Hi I had to come off HRT a few months back very suddenly due to thickened endometrial lining (which, by the way has continued to thicken so now have to have a biopsy).
I was on tridestra because of progesterone intolerance. I had the progesterone tablets - no bleed. Phoned the GP was told to carry on with the E phase. Still no bleed. Couple weeks later phoned back and was told I probably was post menopausal - hence no bleed. Took me a while to convince the GP that I should have a bleed whether post or not cos of the E.
Had a scan - thickened lining. Off HRT a week later. Couple months later went back to the GP for sore bits. Was given vagifem and sent off for another scan as STILL no bleed. Now the biopsy as lining has thickened even more
Since coming off I have had in the last 2 months:
Some weight loss (after weight gain from the prog)
Less water retention (bad on prog)
Reduced headaches
Slightly less foggy thinking
A bit more energy sometimes
Mood swings but generally on the low side
Difficulty getting out of bed but had that on HRT anyway
Night sweats but now decreasing
Hot flushes but now decreasing
Initial weird low blood sugar type episodes - gone now
Nausea - gone now
Tinnitus (whooshing)
Sore bits but better with local treatment
Fewer crying spells
Anxiety - and also sometimes emotionally numb?
Am not doing much about it. Well sometimes I am - it depends. I alternate between fighting back and then giving in so I guess it's my energy levels changing.
At least I now know that it's my menopause causing issues and not the HRT or a combination of both. Which gives some relief I think. I think... I dunno. Today I'm too tired to concentrate...
Good luck to people not on HRT - I think some do better without it from what I've read.
51 now - started HRT at 48
Jx