Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: Nas on October 08, 2023, 11:55:30 AM
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Ladies, I need your advice ( yet again)
So, my long episodes of pain, are caused by a somewhat large subserosal fibroid. My uterus is measuring the size of a 24 week pregnancy!! The beast has grown 2cm in 7 weeks. I have fluid in my lung.
Gynae tell me a hysterectomy is imminent. Please god let it be a full hysterectomy!
Now for the best bit… ready? …drum roll… 🥁
She wants me OFF HRT IMMEDIATELY!!! What the hell?? How am I going to do that? Not taper slowly.. but off immediately ( for surgery ).
Please somehow tell me how to cope with this huge physical and psychological adjustment.
How am going to work until my op??
Despair.com 😩😩😩
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Hi Nas. I can only give you my experience. Very similar to you though! I had a very large fibroid and had a hysterectomy and oophorectomy. I was already on HRT and at no time did my gynae tell me to stop it before my operation . That advice is surely outdated and was only relevant when we used to be given oral oestrogen in the form of Premarin. Transdermal does NOT increase risk of blood clots etc. If it were me I would get a second opinion xx
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Thanks Gnatty,
I am on the patch, so don’t know what the issue is? How am I going to get a second opinion? X
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Ask the gynae if its really necessary for you to come off HRT immediately as you are frightened of the consequences.
I am assuming its not good to have fluid on the lungs and your HRT is obviously feeding the fibroid, the reason she wants you off it immediately.
You have been through hell but now looks like there is light at the end of the tunnel for you. Hope you don't have to wait too long for this op, Naz X
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Hey partner,
At last you are getting some proper action after all.you have been through. I just Googled ( I Know!) and the GPNotebook, i.e advice for GPs themselves, definitely says ORAL hrt, just as Gnatty says.
I need a specific blood test next month from an endocrinologist ( hormone bits) that also states to come off oral contraceptives or oral hrt. Patches could continue.
Like you I am on patches,and also oral thyroxine, ( again hormone related. ) but to double check I phoned the hospital dept who confirmed I could continue with both. Can you ring the hospital dept who will undertake the hysterectomy?
Good luck towards some much needed relief :tulips2:
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The advice about coming off HRT is because ORAL estrogen increases the risk of blood clots. But TRANSDERMAL estrogen poses no increased risk. So there's no need to stop it before surgery.
If it were me, I'd just keep taking it and wouldn't tell them. I'm phrasing that so it's not advice. It's just what I'd do. Do you have a meno specialist you can speak to about this? You might feel more confident about doing it if you had another doctor's opinion to support you.
Also, you might still benefit from the utrogestan after the hysterectomy - some women find it helps a lot even if they don't need it when they don't have a uterus. If you have a history of any endo, it is also recommended after hysterectomy - in case there is endo outside the uterus somewhere.
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Hi Nas, maybe have a look at the Balance website and do a search. I am pretty sure Louise Newson has produced a leaflet about this.
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Regarding the utrogestan Joziel mentions, some of us are glad to see the back of it and others can't do without it ( post hysterectomy etc I mean). I do much better with it but only take it every other night. It depends how you find it now? If you hate it then you might be glad to no longer have to take it. The exception as already mentioned is if you have endometriosis but I think they would have mentioned it if they thought that was present as well as the fibroid x
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Hi Nas,
It could be because your gynae doesn’t want the fibroid to continue to grow, possibly making the op more difficult. Just a thought anyway.
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You are probably right Jenna.
It’s such a difficult thing to have to do, when you’ve got to work/ drive/ deal with life admin etc.
I do have a menopause specialist joziel. She has officially discharged me, but always answers the odd email question.
I will double check Sarah, that’s all I can do I think. I feel it’s more to do with slowing down the growth, more than anything though.
Thanks all.
Onwards and upwards 💪
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Hi Nas,
I have no advice from personal experience. But, a friend of mine was on hrt patches. She started getting problems with pain and bleeding. She is late 50's and past menopause. She was sent for a TVS and told she has a fibroid that is calcifying and she had to stop hrt just like that. All her pain and bleeding have gone but she has her menopausal symptoms back. She is just getting through day by day.
Maybe they want you off it immediately so the fibroid doesn't grow anymore as I think the larger it is the more invasive surgery. I have also heard of people having to have injections and treatment to try and shrink their fibroids a bit before surgery and if this happens then it delays surgery whilst they wait for them to shrink. How big is your beast now?
Hopefully you won't be waiting long now. Good luck and take care,
Bex.
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Thanks Bex
It is 8cm.
I honestly don’t know.
I hope they dont want to give me injections, that would just draw it all out even longer.
How is your friend getting on?
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Hi Nas
My friend is doing okay. Like I say she takes it day by day. I think sleeping is her biggest problem.
I am pleased you are getting somewhere with gynae. I am still waiting for my appointment even though my doctor expedited it 2 weeks ago due to my pretty much daily pain and bleeding. I did ring the hospital as per my doctor's advice as soon as they expedited it but got a right mouthful from the hospital saying it was their consultants decision whether I get seen sooner and not my doctor's!! I might ring again tomorrow now their strikes are over.
Take care.
Bexs.
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Nas I think I mentioned my friend before. Two years waiting and she is still not allowed to start hrt as they don't want her two large fibroids to grow any bigger. Do you know how long until the hysterectomy? She also had a few rounds of the injections to try and shrink them before the op, both times her op was cancelled. Not trying to be a downer but I do think you need to push hard for timescales, play every card you've got, even if it means going for choose and book with a different Trust if you can find one with shorter waiting lists.
I am so glad, however, that you finally know what has been causing you all this pain and that you have a path out of there - now I just want that path to be clear and quick for you xxx
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And my friend now, she is getting through it day by day. Very heavy and painful periods but she has good days and even weeks. You may surprise yourself at how well you cope even on a lower dose if it lessens the pain.
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Hello Nas
I am so sorry that you are in this position but I'm keeping my fingers crossed that your operation is soon.
If you are concerned about staying on a full patch could you reduce the dose a little by cutting it while you wait? Apologies if this isn't helpful but it could be a compromise solution until you have your hysterectomy.
Whatever you decide I wish you well and sending hugs.
K.
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https://www.balance-menopause.com/menopause-library/do-i-need-to-stop-hrt-before-surgery-factsheet/
Advice from Dr Newson says you don’t need to stop transdermal hrt for an operation.
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Hi Nas,
Perhaps there is a cut off for the size of fibroid in regards to whether you can have a laparoscopic hysterectomy vs abdominal hysterectomy so that might be a factor on why the gynae is saying you need to stop taking HRT. Of course its all do-able having an abdominal hyster but recovery is much faster when done by laparoscopy if you can. Did the gynae give any indication on what kind of hyster it would be and any timeline for 'imminent'? If it's around the corner - a matter of a few weeks then personally I would just taper it down. x
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Yes to be fair it does depend on the waiting time. I paid to go privately so was only waiting three weeks - the fibroid wasn't going to grow much in that time period - and it was already too big for anything other than abdominal surgery.
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Nas, sorry late catching up with your news, but pleased to know the hysterectomy you were hoping for is now in the pipeline. Hysterectomy has been the only major op I was not told to stop HRT for, despite arguing the case prior to the others for transdermal oestrogen's neutral effect on clotting. For the hysterectomy I was pleasantly surprised that it was expressly stated to continue with HRT, but my gynae is very clued up on all things menopause. I agree with the other ladies though that there may be another reason you've been asked to stop - perhaps preventing a further increase in the size of the fibroid & uterus, so I think you'd be wise to ask the gynae asap. I wish you all the very best with it & hope it will be soon.
Wx
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Hi Nas
I can't add anything to what others have said and although I haven't been on the forum much recently I do remember some of your story and the difficulties and pain youhave been having as you struggle to find the right HRT.
Wishing you all the best for your forthcoming op which I hope happens soon and for a speedy recovery back to health and normality, with the help of oestrogen!
Hurdity x
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Thanks all.
I haven’t stopped the HRT, just reduced.
Ct scan tomorrow, of chest, lungs and abdomen. Looks like the fibroid may be sinister.
Hoping hysterectomy will be soon!
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Thanks all.
I haven’t stopped the HRT, just reduced.
Ct scan tomorrow, of chest, lungs and abdomen. Looks like the fibroid may be sinister.
Hoping hysterectomy will be soon!
Oh gosh Nas, I hope it isn't. What makes you think it is, did the biopsy show something? I have everything crossed for you that's its benign and the hysterectomy is quick!!! X
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Hello again Nas.
Hopefully your CT scan tomorrow will bring reassuring news.
I will be thinking of you and please let us know how you get on.
Wishing you well and sending hugs.
K.
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Thanks ladies.
Yes, unfortunately I was called into the hospital a week or so ago. They wanted to share the mri results. It makes grim viewing ( and reading !)
It has grown significantly.
The features I’m told, are typical of a malignant, rather than a benign growth. I have been assigned a “ support nurse” also.
So, tomorrow a CT, then I’m hoping my case is discussed during Fridays multi disciplinary meeting and they give me a date for a hysterectomy. I simply cannot have this thing growing inside of me a minute longer. :'(
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So sorry to hear of this worry Nas. Everything crossed for you for tomorrow. Will be thinking of you.
