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Author Topic: 12 yr old daugther has ovarian cyct  (Read 5723 times)

Milamam

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12 yr old daugther has ovarian cyct
« on: June 26, 2014, 02:58:23 PM »

I just came back from the doctor's re my daughter who is 12. She has gained much weight over the past two years and also has more body hair than normal for her age. Let alone the depression which we have contributed to puberty. She is menstruating since 10.

So I wanted to check whether things are normal with her and what to do. The Dr saw a little cysts in one of her ovaries. He is also suspicious about a polycystic syndrome but we will have to do come more tests next week and another ultasound as well . He said he cannot put a diagnosis yet.

So worried!! Does anyone have any experience with ovarian cysts  or polycystic syndrome at that early age? How common of a problem is this ? What is the treatment, etc. i am so worried until we do the further tests!
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Rowan

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Re: 12 yr old daugther has ovarian cyct
« Reply #1 on: June 26, 2014, 03:15:06 PM »

Milamam here is some info  http://www.youngwomenshealth.org/pcosinfo.html

My young Niece was diagnosed with PCO, she is 21 now and it seems to have resolved itself. I think she did have hormone treatment for a while.
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Milamam

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Re: 12 yr old daugther has ovarian cyct
« Reply #2 on: June 26, 2014, 03:46:15 PM »

Thanks SL, the link was very helpful, seems that a lot of girls do get this syndrome. Still not confirmed with my daughter but many of the symptoms are there.
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Sweetlittlemaiden

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Re: 12 yr old daugther has ovarian cyct
« Reply #3 on: June 26, 2014, 04:43:14 PM »

My daughter was diagnosed with this at an early age too, she was very overweight and also hairier than usual, she was told that she would never conceive naturally. She was put on medication and has been on it ever since, she is now 24, married and got a beautiful little girl who was conceived naturally, she is also very slim and beautiful. Please try not to worry it is not all bad x
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Milamam

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Re: 12 yr old daugther has ovarian cyct
« Reply #4 on: June 27, 2014, 10:29:33 AM »

This really makes me feel so much better, knowing there is cure! I wish so much we have done these tests earlier but what can one do.... We always thought that the extra weight was due to puberty etc. now I am in a at glad that we have taken steps and that if the diagnosis is confirmed, there are treatments. Will  write with updates when we know more! Thank you all for you support!
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Annika

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Re: 12 yr old daugther has ovarian cyct
« Reply #5 on: June 30, 2014, 01:41:28 PM »

My daughter who is now 22 was diagnosed 3 years ago with PCOS with the same symptoms you describe. At the time we had never heard of this before and of course like all parents where worried sick about it. She too started her period when she was 10 very unlike her sister or myself also blemishes around the same time. I took her to a skin doctor and got that taken care of so she wouldn't have to put up with any teasing at school. Then the hair part of it started and it grew everywhere, chest,tummy,face all over that really concerned us so off we went to another doctor who put us in touch with a specialist that dealt with the endocrine system and after several scans she was diagnosed. As best I can explain it her body is super sensitive to insulin which she puts out more than the average person so she takes Metaformin for that also birth control. Her last scan revealed that her cysts had gone away so not all with PCOS actually have cysts...very confusing i know and still not sure i can get my head around it all. Now she sees her doctor every 6 months and stays on her meds, always watches her weight as that helps a lot. Good luck and try not to worry ( i know thats not easy to do)
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Milamam

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Re: 12 yr old daugther has ovarian cyct
« Reply #6 on: June 30, 2014, 02:56:02 PM »

Thanks Annika,
We still don't have PCOS diagnosed or confirmed. She needs more tests but waiting for her period to come - and she is now late, today 33 days. I hope we will be able to do the tests this week but god only knows. She does't have that much excess hair, just legs up to top, much on hands and a bit on lower back. Testosterone was normal but other adrenal hormones need to be seen.

Did you daughter see improvement from the medication and how much time it took for,it to have effects on weight and hair? Strangely, our doctor didn't include insulin in the tests, should I ask him about this? Also, did your daughter have any depressive moods, lack of energy, etc? Sorry for the many questions but I don't have anyone that I can ask that has had a similar experience.

