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Author Topic: Can't take oestrogen.....so what to do?  (Read 316 times)

BlueButterfly

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Can't take oestrogen.....so what to do?
« on: November 05, 2018, 08:48:43 PM »

Okay, so having breast cancer in the family, endometriosis and now confirmed clotting factor gene.....oestrogen has been ruled out for me. At the moment, that seems "okay" as tests show I'm oestrogen dominant at the time....but I wonder what my options are now? I am using a progesterone cream that so far, so good. I don't expect it to be long term. I'm going to be asking about the mini-pill as the endometriosis growth needs to be kept under control right now. I'd like to at least get into my 40s before having everything removed and a hysterectomy.

To those who can't use HRT, what have you done to control the symptoms of peri/meno?

For me, right now, the worst are the heart palps, anxiety, aches and pains everywhere. Honestly there's so many things going on I don't think I could list them all...but need to start somewhere.
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CLKD

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Re: Can't take oestrogen.....so what to do?
« Reply #1 on: November 05, 2018, 10:27:42 PM »

Could it be delivered into the body by patches rather than orally?  Quality of Life is important. You're State side?
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Changes can be scarey, even when we want them!

BlueButterfly

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Re: Can't take oestrogen.....so what to do?
« Reply #2 on: November 05, 2018, 10:53:16 PM »

yes state side. Oestrogen is looked at the same whether it is added transdermally or orally....still warned against for blood clots. I see my doctor on wednesday to talk about the clotting so I'll be able to ask more about hormone therapy then as I only got the nurse today. Oestrogen is on the high side (low-ish but...) compared to the progesterone at the moment but I know that will change as I progress through peri. I'd like to ease the transition as much as possible so was hoping for maybe some naturally suggestions as I know SOMETIMES they can really work for some people. If the last few months of feeling like I got ran over SEVERAL times by the peri-truck is any indication of how things will go for me, I'm very nervous for the future of this.
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Taz2

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Re: Can't take oestrogen.....so what to do?
« Reply #3 on: November 06, 2018, 01:11:23 AM »

Hi BlueButterfly. I was tested for clotting factors which came back negative but I was told that if positive then patches or gel would be ok but not after the age of 60. Women on here with endo still seem to be able to use HRT but you will have to use the search facility to bring up relevant posts. As regards breast cancer advise is that you need at least two close female relatives, mum, sister, aunt, grandmother with oestrogen receptive cancer for it to impact on your own ability to use oestrogen - in the UK that is. I'm not sure on your personal circumstances though.

Taz x
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BlueButterfly

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Re: Can't take oestrogen.....so what to do?
« Reply #4 on: November 06, 2018, 01:23:32 PM »

Just one aunt with breast cancer, yes because of oestrogen. I will ask more about transdermal options or a referral to someone more knowledgeable regarding meno/hormone treatment.

I know with the endo that it's very important to keep the oestrogen in check with enough progesterone....so I think that'll still allow me to use some oestrogen....if they will regarding the clotting risk. Luckily everything else seems good with my tests....my body is working as it should to keep clotting issues away...at least, the best I can tell right now.

It's all just frustrating (but a relief at the same time. At least I know WHY I've been concerned about that).

I may just finally attempt using the evening primrose oil. My aunt raves about it helping her and my mother, when she uses it, finds relief from her hot flushes and such. That is mostly what they deal with though. I find my flushes not such a problem. I just get very hot and red but don't have a sweating problem so just deal with it. But I've been dealing with that since late 20s!

I'm also considering Vitex/Chasteberry/Agnus-castus. Anyone have experience using this?
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CLKD

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Re: Can't take oestrogen.....so what to do?
« Reply #5 on: November 06, 2018, 02:45:04 PM »

How big is the clotting factor in all this?  One has to weight up benefits as well as risks.  Difficult.  Go with your gut instinct?
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Changes can be scarey, even when we want them!

BlueButterfly

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Re: Can't take oestrogen.....so what to do?
« Reply #6 on: November 06, 2018, 02:49:55 PM »

My gut has been telling me for many years to worry about a blood clot....but I was also on a CCP for about 7 years prior to this. (I felt like I needed to get off, clotting being one reason) so I'm not sure. I guess right now, my kids are still young and I want to be there for them...so I want to keep risks as low as possible. When they are grown, things might be different. Just part of the challenge of being young with it all I guess.
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Birdy

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Re: Can't take oestrogen.....so what to do?
« Reply #7 on: November 08, 2018, 07:04:17 PM »

You can have low estrogen and still be estrogen dominant. Progesterone counteracts the negative effects of e. There is a very good book you might want to read called The Truth About Estrogen. Iím not sure the name of the author but I will find out now, and post. There is a lot of misinformation about hormones.
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Birdy

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Re: Can't take oestrogen.....so what to do?
« Reply #8 on: November 08, 2018, 07:13:03 PM »

It is called oestrogen matters by Avrum Bluming
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BlueButterfly

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Re: Can't take oestrogen.....so what to do?
« Reply #9 on: November 08, 2018, 07:49:55 PM »

Thanks Birdy,
I'll check out that book. yes, it is definitely about keeping the hormones in check. I worry when the oestrogen starts dropping more if I'll be able to handle it all. Thankful that right now, progesterone is what I need and it is helping...but protecting my heart and bones.....things I do need to worry about for sure.
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Birdy

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Re: Can't take oestrogen.....so what to do?
« Reply #10 on: November 08, 2018, 08:41:16 PM »

Get that book!
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