Wx
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Oh jeez, I'm so sorry to hear that. Totally agree, get it out ASAP and at least things seem to be moving without delays now. Hopefully it's contained to the fibroid so once its out it'll be all out. I think that often happens with uterine things doesn't it. And ovaries gone will also mean no more estrogen to fuel any further hormone related growths. I have no experience to back this up, but I'm rooting for you and wishing you well xx
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Thanks Wren x
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That’s my hope penguin, that it’s contained within the fibroid.
There is fluid on my lung and I’ve a raised Ca125. I’m aware what this can mean, but I also know that these can be attributed to other things.
Just want it all sorted now.
I have no motivation to go to work either , just can’t focus.
:-\ X
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Just to let you know that im thinking of you. You will fear much better once you've had your hysterectomy.
take care xxx
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Thanks disco, I can’t wait for this surgery x
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That’s my hope penguin, that it’s contained within the fibroid.
There is fluid on my lung and I’ve a raised Ca125. I’m aware what this can mean, but I also know that these can be attributed to other things.
Just want it all sorted now.
I have no motivation to go to work either , just can’t focus.
:-\ X
I was told even menstruation can raise ca125 as can benign fibroids, so fingers crossed! X
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Hey partner,
Not much more to add then echoing all the support and thoughts of all those already rooting for you. We can't do much but we are right behind you with this
Will be thinking of you 😘
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Hi Nas, just another message of support and I will be thinking of you.
Hoping this nightmare will be over for you very soon and you can move on and start to enjoy life again xx
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Thanks ladies,
Onwards and upwards as they say. Lots to do to today and the sun is shining ☀️🌞
Think i will be coming back as a man in the next life! 🙋♂️ x
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Let us know when you get a date Nas.
And yes CA125 can be raised even with something benign like endometriosis. It just means inflammation. Which can be caused by lots of things, a giant bleeding fibroid would be one...
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But if you come back as a man you'll need to put up with all the glaring and cursing and tears I throw at my own man when I feel crap ( Like 99% of the time)simply because he's a man and I'm not! ;D
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Hello again ladies.
I just wanted to clarify that C Reactive Protein or CRP is the blood test for inflammation and this is elevated in automoimme conditions of which endometriosis is one.
A raised CA125 is a worry but that this can be attributed to many different conditions in the body.
Take care ladies.
K.
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Hopefully if this is sinister on MRI you will be considered for emergency surgery.
:foryou:
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Hi Nas,
Just wanted to let you know that I’m thinking of you and wishing you all the very best. xx
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Thanks again ladies :hug:
Here’s hoping surgery will be soon!
Very true Sarah, but I’m STILL returning as a man!! 😂
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I’m thinking of you I had similar in March and know how your mind will be going overtime. My hospital was fantastic my biopsy came back abnormal saw the consultant 2 days later given an oncology team for support. I had cancerous cells in my womb originally I was told 6 weeks for total hysterectomy but they fitted me in quicker was done 4 weeks later. I just wanted everything out! The worst bit I had to stop hrt straight away when I saw the consultant and since surgery he doesn’t want me back on it. My tumour marker was high for my liver/pancreas but they said lots of things can raise it I’m waiting to have my gallbladder removed next😔 good luck and wish you a speedy recovery x
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Just adding my own good wishes for you Nas. I hope the CT scan goes well and that you get some good health back. Sending lots of hugs and love to you xxx
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Thanks Donna-paul and Suzy,
Like you Donna, I just want it all out asap. I don’t think I can wait six weeks though!
They have already assigned me this nurse and I think ( if I heard the consultant correctly) that I may be having the surgery done at The Christie hospital. That suggests to me, that they must be feeling fairly confident with what they are thinking?
Why are you having your gallbladder out? Are they taking all your organs away? ( feel free to message me if you would prefer) How are you coping with no HRT? Why do you need to stop if you don’t have any organs for the oestrogen to influence? ???
Xx
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Hi Nas,
Wishing you well for your CT scan. Like the other ladies have said CA125 can be raised for other reasons and isn't a stand alone reliable test. I had endometrial cancer last year with full hysterectomy - contained in the uterus and consultants on the whole are wary of saying yes to HRT post a gynae cancer diagnosis but it does also all depend on what stage and grade the final pathology shows too and some recognise that if early stage/grade vs intolerable symptoms / quality of life then they are open to discussing and prescribing low dose. Hope you get a date very soon and if you ever want any info on hysterectomy etc then please do shout or PM me if you prefer. x
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Thanks Donna-paul and Suzy,
Like you Donna, I just want it all out asap. I don’t think I can wait six weeks though!
They have already assigned me this nurse and I think ( if I heard the consultant correctly) that I may be having the surgery done at The Christie hospital. That suggests to me, that they must be feeling fairly confident with what they are thinking?
Why are you having your gallbladder out? Are they taking all your organs away? ( feel free to message me if you would prefer) How are you coping with no HRT? Why do you need to stop if you don’t have any organs for the oestrogen to influence? ???
Xx
I really hope you get operated soon I think the stage you are at is the worst it’s the all what ifs. Once you know what you are dealing with and have the op you can start healing physically and mentally. Do take any help offered to you I didn’t and now 6 months it’s hitting me as well as lack of hormones. Im doing ok worse bit is hot flushes night sweats and sleep problems. Like suzysunday said some Dr really don’t want you taking hrt after cancer mine did reluctantly say if symptoms got severe I could have a low dose. I did have lumps in my breasts at same time so had to have lots of tests which did come back clear the Breast dr was anti hrt. Im trying to manage without it has to be your choice. My gallbladder has decided to play up so need to come out😔 be thinking of you keep strong
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Thanks Donna,
I really appreciate you sharing your story with me.
I had my CT scan today, but they couldn’t fit the canula ( bad veins from chemo for breast cancer 14 years ago) So they said that I may have to go back and have it redone and have canula fitted beforehand.
My MDT meeting is on Friday. They will then share with me their findings and treatment plan. This is the worst bit, the waiting.
I just want the thing out my body. I don’t trust my body, not any more. It seems to like to grow sinister things!
Sorry to hear about your gall bladder playing up, another useless and troublesome organ!
I just get an incling that things aren’t going to be straight forward!
??? X
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Nas I just seen this, I had a hysterectomy many years ago and was ok to still use my patches. Best wishes x
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Best wishes from me too :-*
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Nas,
Just read your post and wishing you the best. We'll all be on tenterhooks until Friday, waiting for the findings.
Do you know the cause of the fluid in your lungs? I didn't see anything in the thread about your lungs and whether it's related to the fibroid.
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Thanks Sage and Floral x
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Blimey Nas,
It's just going on and on for you. I know the waiting is hard, every day just drags when you just need some full answers. But Friday sounds more positive if a plan of action will be out in place. It's a slow journey and a hellish one but you seem to be getting closed to some positive action. You've just been through so much. You can do this, look at the times you have had to boost me - I have had the year from hell but somehow am still standing.
Keep going partner,Friday will be a big day, take someone with you? To listen to the bits you may miss or take notes for you and just be there for you.
Xx
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I don’t know the cause of fluid in the lungs yet Ana, I’m
guessing that’s why they’ve done the CT today.
Just hoping it’s a straightforward hysterectomy, end of.
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Hello again Nas.
Thank you so much for the update and I'll be keeping my fingers crossed for you on Friday.
Sending you best wishes and lots of hugs.
K.
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Nas, I'm sorry to come to this thread late but I wanted to wish you all the best for Friday. Hopefully you can get the whole lot taken away as soon as possible. That in itself will be a massive relief for you.
I can say in all honesty that I have yet to meet a woman who has regretted having a hysterectomy.
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I don’t think It’s a fibroid at all.
It’s only the u/s scan which suggests a fibroid. The MRI reveals a very different picture and the two don’t tally.
MRI says concerning features.
Fibroids in the main, are benign
and distinguished. Mine isn’t. My letter says the opposite of benign. ???
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Thankyou Mary.
Honestly, if they called me in now to perform a hysterectomy, I would pack a bag and jump in my car and go! The waiting is awful.
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As SarahT said, you have helped people on here including myself. It really is awful waiting results so again hoping things have a positive outcome for you x
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Thanks suzy :)
I am thinking if you too and will pop you a message this week x
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I will message you tomorrow as I have a bit of news but it's not great. X
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Okay suzy, will catch up tomorrow x
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I just wanted to say that I hope you can make some progress today regarding a treatment plan. The waiting and not knowing is really stressful.. Sending hugs and good wishes x
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Hope your appointment goes well today Nas, been thinking about you x
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Me too Nas 😍
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Hi all
Quick update.
Had appointment with consultant today.
The fibroid is a soft tissue sarcoma within the womb.
No obvious sign of spread within the chest or abdomen.
Lung has fluid, which will be sampled soon.
All treatment to take place at The Christie Hospital, including the total hysterectomy.
Don't feel too bad, now I know what is what.
So there we are. Ladies, if you have any post meno bleeding/aches/pains, that is not usual for you, don;t hesitate to get it checked out.
I would not have been referred onto the two week cancer pathway, if I had not reported three separate episodes of bleeding to my GP. I could have easily left it and put it down to the HRT. Normal gynae wait where I am, is around 50 weeks!
xxx
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I just wanted to say that I hope you can make some progress today regarding a treatment plan. The waiting and not knowing is really stressful.. Sending hugs and good wishes x
Thanks Suzy,
I have dropped you a message :)
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Hey you,
You kind if expected this I guess. Good you feel a bit more in control knowing what you are dealing with. You were so right to keep on at your gp and fighting when you were certain something was very wrong. You know everyone on here are all rooting for you.
