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Author Topic: Coming off hrt  (Read 467 times)

catlover68

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Coming off hrt
« on: March 14, 2019, 10:20:07 PM »

Hi all

I have been posting recently in new members board.  Iím having a rough time taking hrt so have decided to come off it. I have mirena since Oct 18 and have tried patches,tablets and currently taking oestrogel but I can no longer bear the side effects and Iím feeling awful. Iím having awful headaches/migraines,dizziness,nausea and anxiety. I know itís the gel as the symptoms appear about 20 mins after I apply it. My head feels muzzy all day everyday and Iím sick of it.

I know I will suffer with usual menopause symptoms if I stop but I just donít know what else to do. Itís almost like Iím allergic to oestrogen if there is such a thing. Itís not like Iím on a high dose,maybe half to 1 pump in morning and evening so cannot understand why Iím feeling this way.

Has anyone else stopped taking hrt and how should I do it?

Thanks
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CLKD

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Re: Coming off hrt
« Reply #1 on: March 15, 2019, 07:38:33 AM »

I really don't know why you haven't had an answer.  I don't take HRT but maybe put the product name into the search box on the Forum and see what threads pop up?

One cannot be allergic to hormones.  It's the bodies natural balance that gets thrown out at peri-menopause.  Until then we go along without thinking much about how our bodies work.

Maybe keep a mood/food/symptom diary to chart how you get on.  Decide which symptom you would like to ease first then again, use the search box.  Many ladies have stopped HRT due to side effects.

Let us know how you get on.
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Changes can be scarey, even when we want them!

Dancinggirl

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Re: Coming off hrt
« Reply #2 on: March 15, 2019, 10:42:23 AM »

Hi catlover68 - sadly some women simply canít tolerate HRT of any kind - hormones are funny things and we are all different.

I used HRT on and off for 25 odd years and I have tried tapering off gradually and going cold turkey and there really isnít any difference.
So much depends on where you are in you menopause journey and how well your body adjusts when withdrawing all hormones.

As you are using so little oestrogen, then I would simply have the Mirena removed and stop the oestrogen at the same time.

Sadly when I stopped HRT my headaches increased and I now loose 24-72 hours each week to awful headache pain - I canít take painkillers except Paracetamol and that doesnít seem to do anything!

Iím 63 now and still get hot flushes and a good nights sleep is a distant memory - Iím one of the unlucky ones.

If you are post menopause you could be lucky and just get a few months of flushes and nights sweats and then things calm down.
Good luck. DG x
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Cazikins

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Re: Coming off hrt
« Reply #3 on: March 15, 2019, 12:59:53 PM »

I started HRT 12 years ago. I have tried to come off it 2 - 3 times but haven't had good results.

I am now 61 & have managed to cut down to 1/2 tablet a day. I must point out that I am on the most lowest type I know of (Femoston Conti Ultra Low Dose), so it's not a very strong one to begin with but it takes the edge off of my symptoms & enables me to carry on working.

It took me about a year of gradually / slowly cutting down.

At the beginning of this year I took the decision to  stop altogether - I mean surely the small amount of estrogen (0.25mg) & progesterone (1.25mg) I was getting from 1/2 a tablet wasn't making a lot of difference, & surely I was out the other side by now.

The first 3 weeks were fine but then the hot flushes started to return, then the aches & pains. Ride it out for a few more weeks Cazikins I thought. But after 6 weeks I thought sod it I can't put up with this - I've got a life to lead so I'm back to my 1/2 tablet a day.

My advise would be to try & cut down your dose very slowly. I wouldn't recommend stopping it altogether as you will take a nose dive. I do feel for you & you have my sympathy. I really hope you find a solution.

Cazikins
« Last Edit: March 15, 2019, 01:01:34 PM by Cazikins »
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The man who says it cannot be done should not interupt the woman who is trying to do it.

catlover68

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Re: Coming off hrt
« Reply #4 on: March 15, 2019, 06:36:40 PM »

Awww Thankyou ladies for your replies. Iím feeling awful today,I put one pump on last night and had no sleep then half a pump this morning and a few hours later I felt terrible! Awful dizziness,my head felt like it was going to explode and my anxiety is sky high. Cazikins Iím wondering whether I should try that femoston tablet as itís a really low dose. Trouble is Iíve already tried patches and tablets and again I get side effects.

Dancinggirl I think Iím still in peri though difficult to tell as got mirena. Do you think I should try another brand of oestrogen? I donít want to have this coil removed if I can help it.

I know quite a few people on hrt and none of them have experienced these side effects.

Iím going to see my doctor on Tuesday so will see what hrt alternatives there are though she has mentioned antidepressants but again Iím loathed to take them due to side effects.

Thanks to all of you lovely ladies.
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Kathleen

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Re: Coming off hrt
« Reply #5 on: March 15, 2019, 06:46:05 PM »

Hello catlover68.

I totally sympathise with your plight! I am 62 now and began using HRT at 57, three years after my last period. I feel as if the last five years have been one long HRT experiment and I'm still looking for the feel good effects that some women report. I am also  on two pumps of gel and have recently changed from using two pumps in the morning to one in the morning and one at night to see if that helps. I also worry about the effects of daily Utrogestan, albeit vaginally but it seems no matter how little oestrogen we use we are stuck with 100mg of Utrogestan.

