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[Yorkshire Girl]

After doing so well on Everol 75, I suddenly started feeling pretty awful, also fed up with very low libido, lack of energy, aches and pain in my muscles + joints & hardly sleeping, I've just been prescribed Tibolone, will start tomorrow but I'm very apprehensive, will see how it goes.

[CLKD]

Do you take any pain relief for the aches and pains?  As oestrogen levels drop ........

[Yorkshire Girl]

No CKLD I didn't, I'm one of those that hates taking painkillers and when I do it's usually when pain is too much!!

[Tc]

Hello. I joined forum recently and a lovely lady advised me to seek out this thread and refresh it.
I am 53. I had a cyst on ovary and was referred to gynae oncologist by gynae who thought that because of my age we should err on the side of caution.
I was told it didn't look like ccancer on mri but they couldnt be 100 per cent until surgery.andt that it was large and would not get smaller.

B4 surgery I was still having regular periods. I was not given the option to keep the healthy ovary something I an bow angry about. But at the time the fear of cancer is so great you just don't want to take any chances.
I had BSO 11 weeks ago today.they perforated my uterus during surgery so I had to stay in and go on antibiotics
2 weeks later I saw the consultant who said great news it was a large Dermoid and there was no evidence of cancer. Of course I was very grateful for that but
I have to say I feel like I'm in a nightmare and can't wake up.
I'm on femseven sequin patches but I don't think I'm absorbing well as I have every single symptom of hormone defficiancy.
The first 4 weeks I was ok.then I just crashed into hell.
I have the worst anxiety I've ever had in my life it is crippling and relentless. I don't want to go out and the last couple of days have confined myself to my bedroom not even able to go into other rooms in the flat. I feel paralysed by it. I feel utter panic when the phone rings I don't want to speak to anyone cos I can't hide the state in in.i haven't slept or eaten in 2 days despite the fact that a few days ago I had forced myself to eat 3 meals and had felt a bit stronger physically because of that.
I feel sick I feel a crushing weight and a horrible churning heat in my tummy. When I try to think of nice things I feel nothing. I feel like my life is over. I just want to sleep. I've taken 2 phenegran today and still not slept. I have such a feeling of fear and uneasiness and that nothing is ever gonna be the same again.
My thoughts are on an intrusive loop of regret and disbelief that I am ruined forever and that I have to say goodbye to the person I was a matter of 3 months ago.
Sorry to go on. I have posted a bit more positive a couple odmf days ago trying to bring myself out of it but I can't. I'm so scared my family are going to suspect and want to get me out to smdo things but they don't understand I can't think of or concentrate on anything else and co have absolutely nothing to say to anyone except what I've just said here.
It sounds silly but I live alone with my little cat and she is normally a great comfort to me but I looked at her today as she is lying next to me and i felt nothing.nothing seems to matter anymore.

[Annie0710]

Oh you poor thing :-(

I think you need to change your hrt, try am oestrogen gel and progesterone pessary and maybe broach the subject with your gp about testosterone

The beauty of oestrogen gel is that you can increase the dose yourself

I really hope you start to feel better xx

[Tc]

Thank you so much.

[Kathleen]

Hello Tc and welcome to the forum.

As you know all your symptoms are due to hormone deficiency and although sudden and severe in your case many of us have similar stories to tell.. I'm so sorry that you've been put in this position but you are not alone. The regime suggested by Annie0710 is the most popular and is easily prescribed by your GP.  If your doctor is unfamiliar with this HRT be sure to ask for Oestrogel and Utrogestan which is listed as micronised progesterone.

It beggars belief that you have been left to suffer so much and I hope you manage to get effective treatment soon.

Wishing you well and please keep us updated.

K.

[Tc]

Thank you Kathleen.today has been a better day. I'm beginning to think that the progesterone phase is when I feel worse.
The patches haven't helped with what I can only describe as chronic vaginal dryness. I bought some reopens but without wanting to sound like I'm giving too much info it was even hard to insert.
It's not my major problem but the discomfort is adding to my misery.
I guess I'm not getting enough estro from the patches because my skin is generally very dry and even my eyes feel dry!
My hot flushes have decreased tho
Thank you for taking time to reply I hope you are well and
Thanks Annie I will look into the regimen you suggested.

[Tc]

Oops I meant replens not reopens haha what an appropriate predictive text!!

[Annie0710]

lol reopens yes very appropriate!

Ask for vagifem, you can use it alongside normal hrt, it's oestrogen vaginal pessaries with an aplicator x

[Tc]

Thanks. I've read about that and also ovestin. Not sure if the ingredients are different but I think vagifem is a suppositry and ovestin a cream. I will ask about it. Thanks. Hope you are well.

[LJB12]

Yorkshire Girl - how are you getting on?

I have been happy on Evorel 75, Mirena, Testim and vagifem since my BSO in December 2015, but suddenly at the start of October I started feeling exactly as you have described. Lack of energy, aching, sudden loss of interest in things I used to love (the gym), disturbed sleep, cold flashes.

I thought it could be the progesterone in the Mirena running out. This happened to me pre-op when my Mirena ran out, and I knew immediately.

Saw my meno specialist at Mr Panay's clinic who said it's much more likely low estrogen and said I might be in peri-menopause as I'm now 41. That confused me because I thought I was in complete and utter surgical menopause. Do I have to have a natural one too?!

She suggested I use a cut up patch to put me to 100mcg estrogen. Within 1 day I felt immensely better, but 4 days later (including a hard workout at the gym) I crashed back down to even lower than I was before. This was last Wednesday. On Friday night I put on a 1/2 patch as well to make 112.5mcg and I felt not too bad Saturday, but today pretty fed up.

I don't get how I can be so level and good for 3 years then so suddenly crash.



quote author=Yorkshire Girl link=topic=34701.msg657477#msg657477 date=1541688062]
After doing so well on Everol 75, I suddenly started feeling pretty awful, also fed up with very low libido, lack of energy, aches and pain in my muscles + joints & hardly sleeping, I've just been prescribed Tibolone, will start tomorrow but I'm very apprehensive, will see how it goes.
[/quote]

[Yorkshire Girl]

LJB12
Not great, I've now been on Tibolone for around 5-6 weeks the only thing it's helped with is my aches and pains. I'm going to give it the 3 months, then it will be back to dr's for review and if there is no change I will go back on my everol patches and ask for the 100mcg.
How are you getting on now?

[Lou44]

Hi everyone, are any of you still lurking on this thread?

[Tc]

Hiya Lou. First time on this thread but I've  been on the forum since my BSO in late August last year.

I was hoping this thread would get bumped or a new one started. I didnt know whether to start one myself.

Xxx