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Author Topic: Newbie - relieved to have found people who understand!  (Read 3193 times)

curlygirl

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Newbie - relieved to have found people who understand!
« on: July 17, 2018, 12:52:36 PM »

Hello everyone,
Thank you for accepting me to join - I'm so relieved to find people going through the same experiences as me. Though I wouldn't wish these feelings on anyone, it's good to know I'm not alone...or completely loca!

I'm 48, single, no children (not for want of trying with several rounds of IVF in my early 40s) and started to be affected by increasingly strong perimenopausal symptoms around 18 months ago, though it's been difficult to pinpoint exactly, as the years of fertility issues and anovulatory cycles along with the effects of IVF have seamlessly transitioned into menopause - great! 

I have all the common physical symptoms, the most worrisome for me have been the unrelenting weight gain on top of already struggling with weight loss, the fatigue and general inability to manage normal life anymore - zero energy, strength or vitality. And the periodic deep depression, anxiety and feelings of doom; I've disappeared off the radar of my own life, can't/don't want to do anything or see anyone. Not ideal as I had begun to explore adopting, but had to put my assessment on hold because I couldn't see how I could possibly start being a new mum now?!

The other day my Dad said I was always in a bad mood these days and not very nice any more - it's just us now as my mum passed away 3 years ago, so he probably does get the full force of it when I feel overwhelmed supporting him as well as trying to keep my own head above water :-(

None of this is the me I remember, which is disconcerting and then affects my self confidence and self worth - I used to be fun, joyful, busy, smart - where did I go??

Anyway, I had my first appointment at Professor Studd's clinic last month - under Prof Watson. As seems common they started me on 3 x Estrogel pumps + .5mg testosterone daily and 10 x Utrogestan 100mg monthly.

Once used to it, the Estrogel and testosterone had started to have a little positive effect on my mood and symptoms, I was having an inkling of feeling better - then the Utrogestan phase started on the 1st July and blew me out of the water. I've been a total mess - every single symptom dialled back up to 100%, I was fainting all over the place, I've had two weeks of painful flooding bleeds and at times my mood was so low I seriously wondered if I'd make it to the next day. I had to take the week off work because I couldn't cope with leaving the house.

The last day of Utrogestan was last Tuesday, and today is the first day I feel it's out of my system and I'm out the other side and somewhat in normal spirits again. Hell of a progesterone hangover!

I tried the Utrogestan both orally and vaginally, safe to say it did not suit me. Next month they are going to try me on cyclogest 200mg x 7 days, which I remember using during IVF and not reacting so badly. Fingers crossed it will go more smoothly, I'm terrified, I know it's trial and error to find the right recipe for me.

Sorry for such a long first post, I'm not often so talkative so took the opportunity :-)
thank you for all the excellent information shared - it's so helpful.
Sending very best wishes to everyone,
xx
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CLKD

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Re: Newbie - relieved to have found people who understand!
« Reply #1 on: July 17, 2018, 12:58:43 PM »

 :welcomemm:

Do ring Prof Watson's secretary and tell her!  Many ladies find that Progesterone upsets their systems beyond being able to cope. 
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curlygirl

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Re: Newbie - relieved to have found people who understand!
« Reply #2 on: July 17, 2018, 01:03:25 PM »

Hi,

thank you - yes they were very helpful and changed to cyclogest next month, so we'll see how that goes!
:-)
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CLKD

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Re: Newbie - relieved to have found people who understand!
« Reply #3 on: July 17, 2018, 01:05:20 PM »

Do you keep a mood/food/symptom diary, some ladies find that it helps as we can forget how awful we feel when we are 'better'  ::) vice versa.

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curlygirl

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Re: Newbie - relieved to have found people who understand!
« Reply #4 on: July 17, 2018, 01:08:35 PM »

no, but that's a very good idea - I'll start doing that so at least I can show myself evidence that it'll pass on the dark days!

thank you for the suggestion  :)
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CLKD

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Re: Newbie - relieved to have found people who understand!
« Reply #5 on: July 17, 2018, 01:09:55 PM »

You are welcome.  Every day is a learning curve  ;)
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Big D

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Re: Newbie - relieved to have found people who understand!
« Reply #6 on: July 22, 2018, 01:57:08 PM »