I am sorry that I can't answer your question but you are not alone in your suffering. I hope you get some help from your GP on Tuesday and I will follow your story with interest.

Wishing you well.

K.
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Countrygirl

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Re: Coming off hrt
« Reply #6 on: March 15, 2019, 06:48:27 PM »

Cat lover 68 how did you do with patches, I was given the choice of the gel but decided I prefer the idea of it slowly releasing, one brand didn't like me at all, but another I'm getting on okay with even though I was told they were identical. I'm also peri and have a mirena x
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Cazikins

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Re: Coming off hrt
« Reply #7 on: March 15, 2019, 09:52:24 PM »

. Cazikins Iím wondering whether I should try that femoston tablet as itís a really low dose. Trouble is Iíve already tried patches and tablets and again I get side effects.

Hi again catlover68 - sorry you can't have Femoston Conti Ultra Low Dose as it is has progesterone in it & you already get that from the mirena coil. So sorry I wasn't much help with an alternative for you. I just wanted to give you my experiences of stopping HRT.

Hope you get a result.

Cazikins x
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The man who says it cannot be done should not interupt the woman who is trying to do it.

catlover68

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Re: Coming off hrt
« Reply #8 on: March 16, 2019, 01:38:04 AM »

Hello catlover68.

I totally sympathise with your plight! I am 62 now and began using HRT at 57, three years after my last period. I feel as if the last five years have been one long HRT experiment and I'm still looking for the feel good effects that some women report. I am also  on two pumps of gel and have recently changed from using two pumps in the morning to one in the morning and one at night to see if that helps. I also worry about the effects of daily Utrogestan, albeit vaginally but it seems no matter how little oestrogen we use we are stuck with 100mg of Utrogestan.

I am sorry that I can't answer your question but you are not alone in your suffering. I hope you get some help from your GP on Tuesday and I will follow your story with interest.

Wishing you well.

K.

Hi Kathleen thanks for replying. Iím glad Iím not the only one trying to find the right combination to help my symptoms. Iíve tried Estelle solo tablet,oestrogel and canít remember patch name and still feel side effects. The gel has been the worst,feeling terrible on it and Iím really not on a high dose.  I nearly fainted a couple of times as felt so dizzy and lightheaded. And the migraine type headache is horrible. Iím weaning off this now and my head already feels a bit better but can feel my hot flushes creeping back and insomnia and anxiety has reared itís ugly head🙄 I just donít know what to do,I feel I want to persevere and try something else but oestrogen is the same thing no matter what way shape or form you take it. I was also intolerant to the progesterone hence the reason I have had the coil fitted. Iíve read posts where ladies are struggling with this and thought if I had coil then at least I wonít need to take it.

Hope you find something to help you as well,Iím finding this menopause a real uphill struggle to be honest,it effects every part of your life.

Iíve got friends who are sailing through menopause with hardly any symptoms without hrt and a couple who are taking hrt with no issues,god wish I was one of them.

Thanks Cazikins Iíll know not to ask doctor for these now,didnít realise it came with progesterone but thanks anyway.

Country girl Iím glad your getting on ok with the patch. What one are you on? Iíve heard estrodot is ok but surely thatís got same ingredients as the gel?

Thanks again ladies and any other advice would be greatly received.
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catlover68

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Re: Coming off hrt
« Reply #9 on: March 17, 2019, 09:15:37 PM »

Hi ladies

I tried to take the gel yesterday thinking ok letís give this one more chance and I did half a pump and bam half an hour later I had a migraine! I know now this isnít right and shouldnít be happening. I have not taken any today and feel awful tonight. My anxiety is through the roof and I feel rough. I know this is to be expected but I donít know if I can cope to be honest.

I have got a pack of citalopram and propanalol in the draw that I was prescribed a while back and am so tempted to start one of these though really donít want to. Iím trying to ride this out if I can.

Iím so gutted that I can not tolerate hrt and cannot understand why. I wonder if I could try another patch and see if that will work? I just donít want my mental health to suffer as I can feel this could happen if I donít get something sorted.

Thanks
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Hurdity

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Re: Coming off hrt
« Reply #10 on: March 18, 2019, 07:16:58 PM »

Hi again catlover - if you really feel the gel doesn't suit you due to the migraines then why not leave this off for a week or two or even a month and see whether you get any more headaches or migraines. Depending on the outcome and how you feel then perhaps start again with a very low dose patch (which one did you try in the past?). Estradot starts at 25 mcg so you could start very low and slow and if it suits you then go to 37.5 mcg and then 50 mcg.

You also mentioned alcohol intolerance in your other posts and just checking whether you have been drinking alcohol at all eg the day before the migraines. It can have a strange effect in triggering migraines and along with HRT - I have to be really careful with alcohol. Sometimes even one small glass of something can trigger a migraine - not sure if it;s to do with menopause or hRT. ANyway if you have had the odd drink ( and who doesn't?!) I would suggest also giving this up completely for a month or two and see if things improve?

Also maybe actually mention to the doc about the migraines if they are coming on that quickly. How long do they last when you get them and what do you take? Perhaps your blood pressure is high?

Sorry I can't really help except for one or two suggestions.

Hurdity x
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