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New here and not sure whats best for me

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Buttermerelady:
Hi, Thank you for allowing me to join I really could do with a little advice on which way to go please? A bit of background info.... I'm almost 47 and started this whole crazy journey at age 41 with peri symptoms which I didn't have a clue about! I was diagnosed with severe endometriosis prior to this and had several surgeries to clear it so what I would say was the worst ten years of my life in terms of severe pain I could not wait until menopause kicked in as I was told that often is the cure. So sure enough as soon as peri kicked in I got major relief from pain, hallelujah...... the suddenly my body was taken over by this crazy woman, horrendous night sweats, anxiety, brain fog etc. I was referred to a menopause specialist and as I had gone a year without a period I was prescribed Everol 25 with daily Utrogesten 100mg, symptoms didn't improve and was moved to Everol 50 and then to 75. Started to feel a lot better in myself but still had mood problems and crazy unhinged moments were still there but all other symptoms disappeared by this time I had been on HRT for 16 months. I Started to have breakthrough bleeding and had to have a hysteroscopy as doctor suspected womb cancer, thankfully all clear however my womb lining was 9cm. By this time endo pain returned as I was warned this could happen as the hormones are feeding the endo but it was bearable. Specialist not happy about that and the breakthrough bleeding, wanted me to have the mirena  but I asked for time to think about it as I have several friends who gave me scare stories so kind of put me off. She then said I could take Provera tablet instead of the Utrogesten but wanted me to come of the HRT completely for 2 weeks before starting it again afresh with the provera tablet. Now the thing is I was dreading coming off even for just 2 weeks however I felt so good being off it after 2 weeks that I haven't started the patches again nor the provera but felt so good that I thought I was through the other side..... I think I was wrong, the night sweats have started again and the joint pain is bad and also vaginal atrophy is not good and my mood is still low but not as crazy if that makes sense. I just don't know whether to start the HRT again or stay off it, I'm worried the specialist won't be too happy that I havent re started it like she told me to and I have a follow up the end of this month, I also have ostepena so I know the HRT is good for my bones. I think what I am trying to ask in all this rambling is it possible that I'm through the worst or are the symptoms likely to come back even more so after almost 5 weeks clear of HRT or should I just bite the bullet and go back on it? Also would like to add that interestingly I haven't had a single endo related pain or bled since stopping the HRT. Thanks so much for reading and apologies for rambling on, any advice greatly appreciated x

Souris:
Hi, Buttermerelady!

I'm new here myself, so I'm afraid I don't have any advice to offer. I just wanted to send some good vibes. I'm sorry you've been through all that!

From what I gather, the hormones can certainly shift around, so they might be fine for a bit, then go crazy again. And, of course, everybody is different! I hope somebody who knows a lot more than I do will chime in. People seem so nice here.

Buttermerelady:
Hi Souris

Thank you for the kind welcome and the good vibes sent.

This forum is wonderful and very helpful I've been reading lots of information and its good to know that we are not alone in this journey.
I'm hoping someone may have some advice to offer relating to the HRT and endometriosis.

Thanks for saying hello :thankyou:

CLKD:
Morning!

Maybe ask to see the Consultant about the endometriosis?  Or directly to a menopause Clinic for advice, search for 1 in your area and contact them to see what the referral protocol might be?

The body doesn't get where it is suddenly (usually) so being 2-3 weeks without HRT then getting symptoms means that any hormone remaining after initial HRT was still there and has left the body.

Browse round.  Make notes.   Some find it useful to keep a mood/food/symptom diary.  If you type endometriosis into the search box there may be threads that pop up?

Buttermerelady:
Morning CLKD

Thank you for the reply, I haven't seen my consultant about the endometriosis for years now ever since perimenopause kicked in as the symptoms totally vanished. It's the HRT that seems to be feeding the endo to erupt again, I have been under a specialist at a menopause clinic near me however although she is highly respected I feel like she is not listening to how I feel and can be quite abrupt and on occasions has been rude to me and I have left feeling uncomfortable. I actually feel better mentally off the HRT than I did before however I'm concerned that things are going to get worse again hence my questions and so do not know whats the best course of action to take. I have only been offered one type of Patch but different strengths and she tells me there are no alternatives and basically told me that the mirena is my only option even though she gave me provera!

I have a doctors appointment tomorrow and will ask if there's an option to see someone else.
I will also have a browse around on the forum to see if any threads pop up, thanks

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