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Author Topic: What sort of headache?  (Read 797 times)

grumpyjane

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Re: What sort of headache?
« Reply #15 on: August 09, 2018, 11:29:06 PM »

I've been getting these sort of headaches all my adult life so I guess they are hormone related. Always right side of face/head and right eye. Excruciating. No medication touches them and they always last 48 hours.
What I discovered late in life - 50 ish! was that coffee helped. I never drank coffee until I was about 50. Now when I feel one starting I have a strong coffee and sometimes it knocks it on the head - no pun intended ha ha!

J x
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HRT since Dec 2015, started Testim Nov 2016, gave it up July 2017. I'm 60 and 6 years post meno.

sparkle

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Re: What sort of headache?
« Reply #16 on: August 10, 2018, 06:08:36 AM »

Only manage to take the edge off it but they are still unpleasant and have been know to last 3 days or so.  Cant find anything to stop it happening.

I know what you mean about medics - they look at you like you landed from another planet and tell you there is nothing wrong with you when you have been clearly complaining off and on over the years.  I was at ENT and have had loads of courses of antibiotics to treat the sinusitis that it is not!  They have kept scratching their heads when the pills haven't made a blind bit of difference.  Heaven forbid that I just might be right ha ha.
You'd think that after taking antibiotics with no success they'd think again.  Unbelievable!  Bet all those pills did your tummy no good at all!
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sparkle

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Re: What sort of headache?
« Reply #17 on: August 10, 2018, 06:10:19 AM »

I've been getting these sort of headaches all my adult life so I guess they are hormone related. Always right side of face/head and right eye. Excruciating. No medication touches them and they always last 48 hours.
What I discovered late in life - 50 ish! was that coffee helped. I never drank coffee until I was about 50. Now when I feel one starting I have a strong coffee and sometimes it knocks it on the head - no pun intended ha ha!
That's interesting Grumoyjane, I don't drink coffee because of acid reflux.  Maybe if I had it might have helped!

J x
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Ladybt28

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Re: What sort of headache?
« Reply #18 on: August 10, 2018, 12:38:16 PM »

I've come to the conclusion with all things medical that if you don't "tick the box" within 3 tries then the medical profession write you off as a "timewaster".  They just don't have the time, energy, brains (or possibly money - I will give them that!) to try to work it out.  They should have a better starting position than the patient because they have more knowledge but what seems to happen is that they only look at the "obvious" and when its not that then "we can't find anything wrong with you" - which I think means "you must be imagining it".

Its usually things around pain and hormones and chemical reactions in the body which get kicked into touch.  Like people with fibromyalgia or thyroid problems  Often the tests used to measure these chemicals are inaccurate so people end up living their lives in misery because their tests "dont fall inside the range" therefore there isnt anything wrong with them.   

Coffee Grumpyjane - funny I dont drink coffee - but thinking about it it could be the caffine - they put caffine in migraine medicine.  Next headache I'll give it a go to be honest they are so bad you try anything

x
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CarryWarry

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Re: What sort of headache?
« Reply #19 on: August 10, 2018, 02:27:01 PM »

My very first treatment 2 years ago was for chronic sinusitis - but it wasn't that (see what we all go through?!).  Brain scans, then ENT specialist all showing nothing.  I NEVER had a headache to until I was 51 then BAM, every day.  Sobbing and in bed in the afternoons as it worsened during the day.  Have had acupuncture, seen an osteopath (who still thinks I could have fluid on the brain) and then the HRT treatments.  HRT has helped without a doubt, but it's still just there, hanging around and won't budge.  No over the counter meds help at all.  I shall keep slapping the extra gel on and pray for the best....  It's spoiling every day.  Hubby and I are about to go away for our 30th wedding anniversary and yet again I think 'here comes another holiday with a headache all the time'.  Flying makes it worse for sure, always spend first two days feeling worse....and tiredness makes it worse.  Sometimes it IMPROVES when I drink, so a hangover will improve it!  HOW WEIRD IS THAT?!!  Onwards....!!  Pass the vino!   ;D :P
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Carry Warry
Onset of dreadful daily headaches in January 2016 which are gradually being sorted after 3 brain scans showed nothing.  Menopause to blame!

sparkle

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Re: What sort of headache?
« Reply #20 on: August 10, 2018, 03:56:44 PM »

Wouldn't the brain scans have shown if there was fluid CarryWarry?  It is so frustrating for you.  I don't know what to suggest.  Do you feel anxious (probably a silly question as I know the headache will increase anxiety).  Have you tried magnesium at all? 
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sparkle

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Re: What sort of headache?
« Reply #21 on: August 10, 2018, 04:24:56 PM »

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CarryWarry

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Re: What sort of headache?
« Reply #22 on: August 10, 2018, 05:37:16 PM »

Thanks for that Sparkle...

I am not at all anxious, thankfully.  I am just tired much of the time (started Testosterone gel too last week so really on to all this).  I have just had a sleep this afternoon because I just get so tired with my head hurting.  I have tried Magnesium and still taking it.  Yes, you are right, the brains scans should have shown up any liquid around the brain and there's nothing.  Over the last two years I have also tried Clonidine (swapped one of my BP meds) which made no difference.  Also Amitriptyline.  No difference.  Plus others!  I have tried absolutely everything in the book.  Sometimes I wonder if I should just be on MASSES AND MASSES of oestrogen, like four times the maximum dose.  If I am no better in 8 weeks I will go and get my blood tested again privately.....  I do think when I was first on Angeliq it really helped....but then I started spotting and then the headaches started getting worse...  I think my new HRT mix isn't as good.  So just like so many of us it's trial and error. x
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Carry Warry
Onset of dreadful daily headaches in January 2016 which are gradually being sorted after 3 brain scans showed nothing.  Menopause to blame!

