of stuff going off but I maybe finally getting some answers. When I saw my GP in mid Jan in a real worried state he repeated all my bloods that I had done last November on Rheumy request. I then got my MRI results and mouth biopsy results and thankfully they came back all clear. The next day I found out my blood calcium was borderline high and needed repeating, this time with PTH hormone as well. I got the 2nd lot of blood results on Friday and they are both high and he thinks it is Primary Hyperparathyroidism, he is going to send me to see an endocrinologist. He said it is a benign tumour on one of the parathyroid glands, so then I said so why didn't it show up on the MRI or neck ultrasound?? He said he didn't know but also that he has never seen this in his career until this year and I am the 2nd one and it's only Feb. So have to have a chest x ray, an abdo scan and more bloods for CA125 and CA19-9 and a 24 hr urine collect. I still have a reactive lymph node on neck, still have a blocked salivary duct which burst 2 weeks ago, saw oral maxillary and they want an x ray of mouth looking down, still have the oral lichen planus in mouth and this morning the duct lump which refilled after bursting , burst again. I don't see oral consult until the 19th but I am hoping this time he can offer some help in unblocking the stricture caused by scarring on floor of mouth from where they biopsied the lesion, he is sure that is what is stopping the saliva exiting.
I already have Hypothyroidism and am on Thyroxine, from what I have read with hyperparathyroid they often watch and wait especially if they don't see it on the scans. My mother is 82 and has severe osteoporosis, she has had so many fractures in her spine and I really do not want to go through what she has if I can help it. On a brighter note, my GP gave me Vagifem for the dried out down belows and it is helping, the soreness and discomfort has really eased and he said it could also be due to the hyperparathyroidism which can affect mucus membranes i.e. mouth as
well. I am really thirsty all the time and have to drink lots to prevent kidney stones from the high calcium which is being leached out of my bones. I still feel very worried but at least am getting answers now.
Hugs to all, Busylizzie