I will have a mega size bar of chocolate for you when you are up for it.
Rest when you can partner xx
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Oh I'm so glad there is no sign of spread. And that you don't feel so bad now you know what you’re dealing with. So good you kept on pushing to find out what it was. I still don't understand why you weren't put on the 2WW pathway given all the pain you had though. Rosie on another thread had the same with it taking months and months to diagnose, in her case she was still classed as peri despite being on hrt for years and them not actually knowing if she was or wasn't. Goes to show we have to push and not take no for an answer if we feel something isn't right. I'm so glad you did.
How long til the op? We're talking weeks not months right? X
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Hi all
Quick update.
Had appointment with consultant today.
The fibroid is a soft tissue sarcoma within the womb.
No obvious sign of spread within the chest or abdomen.
Lung has fluid, which will be sampled soon.
All treatment to take place at The Christie Hospital, including the total hysterectomy.
Don't feel too bad, now I know what is what.
So there we are. Ladies, if you have any post meno bleeding/aches/pains, that is not usual for you, don;t hesitate to get it checked out.
I would not have been referred onto the two week cancer pathway, if I had not reported three separate episodes of bleeding to my GP. I could have easily left it and put it down to the HRT. Normal gynae wait where I am, is around 50 weeks!
xxx
Hi Nas
I’m glad you don’t feel too bad now and you know what you are facing. That’s good there is so sign of spread.
Been thinking of you and now you are on the pathway to recovery xx
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Hi penguin,
Yes weeks rather than months.
It’s growing too fast for months, so they are aiming for 3 weeks time (I think).
I knew things weren’t right, from back in May. GP diagnosed IBS, diverticulitis, gasto problems etc. He refused to accept a fibroid could cause such havoc.
Sarah, the chocolate will be much appreciated 🍫🍫🍫 thank you. Hope you are okay?
Torii, Thankyou for your good wishes. As you say, the road to recovery starts here 💪🙏🤞 x
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Ohh 3 weeks sounds good! Hopefully done and dusted and healed sufficiently in time to enjoy cjristmas x
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That’s the aim penguin 🤞 x
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Oh Nas, I have also been thinking of you. So glad that there is no evidence of spread and that a plan is in place to get you to a good place. Sending you lots of :hug:
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Hi Nas I’ve followed your story for a long time and you gave me encouragement when things were tough for me. I’m so sorry that it’s taken you so long to find out what’s wrong and send you best wishes for the next few weeks and months xx
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Nas,
So good to hear it's contained and you'll be fast-tracked for surgery. You may recall that I've been dealing with unscheduled bleeding for years and my old meno specialist was entirely blase about it. From time of referral, it took 18 months for me to see another specialist. My new doctor has switched me to sequential transdermal to see if we can control the bleeding while investigating adenomyosis as a potential cause.
A friend on systemic MHT experienced an unexpected bleed and tests revealed it was endometrial cancer. She couldn't believe it. She's so healthy and felt perfectly fine at the time with no pain or other symptoms. She was very lucky and received a diagnosis and hysterectomy within a month. The cancer was contained and she hasn't had a recurrence. Prepandemic. She didn't have to deal with the long wait times that some of us are still experiencing.
I'm glad you finally know what you're dealing with. Keep us posted on the lung fluid sampling. I hope that issue doesn't delay surgery. Fluid in the lungs and general anaesthesia don't sound like a good mix. Wishing you all the best!
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Hi Nas, so glad there's no spread & that you're likely to have the surgery very soon. Please message me any time if I might be able to help with any qs about the hysterectomy or whatever. :hug:
Wx
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Hello Nas,
Sorry you have all this going on but glad to hear you know what is what now and it's contained in the womb & with surgery soon. Like Dotty said, I've also followed your story for a long time (albeit off radar) and know you have been through the wringer with it all. I wish you well going forwards with each step and I'm sure once you've had the hysterectomy, it will be a welcome relief to be out of all the pain, discomfort etc I remember the shock I felt at being diagnosed but to be out of all the months of second guessing and in and out of the doctors trying to find out what was going on, to then finally getting it all taken out brought utter relief. Take care x
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Thanks once again ladies :)
I am very pleased to have gotten to the bottom of it all, once and for all.
All this second guessing etc, plays havoc with ones mental health!
Ana21, that is very typical of some cancers I think, in that often there are no symptoms and you do feel perfectly fine. I remember when I had the breast cancer diagnosis 14 years ago, other than the lump, I felt perfectly fine. It was the chemo which took the wind out of me and made me feel ill!
Wren, I will probably message you at some point, with a heap of questions! ;)
I feel in safe hands now that I have been 'handed over' to the experts. No more endless GP apppointments, trying various pain killers etc etc.
Will keep you all updated of course and hope that soon, there will be light at the end of the tunnel!
xx
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So there we are. Ladies, if you have any post meno bleeding/aches/pains, that is not usual for you, don;t hesitate to get it checked out.
I would not have been referred onto the two week cancer pathway, if I had not reported three separate episodes of bleeding to my GP. I could have easily left it and put it down to the HRT. Normal gynae wait where I am, is around 50 weeks!
xxx
I also want to send my very best wishes to you Nas as you go forward.
I wanted to copy your quote so it doesn't get lost as your message is so important, its hard to believe that some women still ignore symptoms.
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Thank you Ayesha,
It can be tricky to get to the bottom of these things, as so many of us are finding out.
Fibroids can cause pain and bleeding. So can 101 other conditions.
Even the gynae who referred me for the MRI, said "fibroids often shrink during menopause, nothing to worry about"
Well, I am, 5 years post meno and not only has the thing developed, it has also grown quickly.
The MRI also revealed features which the CT scan did not.
If in doubt, keep pushing for tests/scans/whatever :)
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Bless you Nas, please do message me any time.
Wx
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I echo everyone's good wishes on here and glad that you feel in safe hands after all the uncertainty. Do keep us updated and hope you can get treatment soon. X
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Nas just wanted to say I’m thinking of you xx
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Thank goodness you persevered, Nas. Onwards and upwards now and sending you my very best wishes. xx
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Hello Nas.
I am so pleased that you have an effective plan for the future. You have had a rough time and at last things are being sorted out for you.
Lots of luck for the op and wishing you a speedy recovery.
Take care and keep us updated.
K.
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Good luck I hope surgery is quick and goes well. Couple of tips fill your freezer with plenty of meals and do a spring clean of your house when you can before. Have plenty of peppermint tea or oil for after surgery x
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Thanks for the tips Donna-paul.
I’d better get my act together I guess and start sorting the house etc.
Can’t say I’m looking forward to the next few weeks, but the decision has been taken out of my hands now.
Floral, Jenna, Kathleen, thankyou for you good wishes. Here we go then…💪 x
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All my fingers are crossed for you, Nas :-*
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Thanks Sage 😊
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I also want to wish you the best Nas. Thank goodness the operation is going ahead soon. Your diagnosis certainly explains the dreadful pain and bleeding. It's good news about it being contained in the womb too.
Please keep us updated on your progress.
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Thanks Mary..
Yes I am very pleased the op is going ahead soon too.
The thought of this "thing" growing further, fills me with dread.
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Hi Nas
I haven't been on the forum much this past week so have missed your updates. Although I haven't read this whole thread I have followed something of your story intermittently over the past few months and I am so glad you have at last had a diagnosis and treatment to happen soon. I remember all your struggles with bleeding and trying to find the right HRT.
Wishing you all the best for a successful operation and also for good outcomes with other investigations.
Hurdity x
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Thanks Hurdity.
Hopefully on the right pathway at long last! X
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Hi Nas, I’ve not been on this thread for a while and just found it, I’ve read it all and I just want to say, I’m so glad it hasn’t spread and that your operation is soon. I really admire your strength and determination. I will be thinking of you and look forward to seeing your updates. X
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Thankyou Katherine, that’s very kind of you :)
Tuesday is the next big hurdle; lung biopsy. It’s going to hurt something tells me! :-\
Warm wishes to you all x
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Will be thinking of you Nas.
Wx
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Good luck partner
We are all behind you offering what we can for you. Things are moving at last, take care of yourself as best you can x
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Thanks wren and partner Sarah
Not feeling it today at all.
Takes me back 14 years, hospitals, needles etc.
Nope, don’t want to do it. :'(
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Oh Nas, am sorry you are having a rubbish day. One day, perhaps even one hour, at a time. Is there anything you can do, no matter how little, to cheer yourself up / distract yourself for a bit today? X
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Hi Naz and so sorry you are feeling rubbish and like others on this thread I hope things get better for you very soon. Waiting for appointments is awful so I hope you can distract yourself in some ways till then, though that's easier said than done, I know. X
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Oh Nas, I’m so sorry you are having to deal with all of this. We’ll all be thinking of you and wishing you the very best. xxx
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Thanks all :)
Everything will be okay.
You know how it is, you just want things sorted ASAP.
Onwards and upwards 💪 x
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Yes I definitely know that feeling
Hopefully lung biopsy results will be quick, and they'll then be able to plan your treatment with dates!
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Exactly penguin.
I’m like a kid waiting impatiently for Christmas at the moment!
