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Author Topic: HRT--good or bad?  (Read 742260 times)

Linsey44

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Re: HRT--good or bad?
« Reply #900 on: November 22, 2017, 10:24:19 PM »

Hi Jaycee

I was prescribed tibolone/livia after I had my ovaries out a few years ago, wasnt ideal for surgical meno symptoms.  Im on oestrogel now but still am tired sometimes but i think thats a meno symptom anyway bouts of fatigue.

I can relate to tiredness on it but put it down to being post op.  Also I thought i had more hair loss with it.  From what I remember i had op, then after 3wks started tibolone, by which time my body was in desparate need of something and was grateful for it. I started tibolone end April and by Sep I was on oestrogel.

Perhaps tilbolone was ok before as you maybe had more of your own oestrogen?  It may depend on how far into meno you are.

Sorry I cant be of more help

Linsey x

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jaycee

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Re: HRT--good or bad?
« Reply #901 on: November 23, 2017, 09:18:00 AM »

Thank you Linsey,i am well post meno, I will ask my Dr when I go for my review
Cant go just yet as I have   damaged ligaments in my knee and painful walking too far don't drive and buses are not regular
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jackie75

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Re: HRT--good or bad?
« Reply #902 on: November 24, 2017, 08:37:05 PM »

Whilst I felt better on the HRT, which was Estradot patches 75mcg and 100mg of Utrogestan x 7 days at the beginning of each which I started in January 2016, via a private gynaecologist, I have sadly just been diagnosed with Grade 1 endometrial cancer, which is probably estrogen receptive.  I have had an MRI this afternoon to see what stage it is at, 1a or 1b.  Obviously I am terrified, but have been told it is considered low grade and treatable.  I would say though, that my NHS Consultant said it could be due to not being given enough progesterone to oppose the estrogen.  I would therefore say, please be cautious about what regime you follow.  I welcome healing thoughts.
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jaycee

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Re: HRT--good or bad?
« Reply #903 on: November 24, 2017, 10:31:24 PM »

jackie ,i am so sorry you are going through this, do you think it really could be due to the HRT? as really the time you have been on it isnt really that long is it?
Were you checked over well before you went on it?
I will send you healing thoughts and hope it does turn out to be low grade and treatable
I was recommended the HRT by a gynocologist at the hospital after having a womb scan,she thought it would be fine for me,
I saw her because of vaginal atrophy, and was also prescribed vagifem
Have you any idea when you will get the results?
Will be thinking of you and fingers x you get a good result
Plesse keep us updated x
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jackie75

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Re: HRT--good or bad?
« Reply #904 on: November 25, 2017, 09:49:32 PM »

Jaycee,. Thanks for your good wishes.
My endometrial thickness before starting HRT was normal for post menopause at 3.4mm.  I can only think that the estrogen, was not opposed by enough progesterone, which has led to this situation.  I should get my results next Tuesday and I am praying it will be very low grade.  I will update when I know more.
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jaycee

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Re: HRT--good or bad?
« Reply #905 on: November 25, 2017, 10:13:57 PM »

Hi Jackie,that is very worrying, mine was only the same thickness when I had the womb scan in September
I believe Livial,is safer for this reason, I hope so, but I will be having regular scans I thinm
I really hope it wont be as bad as you fear, if it only grade 1 that isn't as bad as it could be is it, but it shouldn't have happened ,
At least you have been told its treatable, which is no comfort at all when the C word is mentioned
Thinking of you and will keep checking back
Will also ask my Dr,when I get to see him
Healing thoughts sent to you
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Dancinggirl

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Re: HRT--good or bad?
« Reply #906 on: November 26, 2017, 09:14:18 AM »

Jackie75
I am so sorry to hear your diagnosis - I am sure this is scary but it sounds as though this has been caught early so will be highly treatable with a positive outcome - my thoughts are with you.

I believe the chance of Endometrial cancer, as a result of HRT, is still very small. You have been very unlucky and, as jaysea has said, I would question whether HRT is entirely responsible. The HRT regime you were prescribed by the private gynae was very high in oestrogen with a very low dose of opposing progesterone,so the risks for you were greater, however, your gynae should have carried out regular scans to ensure the thickness of your lining did not build up and therefore put you at risk of developing this cancer. I do hope this private gynae is fully informed about what has happened.

Your experience is exactly why I always advice that anyone posting on this site who wants to experiment with HRT dosage do this under proper advice and supervision by a specialist. Regular scans are not available on the nhs and paying for scans privately is very costly. Progesterone is a vital part of HRT for good reason and levels of progesterone in standard HRT preparations are set to ensure the risks are minimal.

Jackie75 - thank you for sharing your problems with us  - HRT can be wonderful but we must always keep in mind that there risks, however small. Do keep us posted - we are here to support you if we can.
DG xxxxxxxxxx
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jackie75

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Re: HRT--good or bad?
« Reply #907 on: November 26, 2017, 05:19:46 PM »

Thanks Jaycee and Dancing URL for your support, it means a lot to me.  I will let you know how things go.
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jaycee

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Re: HRT--good or bad?
« Reply #908 on: November 26, 2017, 08:14:52 PM »

Good luck  xx
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jaycee

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Re: HRT--good or bad?
« Reply #909 on: November 28, 2017, 11:11:21 PM »

Hi Jackie,just a short message to ask if you have had any results yet,
Hope you are ok, thinking of you x
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jackie75

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Re: HRT--good or bad?
« Reply #910 on: November 29, 2017, 11:33:36 AM »

Hi Jaycee,  Thanks for your message.  My local hospital MDT met yesterday and to review the MRI scans.  It seems that it is Grade1A endometrial cancer, which is low grade and treatable thank goodness.  The scans also go to the bigger teaching hospital Bart's today, for their view also, which is good, as it's two pairs of eyes looking at them.  I will then see the consultant on the 6th December, to sign the consent forms and discuss what type of hysterectomy e.g. keyhole or abdominal.  Take care. x
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jaycee

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Re: HRT--good or bad?
« Reply #911 on: November 30, 2017, 12:34:40 PM »

Good news ,so pleased for you, at least that its treatable, would have been better if it was nothing, but a hysterectomy should get rid of altogether shouldnt it,?
Hopefully you will get done very quickly
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jackie75

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Re: HRT--good or bad?
« Reply #912 on: December 02, 2017, 12:03:27 AM »

Thanks Jaycee.  Bart's also think it is Grade 1A, with no muscle or lymph node involvement.  Obviously they would know more after the operation, which is on the 19th December, my 60th birthday.  I see this as a good sign though, onwards and upwards to 90+ years old.
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Dancinggirl

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Re: HRT--good or bad?
« Reply #913 on: December 02, 2017, 09:17:14 AM »

Jackie75
I'm so relieved to hear things aren't too bad - you have been unlucky but things have been caught early and this is the key. Thus cancer might have been developing for some time anyway, most cancers start very small over several Years before becoming an issue and if you hadn't been on HRT, and therefore monitored, it may not have been picked up on so quickly. What a wonderfully positive attitude you have and you are clearly getting excellent treatment and support. 
Do keep us posted. DG x
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jackie75

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Re: HRT--good or bad?
« Reply #914 on: December 02, 2017, 07:00:44 PM »

Thanks so much Dancinggirl for the wonderful support.  I will let you know how things go. Xx
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