Hi Melbury, I'm a fellow LS sufferer - does yours get worse with stress, or any hormonal factors you can identify? It really does seem to be one of those things that, aside from it probably being an autoimmune condition, no-one really has much of a clue about. Mine was diagnosed at age 45 and I was using clobetasol ointment regularly ie every couple of weeks, until I had to have high strength systemic steroids alongside chemotherapy for breast cancer a couple of years ago. Silver lining - the steroids have so far kept the LS at bay, have had very little problem since then. Not recommending that you get breast cancer to alleviate LS though. But if if it's really bad maybe a short course of systemic steroids is worth a try?