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Hi Nas,
I hope the biopsy goes as smoothly as possible for you next week. The waiting game is endless but I hope you have a full plan with your dates in place very soon so you can be on your way with it all and through the op. Did you decide to taper off the HRT in the end as the hysterectomy is hopefully soon or off it now completely? x
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Hi Nas,
I just wanted to drop by and wish you the very best. You helped me out with a couple of things earlier this year. Wishing you the very best for your operation and recovery.
Em x
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I'm also wishing you all the very best for next week Nas. Hopefully the results will be back quickly and then a date fixed for the hysterectomy.
Please keep us posted.
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Sorry I missed the middle of this thread. I'm so sorry about your diagnosis. Good luck for Tuesday. You'll be in good hands at the Christie, everything crossed for a positive outcome.
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Hi Nas
I also want to wish you the very best xxx
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Lung fluid biopsy done.
Bit sore but okay.
Mentally exhausted already.
I just want my surgery now.
Hope you are all well :)
X
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I was waiting for you to update us. Fingers crossed, sweetie 🤞🏻🤞🏻🤞🏻🤞🏻 :-*
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Glad to hear it went okay, when will you get the results?
How are you faring otherwise?
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Hey Nas,
Thanks for the update, you must be a funny mix of worry, relief it's done and physically and mentally knackered. Don't forget it's ok to acknowledge just how much is going on right now,your health plus normal (?) life. Remember just to sit down and breathe. Much as we can be, we're with you xx😘
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I don’t know how I feel.
In limbo i guess.
Can’t focus at work; can’t focus at home. Sleep is caput. Worried sick about this damm fluid.
:(
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I think Nas you are justified in feeling like this. Huge stuff going on. Maybe don't try to fit yourself in an emotional category. You're going to be all over the place. Don't be forced to stick that Happy Smiley Everything Is Fine Face that we all use at times. Because yes, we all do that one.
Of course you are worried and scared. It's big scary stuff. All your feelings are valid,especially with your previous health history. But the ball has been set in motion. Maybe that in itself is a No Turning Back feeling too.
Take the tiny breaks in each day as you can. Talk to whoever you need to,breathe girl and know it's ok to feel this way. You are amazing, but you are human too..x
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Thanks partner :)
Just feel mighty useless right now. Useless in work and useless at home.
What ever they find, they will have a plan going forward, won’t they? Nothing is going to be left to chance.
Okay, here we go then….x
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Thanks partner :)
Just feel mighty useless right now. Useless in work and useless at home.
What ever they find, they will have a plan going forward, won’t they? Nothing is going to be left to chance.
Okay, here we go then….x
They will definitely have a plan, and there'll be more than one person involved in the plan too, an experienced team, the best minds coming at it from different angles to work out the best treatment combination for you. Once you get the outcome of the fluid, I bet things will move really quickly. I totally get how you feel about being in limbo at the moment. Hopefully this the last piece of the jigsaw that they need. When do you expect to hear next? X
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Hey penguin, you are totally right. There will be more than one person involved in the plan.
I like the idea of “the best minds” :)
I don’t know when to expect to hear penguin. I’m hoping once these fluid results are in, Christie hospital will contact me; maybe this week, maybe next. X
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Hey penguin, you are totally right. There will be more than one person involved in the plan.
I like the idea of “the best minds” :)
I don’t know when to expect to hear penguin. I’m hoping once these fluid results are in, Christie hospital will contact me; maybe this week, maybe next. X
Keeping everything crossed for you to hear this week and that next time you post you'll have a date xx
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I hope you are coping as well as you can and getting support from your family. I hope the fluid results come in soon so that you can focus on getting a date for the operation. This feeling of being in limbo must be so stressful so be kind to yourself x
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Thanks suzy,
Hope you are okay x
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Not so great really x
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No, I thought not Suzy. Will message you tomorrow x
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Just wanted to let you know I’m thinking of you Nas and checking this thread for news. Please go easy on yourself, you need to put all your energy into self care and not worry about other things, your health and wellness come first. I hope you get some news soon. X
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Thankyou Katherine
I’m very tired as still working full time. Each morning, I struggle to get out of bed, but somehow drag myself through the day! I know I should get myself signed off, but can’t face being at home.
I an appointment at Christie hospital on Thursday and I am rather scared.
Will keep you updated as and when things happen.
Best wishes to you all
X :)
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Hey Nas,
Course you will feel scared. I just had a relatively simple but horrible injection\blood test in hospital and was in bits, let alone what you are facing.
But it's good the appt is soon,that way, as someone else said previously, there will be a team working a plan to your best way forward. I don't want to sound glib at something so personal and scary to you, but this is what these medical people do day in and day out. It's their job to do their best for you.
Take some time to work out any questions you have, and hopefully someone to be there with you. Evening you a massive and supportive hug. X
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Hi Nas and of course you will be a bit scared about Thursday. I can understand you carrying on working so you are not at home with it all going round in your head, but it must be hard for you. So sorry you are struggling. Thinking of you, like others are here x
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Thankyou Katherine
I’m very tired as still working full time. Each morning, I struggle to get out of bed, but somehow drag myself through the day! I know I should get myself signed off, but can’t face being at home.
I an appointment at Christie hospital on Thursday and I am rather scared.
Will keep you updated as and when things happen.
Hi Nas, if working is helping you, it sounds like it’s the best thing for now, you can just do what you feel is best for you. At least you know being signed off is an option if you change your mind later. As the other ladies have said its normal to feel scared but I hear the Christie has an excellent reputation. We’ll be there with you in spirit and when you get back you can let us all know how you got on. Xxx
Best wishes to you all
X :)
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Sorry Nas I think my message above has got mixed together with yours!
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Hi Nas
Am counting down with you until Thursday, by which time you'll know what's what and you'll have a solid, well thought through plan with things hopefully moving quickly for you xx
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Thanks all.
So tried and the pain, gosh I wish it would just go away! :'(
Sarah, the horrid hospital tests up you had, well I would have been the same, without all this additional rubbish. It’s all relative at the end of the day. I really hope you have recovered from the ordeal partner 🌺🌺
Will update tomorrow.
Time to attempt a shower and work! X
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Good luck tomorrow be thinking of you. Except any help especially emotional. As you are now on a rollercoaster of ups and downs. If you have a cancer charity nearby ask for support even if you think you are ok. We’re i am we have Big C charity centres and I’ve found it’s good to talk to someone. The shock can came months down the line/after surgery x
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Hi Nas. Don't know you but wishing you speedy treatment and a good outcome. Take each step at a time and then cross it off. Our positive thoughts are with you
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Warm good wishes, thoughts are with you x
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Hello Nas
Best wishes for tomorrow. I will be thinking of you.
Take care and sending hugs
K.
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Thinking of you tomorrow my partner in hormone madness, all things related healthwise... and chocolate x
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Thanks all.
Totally exhausted today.
After Friday, I will be going off sick. Work know of my situation, but have done zero to make my day more comfortable/ easier/ better. They are short staffed and frankly they are not bothered.
Donna-paul, I will take your advice on board. I just want the hysterectomy. It’s like I can literally not survive another day with this pain/ thing growing in my body. It’s too much.
Will update tomorrow 🌺 x😊
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Thanks partner Sarah ❤️
Total total madness isn’t it?
Chocolate/ wine/ whisky/ brandy at the ready!!
X
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Oh Nas, most of those delights are a distant dream.... since ME many years ago I realised I could no longer tolerate alcohol, cigs, or too much caffeine any more! Over stimulate the body. My biggest thrill is a strong flavoured decaff coffee!! Sad but true.
However.....chocolate must remain in my heart. And mouth. Willing to share my choc stash with you anytime. Take care. Xx
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Also will be thinking of you tomorrow. Really wish you ALL the best! Xx
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I’ll be thinking of you tomorrow too Nas x
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I will also be thinking of you tomorrow Nas. Wishing you all the best.
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Yes, wishing you all the very best for tomorrow, Nas. xx
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Thinking of you, Nas. :-*
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Best wishes for today Nas, I will be thinking of you. One step closer to getting this sorted!!! Please lean on us all for support. And chocolate xxx
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Thanks everyone :)
Well, still no date ( although they say 3 weeks !) and no lung results ( being chased up!).
Met the surgeon and nurse specialist at the Christie hospital. Pre op is Monday.
Planning on going off sick on Monday, I’ve had enough and am tired.
Will update as and when things happen. For now, it seems a bit more waiting! :-\
X
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Oh the waiting game sucks doesn't it. You are so right to stop work, especially given their attitude towards you. But you met the team, so at least you have some familiar faces and know your next appt. Getting there slowly Nas.
Try to rest up, with people who love you around you. As Penguin rightly said, lean on us not you need to. Rest now xx
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Fingers crossed for you, sweetie :-*
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Thanks partner Sarah and Sage.
At least as you say, I have met the “ team” which is something.
Think gynaecologist must have disturbed the “ thing” as it’s now known as and is causing pain >:(
It needs evicting asap!!! When it’s out, I will take a sledgehammer to it and mash it into pieces!!! ;D
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Would make a good horror movie that!! ;D
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Oh at least you are calmer then....But I would happily start a fund on this forum to buy the sledgehammer for you! Glad to see your spirit kicking in.😘
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Yep, “ thing” won’t get the better of me! Think my OH has a sythe in the shed. That will do won’t it? ;D
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At least you are a bit closer to getting your body well. Not too sure about attacking it with a scythe though! Probably better to leave it to the professionals! It's horrible getting prodded and disturbed like that. It's good you are signing off work. Thinking of you and good thoughts xx
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Thanks suzy,
I can lend the professionals the scythe then? ;D
Will definitely message you this week. X
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Only when I feel up to it. Your health is the most important thing. Look after yourself x
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Sending love and positivity your way Nas :-*
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Thanks everyone :)
Well, still no date ( although they say 3 weeks !) and no lung results ( being chased up!).
