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Author Topic: Will GP really listen?  (Read 9912 times)

Cazikins

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Re: Will GP really listen?
« Reply #15 on: June 25, 2016, 11:15:44 PM »

I think once you describe your symptoms to your doctor he/she will probably do several blood tests, take your BP etc to get a general view of your health. Haven't you just come back from the USA?, is it possible you may have picked up a bug or something?
Depending on the results they may refer you to a specialist unless it is a virus of some sort.

I've been doing breathing exercises which I was given when this happened about 7/8 years ago,

When this happened a few years ago, was it diagnosed, did you get any treatment?

Good luck CG. I really hope you get some answers. I am going through something that is a little bit similar (different symptoms) but it is "an undiagnosed condition" & it's the not knowing that is the worst bit.

Love Cazi x
« Last Edit: June 25, 2016, 11:17:48 PM by Cazikins »
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Joyce

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Re: Will GP really listen?
« Reply #16 on: June 26, 2016, 12:20:35 PM »

Only treatment was seeing a psychiatric nurse. It was caused by stress at work that time.

Came back from US three weeks ago. Initially put it all down to jetlag, but not that now.
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Cazikins

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Re: Will GP really listen?
« Reply #17 on: June 26, 2016, 02:09:26 PM »

Could it be stress related this time CG?
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Joyce

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Re: Will GP really listen?
« Reply #18 on: June 26, 2016, 05:07:22 PM »

Don't think so. Nothing at all to be stressed over.
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Cazikins

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Re: Will GP really listen?
« Reply #19 on: June 28, 2016, 04:28:24 PM »

How are you CG?
Didn't you have your appointment today with you doctor today?
Cazi x
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Joyce

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Re: Will GP really listen?
« Reply #20 on: June 28, 2016, 04:41:22 PM »

Yes, this afternoon. No further forward though. Possibly anxiety based. Blood tests on Thursday to rule out anything sinister I expect. Zopiclone for a week to help with sleep. Told to exercise more. Until this kicked off I was swimming 4/5 times a week.

BP was fine, so a waiting game for now. I've to see her again when results come back.
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Cazikins

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Re: Will GP really listen?
« Reply #21 on: June 28, 2016, 05:10:33 PM »

Thanks for letting us know CG.

Let's hope it is just a blip & nothing to worry about. Things may well settle down - & if not keep going back to your GP until you get a referral to see a specialist.
Cazi.
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Elizabethrose

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Re: Will GP really listen?
« Reply #22 on: June 28, 2016, 10:15:33 PM »

Hello Cubagirl

I've just read your post and thought I should respond.

Have you ever heard of Alice in Wonderland migraine? Sounds ridiculous I know but google it: there are some comprehensive links and some less so. I suffered with these as a child as did my daughter: I understand they can hit at any age.

The most common symptom, that of perceived increased body size, didn't apply to either of us. The whole episode and feeling is very hard to describe. It is totally weird and it's hard to put your finger on it. My daughter had very similar experiences to me.

Let me try to describe it;
It used to hit both of us at bedtime though my daughter had 'attacks' at other times too. We were frightened by it, it was like being in a surreal situation with things looming and moving slowly and in a pulsating way, sound pulsating too and getting louder and almost echoey, sounds that actually weren't there. More than anything else though, it was just a very weird surreal feeling that couldn't easily be described. The classic migraine auras, i.e. tingling, headache etc could follow but infrequently.

My parents always thought I'd been dreaming, having a nightmare, and I remember the frustration when they didn't believe I was awake not asleep. I remember too the frustration at trying to describe what I'd experienced. When my daughter started getting them I knew immediately what she was experiencing. By that stage in my life I was suffering from migraine brought on by peri and I discussed this with a specialist who was treating me. She explained that it was Alice in Wonderland migraine, though I think it had a medical label.

Of course this may be a million miles away from what you're experiencing but it rang an immediate bell when I read your post. It was explained that they are harmless, often don't result in a headache, can happen multiple times a day for some people (we only got ours very occasionally), and can be triggered by stress, hormones or have recognised or unknown triggers.

As a child I thought I was going crazy, as did my poor daughter when they first happened. They are not pleasant!

I wish you well.
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Elizabethrose

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Re: Will GP really listen?
« Reply #23 on: June 29, 2016, 07:26:00 AM »

As an aside, Cubagirl: my GP practise had never heard of these, I don't think migraine is very well understood and studied in depth unless you specialise.

Apparently the symptoms can differ from person to person but fundamentally revolve around the senses which are heightened/over active as with regular migraine. It can cause dizziness, nausea and everything feels as if it's on the move. Used to scare the hell out of me as a child my daughter was so so relieved when I reassured her after her first attack.

Migraines can appear in different ways. In children they often appear as just a stomach ache with no headache. Totally weird!
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Joyce

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Re: Will GP really listen?
« Reply #24 on: June 29, 2016, 07:45:58 AM »

Wow, thanks for that Elizabethrose! Away to read up more. Mine always during the day, never during the night.
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CLKD

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Re: Will GP really listen?
« Reply #25 on: June 29, 2016, 09:47:46 AM »

let us know how you get on!
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Joyce

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Re: Will GP really listen?
« Reply #26 on: June 29, 2016, 11:39:37 AM »

Very helpful ER.  Not got the increased body size, but the rest fits. Strangely, the bit I've found most difficult to explain, is the feeling that things like trees or buildings seem much closer than they are & I want to push them away. The on sound distortion is very true.  Going to research some more.
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Elizabethrose

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Re: Will GP really listen?
« Reply #27 on: June 29, 2016, 11:56:05 AM »

I always think that we are better able to cope with these things if we can understand what is happening to us. My daughter had attacks during the day too, once in school at the age of 9, she was really upset as you can well imagine!

I once had a conversation with another patient at the COLMC near the Barbican who described to me her AIW migraines: I think she could have been writing your story. She had them frequently, every day and had learnt to adjust her life around them. Aside from a nagging headache she didn't experience the full blown migraine. Her pure menstrual migraine then started like mine at peri. Your deja vu post also describes the feelings one gets with AIW migs, it's like revisiting this surreal experience, which is indescribable. More a feeling than anything else.

I do wish you well, and hope you have a switched on GP who can advise you. If you'd like any more detail do ask.
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Taz2

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Re: Will GP really listen?
« Reply #28 on: June 29, 2016, 04:40:26 PM »

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Elizabethrose

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Re: Will GP really listen?
« Reply #29 on: June 29, 2016, 05:17:24 PM »

Thank you for finding a link Taz, I'm ironically in bed with a migraine today and was unable to search.

Cubagirl, I have no idea of your medical history, whether you're a migraine sufferer, are on HRT or any meds. Would you allow me to say though that if a GP suggests you take an anti convulsion med that you research it first. Mine has been a very long peri/migraine journey and I've tried a lot. I was prescribed a particular anti convulsant as a prophylactic to treat the chronic migraine, that made me feel more ill than I've ever felt in my life. We none of us know how we will react to meds etc but the known side effects of this particular drug can be truly shocking. Hope you don't mind me saying this.

Hopefully, if you do have AIW migs, that just knowing and understanding what is happening to you will help reduce the pressure and stress which can help activate the pesky things in the first place.

I wish you well.
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