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Author Topic: Wishing I wasn't here!  (Read 35055 times)

Dancinggirl

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Re: Wishing I wasn't here!
« Reply #60 on: January 23, 2014, 10:35:46 PM »

Sounds good SuzyQ - hope this continues well.  DG x
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Suzyq

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Re: Wishing I wasn't here!
« Reply #61 on: January 24, 2014, 01:29:58 PM »

Thanks dg. Me too!
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Suzyq

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Re: Wishing I wasn't here!
« Reply #62 on: January 27, 2014, 09:36:55 PM »

So, 6 days on patch and I am having some minor blips each day - not terrible so far, but no major ups and downs like I was experiencing with the estrogel. What I do notice is that on patch change days, it takes 5 hours from putting on new patch, to get back up again. Does anyone else have this? May be just because it's early days yet....
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Suzyq

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Re: Wishing I wasn't here!
« Reply #63 on: February 05, 2014, 07:43:26 PM »

Well symptoms back with a vengeance since last week. Had estrogen tested yesterday and came back at 230. According to specialist this is a bit low?? So patches upped to 75 with a further increase to 100 if symptoms do not subside. He will re-check levels next month.
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CLKD

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Re: Wishing I wasn't here!
« Reply #64 on: February 05, 2014, 08:14:19 PM »

The body does take time to adjust because hormone levels are already depleted before we go for treatment  ;) at least you know that treatment does help!
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Suzyq

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Re: Wishing I wasn't here!
« Reply #65 on: February 05, 2014, 08:32:23 PM »

Hi clkd

Yes it does help! Already my levels have improved from 18 to 230 so that's great. Hopefully things will get better in the next few weeks as have been having non-stop symptoms and for some reason spent most of yesterday crying... Feeling a little brighter today and have managed some cleaning. Hoping to treat myself to a sip of wine later
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CLKD

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Re: Wishing I wasn't here!
« Reply #66 on: February 05, 2014, 08:58:15 PM »

Hormones  ::) ……….
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Suzyq

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Re: Wishing I wasn't here!
« Reply #67 on: February 17, 2014, 07:08:55 PM »

Just an update. Haven't posted as have had 2 weeks of a absolute hell and don't want to pass my negativity and depression onto others.  Am on estradot 75 and have had non-stop symptoms, headaches, dizzy, brain zaps, chronic palps, internal shaking and no sleep for 10 days. For some reason, symptoms have abated over last 2 days and I feel much better, but am frankly terrified of them all coming back at any moment - currently still counting good times in terms of hours rather than days. Off to Florida on Sunday - first holiday in 5 years and so scared that I'm gonna be ill the whole time. My only backup is ativan which I haven't taken in the last 2 weeks as am determined not to rely on these - sometimes I think I'm too stubborn. Am authorized to increase to 100 estradot but just feel that any further changes won't do me any good (you may remember I've changed from gel to patch) anyway today, so far, has been good. Hope you're all doing well as reading your stories gives me some hope that this will all get better soon...
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CLKD

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Re: Wishing I wasn't here!
« Reply #68 on: February 17, 2014, 07:11:52 PM »

Hormones are awful when they fluctuate.  Have you copies of the prescription for your journey.  Hopefully you will enjoy your holiday!
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Suzyq

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Re: Wishing I wasn't here!
« Reply #69 on: February 17, 2014, 07:22:54 PM »

Thanks clkd. No I don't have copies, do I need them? Just don't want to ruin it for my hubby as he has had to put up with so much and deserves a fabulous vacation!! Sometimes it's hard to stay positive
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lubylou

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Re: Wishing I wasn't here!
« Reply #70 on: February 17, 2014, 09:03:53 PM »

Hang on in there Suziq you will get the right balance eventually, hormones fluctuate all the time so it isn't an exact science!

Just try and let go of the worries when you are away and enjoy the holiday.

Take a list of your medications prescribed by your GP if you have a repeat prescription list or make sure you have the medication in the boxes with your name & address on so show they are yours, take them in you hand luggage. Normally only strong pain medications are an issue if you are travelling. Keep a note of what the tablets are called, dosages etc just in case you lose any and need to get some when in the states. Or just not worry about it!

Have a great time
Lubylou
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Suzyq

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Re: Wishing I wasn't here!
« Reply #71 on: February 17, 2014, 09:14:37 PM »

Thanks lubylou - you're so kind - gave me a little lift! Fingers crossed will be well enough to have a good time as am booked to play 6 rounds of golf!!
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Suzyq

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Re: Wishing I wasn't here!
« Reply #72 on: March 08, 2014, 08:29:24 PM »

Well had an absolutely fab time in Florida - wasn't ill at all and felt just like my old self. Am now back on progesterone part - ultrogestan - and feeling bloody awful again. Prior to using ultrogestan was on specially compounded progesterone cream 60mg twice a day and was fine! Don't really understand why the ultrogestan is making me feel so bad. It is also bringing me out in a red rash (not itchy). I delayed taking progesterone by 1 week until I returned from holiday but don't want to be feeling like this for 12 days out of every month!! I think, I can take maybe every 6 weeks? But not sure of this? Anybody know? Otherwise I will have to go back to specialist and see if I can change back to compounded stuff. On a good note seem to have settled in well with estradot75
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Hurdity

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Re: Wishing I wasn't here!
« Reply #73 on: March 08, 2014, 08:53:05 PM »

Hi SuzyQ

Glad to hear you had a good holiday!

I can't remember what country you are in? However progesterone creams are not considered sufficient progesterone to protect the uterus lining so this would not be recommended - and especially not that dose I would say.

Are you taking the Utrogestan orally and is it 200 mg? The leaflet I got from the French manufacturers suggested that the dose could be split into 2 x 100 mg twice a day for those who find 200 mg give bad side effects. Taking vaginally can also minimise side effects and a lower dose can be used - although this is probably not the best way if you are in a relationship as 12 days per month is quite a lot! However you can play around with the dosage and length depending on how you take it and preferably under the guidance of your gynae/menopause doctor.

It is so difficult to tell how much progesterone is needed for each individual to make sure the lining doesn't thicken which is why it is usually only the private gynaes or menopoause clinics which prescribe variations (eg longer cycles). Ideally you would need to be scanned reguarly, if for example you increased the cycle to 6 weeks.

Glad the estradot 75 is working though!

Hurdity x

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CLKD

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Re: Wishing I wasn't here!
« Reply #74 on: March 08, 2014, 09:06:18 PM »

Glad you had a great time and how lovely to feel 'well' ………… sorry it didn't last, HORMONES  :bang: :bang: :bang:
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