Met the surgeon and nurse specialist at the Christie hospital. Pre op is Monday.
Planning on going off sick on Monday, I’ve had enough and am tired.
Will update as and when things happen. For now, it seems a bit more waiting! :-\
X
Just popping on to check on you Nas, that must be annoying re more waiting. But sounds like op will be timed regardless of lung result which is good as they just need to get on with it now, get the "thing" out and rid you of pain.
I think you are doing the right thing re work tbh, especially in the lead up to the op and given the pain you are in, I don't know how you've carried on as long as you have, you come across as very strong which will stand you in good strad when recovering. Although perhaps it has been better from a mental health perspective to keep busy. What'll you do to keep going at home until the op? It may help to have a rough list of things you can dip in and out of. I know when I am anxious and worried about things I can get into 'freeze' mode which basically means sitting on my sofa and doing nothing except doom scrolling and worrying myself more. Maybe some practical things like batch cooking for when you get out of hospital etc, sorting out any admin that has built up so you are on top of it, anything you can do in prep to make it easier for yourself when you get put of hospital.
Really hope you get lung result soon, I guess they'll call you in when they do or have you already got another appointment booked?
And I'll happily contribute to the scythe but would no way watch a movie about it 😱
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Hi penguin
How’s it going?
Well, Ive sent the email to work re: my intended sick leave. I’m glad I’ve done it because as much as I love working with the kids, the pace is too much for me right now, physically and mentally.
What will I do at home? All the things you suggested. Batch cooking, ironing, cleaning the house, groom my two house rabbits, life admin, job hunting. Yep all those things. To be honest they will be full time jobs in themselves, as I have to stop and rest every so often.
It’s funny you mentioned coming across as strong. The breast cancer diagnosis of 14 years ago, made me very resilient to pain and trauma.
I do not know what the surgeon is going to find once on the operating table and what additional tests/ treatment I will need. But that Christie hospital is amazing and I know I will be made better.
They have to prioritise patient treatment hence why I’m three weeks waiting. Three weeks will make no difference to my outcome now. But three weeks to a patient with spread of disease, could make a huge difference to her outcome.
I will get the scythe ready and we can all have a go at chopping the “ thing” ! 😱😱😬
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Oh crikey, have I done the right thing in taking sick leave? :o
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I hope things move quickly. The waiting is hard. If you need information or you want to jog them along, do it. My experience lately is that you've to be a pest and you get somewhere. Sounds like you're in the best hands at Christies
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Only when I feel up to it. Your health is the most important thing. Look after yourself x
Just seen I put when I feel up to it, of course I meant when you feel up to it. Sorry! X
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Oh crikey, have I done the right thing in taking sick leave? :o
I think read back on your previous podt, you've definitely done the right thing and you can always go back if and when you feel up to it!
Yes for sure something like that would make you stronger and more resilient. Remember you have been through that and came out the other side, and you'll do the same with this too.
Your list of things at home sound good. I didn't know you had house rabbits, do they like to cuddle on your lap?
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Sorry to hear your results were not ready Nas but you do at least have some progress now and the operation sounds like it's not far off.
Good idea to concentrate on the preparations because you need plenty of rest after a hysterectomy and definitely no lifting.
Please keep us updated.
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Oh crikey, have I done the right thing in taking sick leave? :o
I think read back on your previous podt, you've definitely done the right thing and you can always go back if and when you feel up to it!
Yes for sure something like that would make you stronger and more resilient. Remember you have been through that and came out the other side, and you'll do the same with this too.
Your list of things at home sound good. I didn't know you had house rabbits, do they like to cuddle on your lap?
One of the rabbits loves a cuddle Penguin, whilst the other is a bit less human friendly (she was a rescue ) but loves her bun friend.
Plenty to do I guess, but whether it will get done, who knows! Feel a bit in limbo now, but after Monday, anthing could happen surgery wise.
How are you anyway? x
Mary, I will try to prepare and get the house in order. I am so excited to have this op! Next year will (hopefully) be pain free and that will just be fantastic!
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Oh crikey, have I done the right thing in taking sick leave? :o
I think read back on your previous podt, you've definitely done the right thing and you can always go back if and when you feel up to it!
Yes for sure something like that would make you stronger and more resilient. Remember you have been through that and came out the other side, and you'll do the same with this too.
Your list of things at home sound good. I didn't know you had house rabbits, do they like to cuddle on your lap?
One of the rabbits loves a cuddle Penguin, whilst the other is a bit less human friendly (she was a rescue ) but loves her bun friend.
Plenty to do I guess, but whether it will get done, who knows! Feel a bit in limbo now, but after Monday, anthing could happen surgery wise.
How are you anyway? x
Mary, I will try to prepare and get the house in order. I am so excited to have this op! Next year will (hopefully) be pain free and that will just be fantastic!
Oh yes it's pre op on Monday isn't it. I was thinking, I'd be inclined to say I could take a Cancellation if one came up, could you do that? Maybe easier now you'll be off work anyway.
I'm okay thanks, well been a bit rubbish this week as having difficulty with DS who is being assessed for sensory / motor issues and its been a hard week with behaviour directed at me after he has held it together all day at school. But in general am okay, back on hrt as clearly need to be!
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Hey penguin,
Sorry to hear DS is being challenging. The gift of parenting, which keeps on giving!
We see alot of this in the school which I work in. Children often keeping it all in at school, but then explode at home and the poor parents have to deal with the aftermath. I do hope things get easier for you all. How old is he?
I came off the HRT a couple of weeks ago. Still too early to see any effects, but time will tell I’m sure!
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Hey penguin,
Sorry to hear DS is being challenging. The gift of parenting, which keeps on giving!
We see alot of this in the school which I work in. Children often keeping it all in at school, but then explode at home and the poor parents have to deal with the aftermath. I do hope things get easier for you all. How old is he?
I came off the HRT a couple of weeks ago. Still too early to see any effects, but time will tell I’m sure!
He's 9. This term is the worst for tiredness too, both kids are the sort of tired that a good night's sleep isn't enough for. Thats totally it though, he can be okay until the school gate and then totally lose it on the way home. We've been told the sensory stuff means he is probably just so done in by hometime that he can't keep it together anymore, so it makes sense, but is so hard.
I lasted 5 days off hrt but was getting worried about my mental health. I hope you go okay or there are other options offered to you to manage symptoms!
I love the idea of a house bunny too. Who'll look after them when you are in hospital?
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Yes the autumn term is a killer for everyone, kids, staff and parents. Does he receive any support at school?
The house bunnies.. well DS is 15.5 and more than capable. I’ve told him I won’t be able to clean their room and litter trays for a while; he kind of grunted and acknowledged that he would help ( well he won’t have a choice!)
Not sure what options will be available to me HRT wise, post surgery. I won’t have any ovaries, so will have to play it by ear as they say. I do have a stash of HRT at home, in case things get bad!
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Yes the autumn term is a killer for everyone, kids, staff and parents. Does he receive any support at school?
The house bunnies.. well DS is 15.5 and more than capable. I’ve told him I won’t be able to clean their room and litter trays for a while; he kind of grunted and acknowledged that he would help ( well he won’t have a choice!)
Not sure what options will be available to me HRT wise, post surgery. I won’t have any ovaries, so will have to play it by ear as they say. I do have a stash of HRT at home, in case things get bad!
Yeah his school is great, they will do anything and everything to help, and the senco is brilliant. We have some things in place in school, but we are still working out what's going on so we've seen Ed Psych, ENT, optician and next is Paediatric OT Assessment. School are just waiting to hear exactly what he needs now, we don't need an ECP I don't think (?). All private unfortunately as waiting lists are so long. But we've narrowed it down so hopefully the OT will be the final piece in the jigsaw.
Ah okay so you will have help, albeit gruntingly, at home, that's good! Assume DS knows where freezer, hob and microwave are too 🤣
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Hi Nas
I think people don't tend to tell you that you can be put on a list in case of cancellations, but I've heard of people doing it. I think it would be worth it. I know of someone on an NHS list who was going to have to wait years or months but then an appointment came up the next day. So it would be worth doing, and have a bag packed ready or anything else you would need to do.
I like the idea of us all having a chop of the 'thing.' I would have a good go at it for you! xxx
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Well Katherine,
Yes, it’s worth being added to the cancellation list for sure.
After my pre op on Monday, I will pack my bag ready! Haven’t got any loose fitting clothes at all.. so will have to sort that one!
Don’t worry, you can have a bash at “ the thing” once I’ve had first go! ;D
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Me next me next!😁
I would like to say I have been toning my arm muscles but that would be a complete lie. However brute angry force will be used by many of us whether it be sledgehammer or scythe.... You were totally right to make a leave of absence from work. You need to put yourself first physically and emotionally. Take the advice from those before to prepare as much as you can so once it's all over you have the much needed time to recover and heal. And get in a supply of chocolate along with actual healthy suff.