sparkle

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Re: What sort of headache?
« Reply #23 on: August 10, 2018, 07:16:37 PM »

Could you ask to be referred to a migraine specialist CarryWarry?
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Mary G

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Re: What sort of headache?
« Reply #24 on: August 10, 2018, 08:11:19 PM »

CarryWarry, I'm sorry to hear about your headaches, it must be so debilitating.   I wonder if they are migraines?   A lot of women develop migraines when they reach the menopause and I suddenly started having silent migraines (aura without headache) when my oestrogen levels tanked.   Like you, I had a Mirena coil at the time and after many consultations with various specialists, it turned out that the cause was low oestrogen in conjunction with all types of progesterone used in contraception and HRT preparations.   I had no history of progesterone intolerance pre menopause and was able to tolerate the pill and the Mirena without getting migraines.   It would appear that post menopause, my body rejects progesterone -  Nightowl on here has had a similar experience.

I now have a high oestrogen, low dose progesterone HRT regime but I have been advised to have a hysterectomy long term.   I need a very high dose of oestrogen to feel good.

When did you have your Mirena coil fitted?  It could be that you don't tolerate the progesterone and it's causing your headaches.   You would probably be better off using a high dose of Oestrogel (4 pumps every day) to try and counter the effects of progesterone in the coil.   Women with migraines are advised to use transdermal oestrogen rather than oral forms.

I agree it would be a good idea to seek advice from a migraine specialist like Professor Anne MacGregor.   A former member called Elizabethrose was brilliant on migraines having suffered so badly herself.   Have a look at her posts on here.

I hope that helps. 
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shrosphirelass

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Re: What sort of headache?
« Reply #25 on: August 10, 2018, 08:13:23 PM »

I've been getting these sort of headaches all my adult life so I guess they are hormone related. Always right side of face/head and right eye. Excruciating. No medication touches them and they always last 48 hours.
What I discovered late in life - 50 ish! was that coffee helped. I never drank coffee until I was about 50. Now when I feel one starting I have a strong coffee and sometimes it knocks it on the head - no pun intended ha ha!

J x
I don't usually drink coffee, but I'll try anything!
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grumpyjane

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Re: What sort of headache?
« Reply #26 on: August 10, 2018, 09:59:55 PM »

Ladybt28  and shropshirelass give it a go next time, but a fresh coffee without milk, not instant. For someone who never liked the taste of coffee I started on espressos  :o Actually now I quite like coffee...
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HRT since Dec 2015, started Testim Nov 2016, gave it up July 2017. I'm 60 and 6 years post meno.

CarryWarry

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Re: What sort of headache?
« Reply #27 on: August 11, 2018, 07:28:59 AM »

Thank  you for your replies ladies.   My new coil went in about 4 weeks ago and I started the 2mg of Progynova at the same time.  I've added 2 squirts of gel daily but only started that 4 days ago.  I am a large lady - 5ft 10 and three stone over weight, so this could reflect needing a higher amount of oestrogen.  Mary G - when my headaches started (Jan 2016) I had the Mirena in as I'd had it for 17 years - I haven't got a clue when my periods would have finished or if they had at the time...however tests show I am post meno now.  I had the Mirena removed July 2016 and the headaches were still just a debilitating.  I tried no medication at all and it was hell.  Anyway, long story short, I ended up seeing HRT specialist who really did improve the situation as the head was not as painful...and this was using Evorel patches...I was on 100 mcg plus ustrogen tablet for balance.  I still had headaches though so went to my GP and asked for tablet form (not knowing what I now know) and have been sort of trying to get things right since.  I am now using Mirena with one 2mg tablet Progynova and two squirts of oestrogel a day.  I actually think after reading what you and others say on there I should now return to transdermal methods as the coil may make the difference, but I know 100mcg evorel didn't wipe out the headaches completely.  Every day is another day when you feel ill isn't it?  I just wish we could live with an HRT specialist who could rapidly sort us out! LOL.  I have patches upstairs but I can't keep chopping and changing....however waiting three months every time means you are spending your life in semi-hell.  I wonder if anyone uses more than a 100 mcg patch.  I think I may go and see my specialist again this week....just gone backwards too much. 

Thank you for your kind help everyone.  I will find out about Anne Macgregor too...  xx
« Last Edit: August 11, 2018, 07:58:55 AM by CarryWarry »
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Carry Warry
Onset of dreadful daily headaches in January 2016 which are gradually being sorted after 3 brain scans showed nothing.  Menopause to blame!

CarryWarry

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Re: What sort of headache?
« Reply #28 on: August 11, 2018, 07:30:47 AM »

And I forgot to say I don't know if my headaches would be classed as migraine as it literally is just pain in the right side of my head and enormous pressure all round when I cough or sneeze.  It's the pressure thing I can find nothing about.  I feel like I am the only person in the world with this sort of headache....  I would be so happy if it wasn't every single day.  The tinnitus is pretty bad this morning too...  Time for a cuppa! x
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Carry Warry
Onset of dreadful daily headaches in January 2016 which are gradually being sorted after 3 brain scans showed nothing.  Menopause to blame!

sparkle

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Re: What sort of headache?
« Reply #29 on: August 11, 2018, 09:54:55 AM »

There are many types of migraine.  Mine concentrated right eye, through it, around it and above it.  Moving my head made it worse.  Pressure feeling was still. At times it felt as if my eye was going to burst.  It affected my right nostril, felt blocked which gave me sinus pain and it affected my ear, the pain went along the right side of my head.  From. My experience migraine and tension headaches are inextricably linked, everything goes into spasm and feels swollen if that makes sense.  I'm sure a specialist would be able to help you get to the bottom of it. 
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