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[Nas]

Serious bladder pain and frequent weeing. I’m using vagifem and estriol cream twice daily. What else can I do? 

[Minusminnie]

Did you start out with vagifem & estriol cream twice daily or have you built up to it ?

Just wondering if you are overstimulating/ irritating the bladder and have scope to try at lower doses ?

[Nas]

When I was on systemic HRT, I used neither as I didn’t need to.

Since my hysterectomy last year and HRT was stopped, symptoms have gradually worsened. So, I upped to 2 vagifem and two lots of cream.

I can try at lower doses, but not hopeful as skin feels very dry and thin.

[Ayesha]

I am experiencing exactly the same which is so unusual for me being symptom free for so long. I had the Covid vaccine two weeks ago and wonder if that's the reason or the fact my tube of Estriol might have degraded because of being in a new build house that seems to constantly have high room temperatures.

I've started a new tube of Estriol and have upped the dose, I haven't increased the dose of Vagifem yet, and hopefully it will help, but other than doing the usual non soap washing I honestly can't think what else to do. Such a wretched condition that's always lurking in the background ready to pounce.

[Nas]

Thanks Ayesha, you are not wrong, it is an awful condition.

I’ve been smearing cream right left and centre, but I can feel the discomfort from inside.

Thinking about it, the bathroom where I keep my cream, is fairly
warm when the heating is on. Perhaps this is affecting my cream quality too?

I shall endeavour to try to get it all under control during my week off work.

In the meantime, lets hope we both become more comfortable soon.

[CLKD]

Awful.  Have U tried pain relief to ease symptoms?  I believe that Paracetamol may help.

[Nas]

Yes, I have been taking paracetemol regularly this week.
I know this is from lack of oestrogen. I have also explained this to my oncologist and she prescribed oxybutinin. This is meant to calm the bladder. Yet more drugs! 

[CLKD]

Is that a pill Nas or powder to mix with water?  Hopefully it will help symptoms. 

[Nas]

A pill CLKD.
Nothing to lose I guess! 

[suzysunday]

It's really difficult to advise as it is such a bloody pernicious condition that really grinds you down.  I don't know how you have been coping at work. When my symptoms were bad I just had showers, no alcohol or spicy food and daily use of ovestin.  But you are using cream etc twice daily .  Surely in time this regime should calm things.  It took me almost a year to get on top of it when I came off systemic hrt .  I really hope you get some relief with all the pills and creams. Life really seems to keep knocking you back.  X

[Gnatty]

Check that your cream is the stronger one. I think with the Estriol it comes as 0.1 and 0.01. x

[Nas]

Thanks Gnatty.
I have 0.01 strength cream.
Just applied Olive and Bee. God it stings!

[Gnatty]

Would you be allowed to try the stronger formulation Nas? It might make all the difference?

[Ayesha]

I can't remember but isn't there a cream that numbs the area, I am sure someone mentioned this recently. Would give some relief in the short term.
If anyone knows what the product is that would be great.

[Nas]

Have just purchased a stronger cream from Boots. Fingers crossed it does something positive.  What a day! 🙈