Hi im new to this site too, i have found it very informative and supportive.  i think it has stopped me from thinking i have went crazy.  i have went from a very strong willed person to somone who has lost their confidence and would love to stay home and hide as its much easier than dealing with the day to day struggles with my emotions.  My Dad also pointed out my mood swings and that he seems to get the brunt of it all.  I had gone to the doctors a few years ago and was put on prozac, i came off them after 1 year as i just felt flat.  i went back to the doctor recently and was prescribed HRT, which i feel has been a benefit until i take the green pills and hit the low moods and mood swings once more.  i will be back at the Doctor this week to change the HRT as all this will be worth it just to feel like me again.  Good luck to you too and hope you feel more yourself again soon x
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curlygirl

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Re: Newbie - relieved to have found people who understand!
« Reply #7 on: July 22, 2018, 10:51:00 PM »

Ah thanks for your reply Big D, I hope it goes well at the GP this week and the HRT starts balancing out for you soon too. One day at a time xx
I was having a good day today so printed some symptom info for my Dad which we chatted through, so he can understand it more when I'm not doing well. He's of an era where this was all ‘women's business' and a vague mention of ‘the change' he was actually very
interested and supportive in the end. Hopefully won't take my moods so personally  :-\
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Big D

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Re: Newbie - relieved to have found people who understand!
« Reply #8 on: July 30, 2018, 10:33:34 AM »

Well i thought i would give you a quick update after my visit to the Doctor.  it was decided its better to take some time off from work so that i can rest when i feel so fatigued and also my HRT is changing to Femoston as the green pills in Elleste seem to change me into a bit of a monster.  so fingers crossed that i turn a corner.
thanks for your support and hope things are improving for you too
D
 ;D
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CLKD

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Re: Newbie - relieved to have found people who understand!
« Reply #9 on: July 30, 2018, 12:29:49 PM »

Enjoy your break. Sometimes we have to step back from work in order to recharge batteries.  Feet up!
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curlygirl

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Re: Newbie - relieved to have found people who understand!
« Reply #10 on: July 30, 2018, 06:01:03 PM »

Hi,
That's good, one less thing to worry about while you find your right balance and HRT to suit you - which I'm sure you will.  Make sure to do things to enjoy and nurture yourself - I treated myself to an aromatherapy massage the other week and it really lifted me - so much so I bought some oils to waft by my bed - clary sage, geranium, lavender etc. :-)
Hopefully the different medication will be much better for you.
I'm switching to Cyclogest for my progesterone this month so like you I'm really hoping to tolerate a different med better than the Utrogestan and be in a better state.
Best wishes to you and keep in touch x
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Juliet

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Re: Newbie - relieved to have found people who understand!
« Reply #11 on: July 30, 2018, 06:08:33 PM »

Hi Curlygirl and thanks for posting how the menopause has affected you. I can completely identify with wanting to hide at home and losing confidence and oomph. I have been taking Femoston 2/10 for 4 months and I do feel things are better than before, but still not sure I have found the right combination yet. I am off to see a specialist in Cambridge next month to explore whether I improve things further as anxiety and low mood still persist and I need to be at my best to tackle my job and deal with family stresses. Take care.
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CLKD

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Re: Newbie - relieved to have found people who understand!
« Reply #12 on: July 30, 2018, 08:23:26 PM »

If your anxiety hasn't lifted with HRT then ask your GP for anti-anxiety medication.  Some have to use both side by side.
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curlygirl

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Re: Newbie - relieved to have found people who understand!
« Reply #13 on: July 31, 2018, 08:52:02 AM »

Hi Juliet,
it is a comfort to relate to each other I think - I feel for you and hope things start improving for you too.
I've taken up CLKD's helpful suggestion of keeping a short daily mood diary and it does help to be reminded that not every single day is bad, and the bad ones do pass. x
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curlygirl

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Re: Newbie - relieved to have found people who understand!
« Reply #14 on: March 03, 2020, 04:09:54 PM »

Hi,
I received a PM from Eagle87, but unfortunately I haven't been posting enough to be able to use personal messaging yet.

Hi Eagle87, yes I have got on so much better with cyclogest pessaries than on utrogestan - I only use it for 8 days per month, but still get a very 'healthy' withdrawal bleed, so been advised to stick with that regime for now while it's working.

Even with cyclogest it took my body maybe 6 to 8 months to get used to the hormones. I'm also now on a low dose antidepressant and in conjunction with the HRT seems to be working well for me and my mental health. I'm not the same woman I was, but I at least recognise myself!

How are you getting on?
x
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