God house bunnies... My second family had many and I always had to stop everything when they do that stupidly cute thing where they are holding down their ears for a wash and brush up! Xx
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Me next me next!😁
I would like to say I have been toning my arm muscles but that would be a complete lie. However brute angry force will be used by many of us whether it be sledgehammer or scythe.... You were totally right to make a leave of absence from work. You need to put yourself first physically and emotionally. Take the advice from those before to prepare as much as you can so once it's all over you have the much needed time to recover and heal. And get in a supply of chocolate along with actual healthy suff.
God house bunnies... My second family had many and I always had to stop everything when they do that stupidly cute thing where they are holding down their ears for a wash and brush up! Xx
I am now off to Google that stupidly cute thing as I love stupidly cute things and I can't picture what you mean! Sometimes I do wish we could share pics on here!
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Yep, my partner in hormonal mayhem, you can take a turn after me, then penguin, Suzy and Katherine.. plenty left for you all.. ;)
The house buns.. so cute, so destructive, so complex, but I love watching them groom each other, fight for the herbs at breakfast and snuggle to one another. They are 7 and 8 and are inseparable best friends 🐇🐇🐰 They also help me take my mind of the “ thing” which is good!
Partner, the period of work leave is definitely needed.. not feeling guilty one bit tonight. Chocolate at the ready, as are loveheart sweets ( for post surgery wind I’m told!) and peppermint teabags.
I do hope you are all okay. I know many of you continue to struggle with this hormonal crap, which has brought us all to this invaluable forum to begin with.
I was given a leaflet whilst at the hospital yesterday and one of the first sources of support re: meno and hrt/ hysterectomy, was MM. How great is that? :)
Xx
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I came off HRT with no taper - catastrophically high BP. It was ok. I was expecting worse. I think it helped that I had the mirena, as I went cold turkey on the oestrogen first and had the mirena removed a short time later.
In terms of how you're going to manage, get signed off, or keep going until it's totally not possible. Speak to your boss. Ask for desk duty. As a teacher, I know plenty of TAs who switch to lighter duties. You can even request that you're deployed to low contact. I've done that for my TAs. You could also speak to your union.
Sounds pure awful, but at least you might have an end in sight.
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I’ve been signed off Elk.
Desk duties? That’s a laugh isn’t it? Doesn’t exist at our place unfortunately. You hit the ground running at 100mph and don’t stop until home time.
Yep, pure awful. Pain, worry, surgery, rage ( no HRT now, else I bleed for days, womb is wrecked ).
Just got to hang on for a bit longer!
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Definitely peppermint tea is much needed are you having laparoscopic surgery or full surgery? Either one make sure you rest loads and don’t do anything at all. I had to stop hrt cold turkey when I saw my surgeon and he doesn’t want me back on it. It’s not been as bad as I thought I was on hrt 5.5 years so dreading been of it. When you brush with cancer you have to look at the bigger picture. You can do this and I hope you won’t be waiting long. I was originally told 6 weeks but they rang me following week for the op that week xx
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Hey Donna-Paul
How are you doing?
Yes, this is my second encounter with C. How do you feel without the HRT now? I had to cave in today and gave myself a couple of sprays of lenzetto oestrogen spray. I’m so dry everywhere ( and I don’t just mean down below!).
I’m having the full surgery, everything is going, not sure if the cut is hip to hip, or vertical.
Will get some peppermint tea and get my overnight bag from attic on Monday. Pre op is Monday! Xx
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I’m Okish I have a lot of health problems I’m waiting for my gallbladder to be removed. Having attacks all the time having bad one now😔 I had to have everything removed including ovaries and cervix. I’m 8 moths down the line and I think it’s only now hitting me and without hormones as well. I don’t want to be negitive as we have had no choice and I was lucky it hadn’t spread plus caught early. I hope it’s the same for you to x
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Late to this Nas. All the best for the surgery and on going treatment :foryou: 1 bit of advice, have nighties that button up, not pull over the head because the whole body may be stiff and sore after! [it's quicker on Ward Rounds too]
Also, plenty of quick meals into the freezer B4 you go ......... I was advised after all my surgeries not to lift anything heavier than the kettle - so that meant I could continue with chocolate ;-).
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Oh and have a paper/pen ready to jot down anything that worries you in the early hours and ask on the Ward Round! My Surgeon was insistent but he explained so thoroughly that I rarely had questions to ask ::)
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I’m sorry the gallbladder is causing you issues Donna-paul. None of it is a walk in the park, is it? No, there is no choice and the reproductive organs, to me, just lend themselves to problems!
When will you have your gall bladder out, do you think?
I’ve got my thyroid to sort after this; goitre which needs dealing with. Sometimes, I feel it never ends! Hope you will be okay xx
Excellent advice CLKD, except I do not own a nightie! ::) Best get one me thinks, along with stocking the freezer! I’m so not prepared for this!
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I have a nightie. Somewhere ::). Along with suitable knickers. Somewhere .......... those hospital gowns are OK for 24 hours B4 1 begins to feel human.
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Oh crumbs, the knickers! What kind do I need?? :o
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Talk about being in the wars Naz. Just try and prepare bit by bit. I always try and do everything at once in a panic then feel terrible. Hope you get loads of support from your family. Thinking of you x
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You can ask at the pre op what you need. Is someone going with you? You may be sore and swollen when you come out so presumably loose fitting clothes. Do you know where you will be cut? Knickers where the elastic is either above or below it. Some of those so sexy granny knickers??
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Can’t remember where the cut will be Sheila; either hip to hip or vertical i think surgeon said.
Yes, will ask at pre op, or ask the nurse. I’ve made a list and may need to invest in a couple of nightdresses and high waisted pants.
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Take that list ;-). I love my Granny knickers, DH not so much ;D. Comfiest are up under the armpits ;-))))
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Take that list ;-). I love my Granny knickers, DH not so much ;D. Comfiest are up under the armpits ;-))))
.
Knickers under the armpits?? ;D
Erm I draw the line there!
M&S here we come!
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Better than tights up to my neck ? :P
Years ago 1 could buy papers knickers, made from 'jaycloth' material ::). Good for cleaning shoes/boots/wellies .........
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Knickers,plain high waist but lace Brazilian back. Perfect, comfy at front right up to belly ( covers my bad bits) but sexy behind to make you and anyone else who gets a glimpse know you still feel good.
Btw on the bunny front, if I get a Lindt chocolate bunny ( Santa delivers if I have been good) I have to get my bewildered husband to knock its head off because I can't bear to do so. Sad but true partner.🐰
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I second midi cotton knickers are best after surgery. I found Marks and George at Asda best have bit of lace on the top. Also definitely night shirts/night dresses you won’t want anything tight on for a while. Lounge wear is great when you get home x
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For comfy knickers I highly recommend m&s flexifit ones. I find the midis the best but you can get any fit. They don’t have seams and don’t cut into you, I have a drawer full!
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Ooh defo m&s. Nas I had a look for you for post surgery knickers, and John Lewis do c-section ones but they are 35 quid and the padded bit didn't look wide enough for what you said the incision might be.
I love m&so though, and you can get the ones with a flat waistband so it doesn't dig in. Nothing worse than diggy in knickers! They do some really pretty ones x
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Ladies, you are so amazing and I love you all! It’s great that we can discuss knickers, chocolate rabbits and pretty much anything else on here!
I will of course have a good look this week, to see what I can find.
Penguin, as much as I love John Lewis, £35 is a bit out of my price range, but I must look to see whet you get get for your money! I like M&S too though.
Partner, does your husband want to borrow our scythe, to knock Lindt bunny head off?? That scythe has been in the shed for 20 years, not used once! Now, all of a sudden, it has not one, but TWO potential uses!!!!! ;D
I know what you mean. My mum used to buy our kids a Lindt bun every Easter when they were little. Well they used to sit on the drinks cabinet all year, as no one had the heart to eat them!
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Oh I know what you mean Nas, I was shocked at the price of them and they don't really look that special either!
CLKD paper knickers are still available if you wanted them, I came across them on my Google search last night too 🤣
SarahT, I'm not sure you'd have the stomach to bash Nas's thing out with the scythe if you can't eat a chocolate bunny's head 🤣🤣🤣
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I know penguin, I can never work out why JL is so expensive at times!
CLKD, paper knickers just remind me of the “tracing paper “ loo roll at primary school! In fact, we could be inventive and make our own paper knickers!!
Partner, penguin does have a point re: the bun head. I mean, this is going to be a serious assault on “ the thing” ( hence the use of the scythe!) Are you sure you are up to the job? 😂😂😂❤️
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If you are looking for midi knickers in M&S Nas to save you some time they now seem to call them high rise shorts ! At least the cotton ones i wanted were.
Hope it all goes well for you.
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Of course so am strong enough ladies. Can easily bash something with vigour as long as it isn't any form of cute ( or ugly) little creature, fluffy, furry or even scaly. I mean, Lindt bunnies.... They are one of the desert little things. That tiny good bell on red ribbons. Sigh
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Okay partner, we will give you the benefit of the doubt.. keep flexing those muscles… 💪💪💪
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Check out a company called Vlazom on Amazon. I am a nightdress wearer and these are the best on the market and very reasonable and so versatile, I wear them as a dress in hot summers. They have nightdresses that have buttons all the way down, might be worth a look, Nas, and won't cost the earth.
Wishing you well and look forward to your updates.