Thanks Xxx
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Dyan

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Re: 12 yr old daugther has ovarian cyct
« Reply #7 on: June 30, 2014, 04:18:49 PM »

Milamam I don't have any experience of this but just wanted to say I hope all goes well with your daughter. :) :hug:
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Cassie

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Re: 12 yr old daugther has ovarian cyct
« Reply #8 on: June 30, 2014, 05:16:32 PM »

My daughter was diagnosed with it earlier this year, yet she has lost a lot of weight, has no body hair and is looking great since the Gynae put her on a stronger oral contraceptive pill. All the best, it may not turn out so bad in the end as we always tend to panic. :)
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Annika

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Re: 12 yr old daugther has ovarian cyct
« Reply #9 on: June 30, 2014, 05:57:55 PM »

My daughter has blood tests every six months and its quite an extensive work up...they do check everything including insulin, but perhaps your doctor will check for this later on as when they have ruled out other causes. Her periods have always been very light to not having them at all some months the birth control did make them more regular and the Metaformin has been working well according to her doctor, in some cases it will help with the weight. Again there is no set pattern each person is different and responses differently to the medication. The hair has been the biggest problem as it effects her self esteem but she has decided to go ahead and get laser treatments even though quite expensive. She has had a problem with lack of energy but noticed a change once on the medicine. Hope this is of some help to you Milamam, she uses a website called Soulcysts.com you might want to look around on there for any info.
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Milamam

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Re: 12 yr old daugther has ovarian cyct
« Reply #10 on: July 01, 2014, 05:40:42 AM »

Thank you all for the support! I really hope now that we started the process that things will not turn out to be so serious, cross fingers!
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Milamam

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Re: 12 yr old daugther has ovarian cyct
« Reply #11 on: July 03, 2014, 02:59:38 PM »

Update after visit to the Dr's. The blood tests strongly indicate polycystic ovaries. The cyst in one of the ovaries has disappeared but the Dr said these are functional cysts and they come and disappear.
We will now start with diet change and increase of exercise. Oh God, this is the hardest part - my DD is very stubborn and hard to persuade re things that are for her health. So will have to be a bad mother for while.... :-* We'll start medication in the fall as the DR said it is not good to start while she is on much sun exposure. Exercise is another key thing that she'll have to increase. Oh I sooo hope she will be convinced to be persistent as she currently doesn't see anything wrong with her nor does she feel sick etc. so wish me luck!
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Dyan

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Re: 12 yr old daugther has ovarian cyct
« Reply #12 on: July 03, 2014, 03:10:57 PM »

 :thankyou: for the update Milamam.
At least you now know what can be done and hopefully your DD will recognise( at some point ;D)
that it is for her own good. :)
Good Luck with everything ;)
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Milamam

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Re: 12 yr old daugther has ovarian cyct
« Reply #13 on: August 28, 2014, 01:37:01 PM »

Update to this thread and a bit of venting...
Since DD is also high on insuling (hyperinsulinism), after getting a second opinion  month ago, she was started on low dose oral contraceptive and strict diet. Diet okay for now (that is why I started making our own bread, etc), BCP okay for now , no side effects , but she is on diet for two months already and haven't lost a kilo yet. Moods have  not improved, too. He is grumpy, unenergetic, slow, not willing to do anything but the computer games  :(. The first doctor prescribed Metformin as well as the BCP. The second doctor said start with only the BCP for now, let's wait three months and see if there is change when only on diet. This is because she is relatively young (12) and not much  is known re how Metformin works at such an early age. So I followed the advice of the second Dr but now am soooo worried that there is no change in weight, that I am very tempted to start her on  the med as the first one advised.

So in short, I don't want to wait more re starting Met. I have read tons of great comments re its action and effectiveness, even on adolescents. I also want her to start it before school year begins in terms of getting any possible side effects under control. Unfortunately I cannot get hold of that second doctor, he might be on vacation. What would you do in my place?


Than you all!


Milamam
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CLKD

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Re: 12 yr old daugther has ovarian cyct
« Reply #14 on: August 28, 2014, 01:47:33 PM »

get her off the computer and into the fresh air ?  is there a support group at the Hospital, she's that age group where encouragement would be better coming from her peer group rather than the Bad Nagging Mother  ;) ...........

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