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Check out a company called Vlazom on Amazon. I am a nightdress wearer and these are the best on the market and very reasonable and so versatile, I wear them as a dress in hot summers. They have nightdresses that have buttons all the way down, might be worth a look, Nas, and won't cost the earth.
Wishing you well and look forward to your updates.
Ooh Ayesha I've just had a look and there's a lovely selection. Please can you tell me how stretchy the material is though? I like the type that is super stretchy so it doesn't pull when you turn over in bed, if you know what I mean x
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Thanks Ayesha,
I will will check Vlazom out today.. will keep you updated. :)
Minusminnie, thanks for the knickers heads up..high rise shorts it is!
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"Ooh Ayesha I've just had a look and there's a lovely selection. Please can you tell me how stretchy the material is though? I like the type that is super stretchy so it doesn't pull when you turn over in bed, if you know what I mean x
[/quote]
The cotton nightdresses are not very stretchy and they do have big side pockets that you might find uncomfortable but I noticed that they have some made of viscose which is a light material and I imagine cool to wear.
I bought one of their nightdresses as I am very fussy about nightwear and that one became many more after. I got so fed up with the poor quality of M&S I even bought my last lot of knickers on Amazon. I used to buy Sloggi’s but they have become badly made and too tight to wear as well as being very costly.
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I also vouch for the m&a flexifit range. I only wear their sleep shorts in bed. I can't stand anything that gets all tangled up and wakes me. And long pjs are too hot at night. The flexifit as I think Katherine said, move with you. They are light weight and no seams. I wear with a long sleeve top because whatever the weather I sleep mostly with my arms above my head like babies often do....😄 am a total convert
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"Ooh Ayesha I've just had a look and there's a lovely selection. Please can you tell me how stretchy the material is though? I like the type that is super stretchy so it doesn't pull when you turn over in bed, if you know what I mean x
The cotton nightdresses are not very stretchy and they do have big side pockets that you might find uncomfortable but I noticed that they have some made of viscose which is a light material and I imagine cool to wear.
I bought one of their nightdresses as I am very fussy about nightwear and that one became many more after. I got so fed up with the poor quality of M&S I even bought my last lot of knickers on Amazon. I used to buy Sloggi’s but they have become badly made and too tight to wear as well as being very costly.
[/quote]
Thank you!
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Cotton doesn't stretch. However it's the coolest item important to button up and not pull over the head considering how hot hospitals usually are. Also quick to launder and don't need ironing, who is going to see anyway.
Don't get on with 'sloggis. M&S cotton will do nicely when in hospital ;-)
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UPDATE!!!
Surgery is next FRIDAY 24th!!!
👏👏👏💪💪💪💪😊 xxx
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UPDATE!!!
Surgery is next FRIDAY 24th!!!
👏👏👏💪💪💪💪😊 xxx
Oh Nas that is great news! Do you know how long you'll be in for? Now you can start packing and counting down the days!! What a relief you finally have a date x
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Stop sharpening that scythe then Nas!
Am bloody thrilled for you if that doesn't sound weird given you are in for surgery! You must be elated\scared the whole range of emotions. But whilst there will be a time of recovery ahead you are finally getting there. Partner, you are bloody amazing with never letting to of your understanding of your own body and pushing for action. Huge hugs from me xx
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So pleased to hear you have a date. Waiting is awful. You must have such a range of emotions, but at least you can get off the starting block. I hope all goes well and sending loads of love x
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Make that list of worries to take with you: nighties bought and packed ? ;)
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That's such good news Nas, get busy getting ready and the next few days will fly by. I'm trying to remember what helped me... Make sure they give you laxatives so you don't get constipated, this is very important! And keep taking the pain relief, if you can stomach ibuprofen once you are off the strong stuff that really helps with inflammation. It can be quite lonely once you are at home so useful to have friends popping in to break the day up. Extra pillows so it's easier to get out of bed because you mustn't push yourself up. If I think of anything else will let you know xx
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As long as friends don't mind you dropping off half way through a conversation ;-).
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Nas,
Flipping amazing news! Just read this on another group we're both in and thought I would reply on here!
Omg! You are getting the best Christmas present ever! I am soooo excited for you!🎁 Goodbye beastie with all your nasty symptoms. You should be well on the way to full recovery by Christmas too. This will be your best Christmas ever.
Will be thinking of you. Take care, Bexs. Xx
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Hi Nas
So pleased you have a date.
24 is my lucky number too!!!!!
xxxx
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Thanks ladies,
Just ever so slightly bricking it here now :-\ I wasn’t expecting a date so quick!
Penguin, they said 3 days. Got to be there at 7am on Friday.. it’s a 45 min drive away… so hoping all being well, they will boot me out on Monday 🤞x
Partner, are you getting ready? You take one end of the scythe and I’ll take the other.. everyone else.. take the middle… we can do this 💪💪
You are right, we owe it to ourselves, when we know things aren’t as they should be. Im an annoying so and so and well it did pay off on this occasion. Xxxxx
Thanks Suzy, yes you are right.. another step up the ladder as they say!
CLKD no nighties or bag packed yet.. will do a bit of shopping this week. ;D
Gnatty, I’ve got fibre cubes at the ready, pepper mint tea bags, love heart sweets (?) stool softeners.. will take plenty of water, snacks, fruit, wet wipes, hand gel… ear plugs ? I xxx
Hey Bexs :)
Really hope this is the end of the crap now. After this, I NEVER want to hear the word fibroids again, ever! They are indeed the direct work of the devil 😈
Bexs, you are not far behind…keep me posted on your journey won’t you ? X
disco… 24 has struck lucky!
Remember to let us know when your appointment is.and how it alk goes. it has to be soon xxxx
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Hello Nas,
I just wanted to add my good wishes for your hysterectomy. Happy to read you have a date now. It will come and go and you'll be back home recovering soon. Just to add in case helpful, a small cushion under your seatbelt when you leave the hospital helps with any bumps in the road with the stomach etc and also I found the V shaped cushions (off Amazon) a real help for getting comfortable in bed post op. Yes to stool softeners! It will be such a relief to get the unwanted tenant evicted soon. All best to you x
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Hi Nas
Im seeing my gynae on Tuesday. I'll keep you updated xxxx
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Thanks Summer-sky,
Will purchase a v shaped cushion this weekend, thanks for the tip.
Yes I’m sure it will come and go quickly. Just the thought seems daunting today ??? x
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Okay disco, will look out for an update from you xx best of luck xx
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I bet, totally get how daunting it feels Nas, not an easy ride for sure. Day by day, minute by minute and all that and do what works for you to get to the 24th. Look after yourself x
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Thanks Summer-sky
Yes, day by day I think..xx
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I’m so glad the op is soon for you and not a long waiting game. Good luck hope all goes well listen to your body and don’t over do it. Make sure you don’t lift anything and don’t forget your pelvic exercises. The relief you will feel when it’s all gone will be worth it take care xx
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Been following your posts Nas and so glad you've got a date. Hope all goes well and sending big hugs xx
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U probably won't sleep much so mayB watch TV until the 'off' - allowing time for traffic hold ups etc.. Once you've done your shopping etc. the days will fly by ;-).
R U starved from that mid-night? If U are on any medication perhaps take it along?
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Yes starved from midnight CLKD..then water up until 5.30am on the day. After that, zero.
I will have to leave at 6am to get there for 7am :-X :o Not looking forward to that!
It does feel a but lonely, I have been off work a week already and it seems far longer!
Colleagues have messaged, but it isn't the same as being in the work environment, plus they are all busy with work and families etc.
Family are well and truly spread all over the country.. which is total rubbish when in this kind of situation ( I think).
One friend who I have known for over 40 years and whom I haven't heard from since mid August, messaged out the blue because her and her relatively new man are visiting friends this neck of the woods. When I told her I was having surgery, it was like "OH! Bless you..let me know if you want to meet up or not". Didn't even ask why I was having the surgery, how I was, nothing. So, buggar that for a game of soldiers!
Anyway, rant over. Today I must venture to the supermarket, get some leaves swept, do some housework, check the attic for overnight bag and Christmas paper, sort the bunnies and general " stuff".
At least it isn't raining (yet!) ;D
x
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MayB your friend was a) shocked at your news and b) wasn't in a situation to ask personal questions?
Could U go into work for a chat with colleagues ........
What else will U find in the attic ;D. It always surprises me what is left up there ::)
?? bunnies ?? what have I missed ?
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Nothing happening today, feel dire. Sick, crampy, headache, fat, bulging…. Urghh why doesn’t this country legalise euthanasia? I would volunteer myself first!!
No energy to work.. can just about move from a to b in the house.. :-\
Friend can do one.. I'm not in the mood..
Bunnies… rabbits 🐇
I have two house rabbits :)
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One friend who I have known for over 40 years and whom I haven't heard from since mid August, messaged out the blue because her and her relatively new man are visiting friends this neck of the woods. When I told her I was having surgery, it was like "OH! Bless you..let me know if you want to meet up or not". Didn't even ask why I was having the surgery, how I was, nothing. So, buggar that for a game of soldiers!
This made me smile. It took me years to finally realise that my 'friend' of many years was just a fair weather friend. It occurred to me, like a light bulb moment, that every conversation was about her and I was just a listening ear, she had no interest in what was happening in my life.
Friends like that are as useless to you as a chocolate teapot (my new favourite saying) and best dropped. When she moved away it was like a huge weight lifted off my shoulders!
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Friends that drain us should be tipped ;-)
Chocolate fireguard ............
Get those feet up Nas. 'it' will wait, whatever 'it' might be!
We had bunnies - the buck weight 11 and a half pounds in his Prime 8)
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Turned the day around ( kind of!)
Been to Morrisons, swept the leaves, been to the tip, done the washing. Next sort bunny’s, put laundry away and sharpen scythe! Wish we could post pictures ( we really do have one!!) 😉
Ayesha, good riddance to the “friend” then. What a drain and indeed a “ chocolate teapot “ . There was a kids book many years ago, called “ The dribblesome teapot” ;) Totally irrelevant I know! Yeah well said friend is miles away. It’s since her man arrived on the scene; she’s just not interested. Just them, them, them..all the bloody time! Buggar off! ( sorry ;D)
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By the way, has anyone changed job aged 52?
I think it is time I went onto pastures new after this op..
I want to go into some kind of advisory work I think. Before this job, I use to volunteer for CAB and kind of enjoyed it, but it was hard work and quite draining on the brain.
Can't afford volutnary work, I will be working until I drop, but do need a new lease of life after this.
Lots to consider.. an complete overhaul of life me thinks.
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Blimey Nas,
Good for you considering all your options in a life overhaul. I went a bit mad in that I took voluntary redundancy from a stable job, and did an access to Uni college course as a mature student to go on a totally different career choice... Then I fell in love and went in a different direction yet again! No regrets there. I was only 29 so bit different, and no dependants etc, but I say look into it. Work forms such a bit part of day to day life you deserve to feel valued and content.
I have the WD40 ready in case the scythe needs a bit of a clean up. 😍
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Partner, we may need the WD40 to open the padlock to get into the shed! Get ready.. we are on countdown!
Yes time to stop and evaluate life. I like many of my colleagues, but am I content? Probably not; as well as hugely underpaid!!
Will have a good scout around whilst recuperating.. 😃
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Hello Nas, it sounds like you have done loads today considering, and thinking of a job change is terrific! Do you want to move away from teaching? Adult education teaching can be rewarding. I used to teach literacy skills to adults in FE colleges. As you will know it is hard work. Not really up on things but a lot of advisory work outlets seem to have been dismantled in recent years, (well where I live they have) such as for people with special needs etc. Credit Unions maybe have something to offer you, helping people with their money etc. Good to hear you are keeping positive x
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Hey suzy,
Yes you are probably right re: the advisory services being cut. Citizens Advice was great, but not much scope for paid work, unless you are living in a large city (which I do not),
I was meant to do an online situational test for a job with the civil service. It was for the DWP, as a job coach, supporting people with their benefit claims, but in the general rubbishness of the week, I totally forgot and missed the closing date! Never mind, I am sure there will be other jobs advertised at some point. I left teaching many years ago and after the breast cancer, I never returned. The role is way too demanding these days and even as a TA, it's hard work and poorly paid. I do need to get out and do something else now, the itch is there!
Ah well, I had better crack on..partner is away, son is out with mates, daughter at uni.. peace!
I had thought of wrapping some Christmas presents, but realised, I haven't really bought any! A job for in the week then :)
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A friend did a Course so that he could advocate for people needing support in Court etc..
Teaching assistant? receptionist? any language skills?
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I’m a TA CLKD, but pay is pants 🙈
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Ahhhh ......... that's a good skill base from which to work.
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How are you doing, Nas? Been staying off of MM due to my anxiety and trying to be out and about more as it helps distract me from health stuff, but have been thinking about you and your scythe! I'm in London tomorrow so might not be online much, but wanted to wish you well. Hope it all goes smoothly on Friday and you have a speedy recovery x
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Hey penguin,
Thanks for thinking of me.
Scythe is at the ready… ⛏️⛏️⛏️
I don’t blame you for staying off line and getting out and about. I will do the same I think.
I had yet another bombshell dropped on me yesterday, but won’t share, as I feel it adds worry to us souls trying to find a way through this hormonal madness!
You take care and enjoy getting out about x
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So sorry to hear you've had more bad news. Life can be so flaming tough sometimes. Wishing you well for Friday which doesn't really cover it at all. Will be thinking of you xx
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Thank you, watched my son play first contact rugby match today so that was very distracting xx
Oh no about bombshell though, that doesn't sound good. Hope you are managing okay and can see a way through whatever it is x
I do find reading about all the things that can go wrong makes me worse, as I will then notice things that I hadn't before 🙈
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Hey partner,
Chin up girl, you know the routine by now, one baby step at a time. I know how it feels to think it can't get any worse. Until it does. And somehow and I've no idea how, we dust ourselves down and find that tiny bit of strength hidden inside us and keep going. We're right behind you.
I feel you scythe may be used well for cutting out all the crap in life. If only we could. Meanwhile just know people care. X😘
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Nas, I'm sorry to hear that you had some bad news yesterday, I hope it will not affect your operation scheduled for Friday.
Good luck with the operation, we will all be thinking of you and waiting to hear how it all went so please update us when when you feel well enough.
I think you will feel massive relief once you are rid of the horrible pain and discomfort.
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Thank you all, for your kind messages and words :)
I really cannot wait until the operation is over.. I am counting down the hours, it cannot come soon enough.
Mary, the news could well have impacted Friday, but myself and the surgeon, we came to an agreement that surgery would go ahead as planned: she promised me and left it at that.
Have been doing lots of reflecting these last few days (well weeks!) and do wonder why some seem to get such an easy ride of life, while others, well it feels so much harder.
Partner, I think we give that scythe an extra good sharpen tomorrow, as we are going to need it more than we perhaps anticipated.
I shall of course update when I am able to..(hope the food is half decent and not too hot in the hospital!) There is an M&S food place within the hospital and I shall make it my mission to get down there (albeit slowly!).
Right, onwards and upwards as they say :) :)
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Hi Nas
I just wanted to wish you all the best for tomorrow as i know you'll be up and off early.
I will be thinking of you xxx
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Thanks disco x
Hope you are doing okay ( ish?)
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I'm doing good Nas thanks.
Im thinking about getting myself one of those scythes xxx
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Hi Nas,
Just wanted to let you know that I’m thinking of you and wishing you all the very best for tomorrow.
Not long now before it will all be over. xxx
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Hi Nas!
Popping in to wish you the best on the op and a speedy recovery. Good to hear the surgery is going ahead. I was a bit worried about the fluid in your lungs. Hopefully this brings an end to your annus horribilis and you can look forward to the new year. Thank you for keeping us posted on your journey.
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Turned the day around ( kind of!)
Been to Morrisons, swept the leaves, been to the tip, done the washing. Next sort bunny’s, put laundry away and sharpen scythe! Wish we could post pictures ( we really do have one!!) 😉
Ayesha, good riddance to the “friend” then. What a drain and indeed a “ chocolate teapot “ . There was a kids book many years ago, called “ The dribblesome teapot” ;) Totally irrelevant I know! Yeah well said friend is miles away. It’s since her man arrived on the scene; she’s just not interested. Just them, them, them..all the bloody time! Buggar off! ( sorry ;D)
I have friends like that. One turned out to be a user so I dropped her, an other disappears when she meets a man. Funnily my male friends have been most reliable. Good luck. One step of progress tomorrow.
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Disco. You can borrow my scythe if you want to ;D I think everyone should have a scythe in their life personally! X
Thanks Jenna..wish would just hurry up now, I’m getting impatient!
Ana, yes it has been an annus horribilus.. will be glad to see the back of it! The lung bit, is the problem unfortunately. But they have a plan and I must trust them.
Will update soon xx
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Hope all goes well tomorrow Nas. xx
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Hello Nas,
So sorry to read you've had another shock with it all. Keep going Nas. As others have said, we are behind you. A tough road but yes, like you say, trust the plan in place, one stage at a time, into the hospital tomorrow and through the op first. Good aim to go down to M & S for some treats! I'll be thinking of you. xx
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I actually think a scythe would enhance my life Nas ;D
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Have a feeling the medical team will be surprised to see you actually running into the theatre (wielding your trusty scythe ) to just get the damned thing over with. In a weird as we are all kind of excited for you.
A stagger to M&S sounds like a perfect aim. One of my happiest days was when they brought out vegan Percy Pigs. I trust your packed bag includes good knickers, comfy nighty, books\kindle and an M&S wish list. Remember to follow their recovery plan as best you can.
Will be thinking of you partner, xx
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Wishing you all the best Nas for tomorrow. We are all rooting for you and shall await your updates once you wake and feel up to it. xx
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Good luck for tomorrow, I hope it goes well.
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Well lovely forum members,
Scythe is out from the shed, suitcase packed, two hours until I starve ( the box of celebrations is looking at me longingly :D) and I’m debating whether to have a whisky ;)
Decided, to save NHS time and money, they could just give me whisky by IV, rather than conventional pain relief? :)
Summer-sky, my mission is to get to M&S. Whether I get there or not, is the question!
Partner, I’m planning on marching into theatre waving my scythe..( forget the scalpel etc ) Just “scythe…. attack….”
Love Percy pigs by the way!
Hope you are all well and finding your way through the hormonal chaos. We are all strong individuals offering advice and support to each other… it’s priceless
Will update soon x
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Scythe at the ready! Looking forward to the next update. We are with you all of the way.
Taz x :hug: